Just got diagnosed yesterday with endometrial cancer

Chestnut51
Chestnut51 Member Posts: 16
in Uterine/Endometrial Cancer #1
I just got diagnosed yesterday. I am freaking out. Can someone give some words of encourgament?
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Comments

  • Chestnut51
    Chestnut51 Member Posts: 16
    #2
    I totally lost. Please help
    I totally lost. Please help me.
  • paris11
    paris11 Member Posts: 159
    #3
    Chestnut51 said:

    I totally lost. Please help
    I totally lost. Please help me.

    Chesty? or Nutty? Or both...
    Hi my friend,

    You are going to be OK. REPEAT: YOU ARE GOING TO BE OK...

    I am so sorry. The very word cancer is terrifying...but the treatments have improved and YOU ARE GOING TO BE OK.

    Please tell us a little more about yourself; whatever you are comfortable saying.

    You will soon be receiving many responses and TONS of love.

    I have been 4.9 years living with cancer.

    Love, love, love,

    Connie
  • Chestnut51
    Chestnut51 Member Posts: 16
    #4
    paris11 said:

    Chesty? or Nutty? Or both...
    Hi my friend,

    You are going to be OK. REPEAT: YOU ARE GOING TO BE OK...

    I am so sorry. The very word cancer is terrifying...but the treatments have improved and YOU ARE GOING TO BE OK.

    Please tell us a little more about yourself; whatever you are comfortable saying.

    You will soon be receiving many responses and TONS of love.

    I have been 4.9 years living with cancer.

    Love, love, love,

    Connie

    Thank you for responding. I
    Thank you for responding. I think Im a little nutty now. Im from the Chicago area. I love horses thats where the chestnut came from. Im single and have a wonderful family. I need the support. I have to stop crying.
  • Chestnut51
    Chestnut51 Member Posts: 16
    #5
    Chestnut51 said:

    Thank you for responding. I
    Thank you for responding. I think Im a little nutty now. Im from the Chicago area. I love horses thats where the chestnut came from. Im single and have a wonderful family. I need the support. I have to stop crying.

    I am going to repeat. I
    I am going to repeat. I WILL BE OKAY!!
  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #6
    Hi Chestnut:
    Sorry about
    Hi Chestnut:

    Sorry about your diagnosis, but please don't freak. May I ask what Grade and Stage? I was diagnosed with Endometrial Adenocarcinoma back in September of 2005 with Grade 2, Stage ii/iiia. This is a doable thing.

    Thoughts are with you.

    Kathy
  • upsofloating
    upsofloating Member Posts: 466 Member
    #7
    Chestnut51 said:

    I totally lost. Please help
    I totally lost. Please help me.

    Welcome Chestnut to the club
    Welcome Chestnut to the club no one wants to join. You have come to a site that is full of supportive women 'who've been there' and a great resource of treatment options, etc. The diagnosis is scary but many treatment options are available today. What your doctor(s) recommend will have to do with the specific type (cell type), the Grade (how aggressive it is), and the Stage (how advanced it is at this time). Cell type and Grade can be determined from a biopsy, Stage is usually determined post-op - at minimum a hysterectomy is usually necessary.

    So take a deep breath, relax, and realize that your world may suddenly seem to be turned upside down, but it is by no means over. I've been dealing with, thriving, and surviving cancer for 18 years, first with breast cancer and since late 2007, UPSC (Grade 3, Stage 4B).

    We're here to help you get through it.
    Annie
  • Chestnut51
    Chestnut51 Member Posts: 16
    #8
    Kaleena said:

    Hi Chestnut:
    Sorry about
    Hi Chestnut:

    Sorry about your diagnosis, but please don't freak. May I ask what Grade and Stage? I was diagnosed with Endometrial Adenocarcinoma back in September of 2005 with Grade 2, Stage ii/iiia. This is a doable thing.

    Thoughts are with you.

    Kathy

    Kathy,I don't know what
    Kathy,I don't know what stage yet or grade yet. I am learning all these things. I'm having a ct scan on Tues. then talking to the gyno Tues. pm about surgery. I do know that i live in Chicago and I am going to take advantage of all the wonderful hospitals we have here. Right now Im at a local hospital but I need to go to the big guns downtown. Thank you so much for responding to me. I feel better talking with people who have gone through this. I learned on one of the discusions to make sure I go to a gyno oncologist and someone who specializes in these surgeries. I am learning so much already. Thank you.
    My name is Sandy. I have been diagnosed with the same cancer. I know I will be okay!!!
  • Elly P.
    Elly P. Member Posts: 4
    #9
    Chestnut51 said:

    Kathy,I don't know what
    Kathy,I don't know what stage yet or grade yet. I am learning all these things. I'm having a ct scan on Tues. then talking to the gyno Tues. pm about surgery. I do know that i live in Chicago and I am going to take advantage of all the wonderful hospitals we have here. Right now Im at a local hospital but I need to go to the big guns downtown. Thank you so much for responding to me. I feel better talking with people who have gone through this. I learned on one of the discusions to make sure I go to a gyno oncologist and someone who specializes in these surgeries. I am learning so much already. Thank you.
    My name is Sandy. I have been diagnosed with the same cancer. I know I will be okay!!!

    Yes, you will be ok. I also
    Yes, you will be ok. I also freaked out with my stage four cancer. Just know that the treatments have improved so much it is amazing. I take one day, hour, minute at a time. And so far I have not missed out on life. Just a few days of feeling drained from the chemo. Bless you Sandy. We love you!
  • Fayard
    Fayard Member Posts: 438 Member
    #10
    Chestnut51 said:

    Kathy,I don't know what
    Kathy,I don't know what stage yet or grade yet. I am learning all these things. I'm having a ct scan on Tues. then talking to the gyno Tues. pm about surgery. I do know that i live in Chicago and I am going to take advantage of all the wonderful hospitals we have here. Right now Im at a local hospital but I need to go to the big guns downtown. Thank you so much for responding to me. I feel better talking with people who have gone through this. I learned on one of the discusions to make sure I go to a gyno oncologist and someone who specializes in these surgeries. I am learning so much already. Thank you.
    My name is Sandy. I have been diagnosed with the same cancer. I know I will be okay!!!

    Hola Sandy
    It is hard not to freak out, but like everyone says, you are going to be OK!
    I just finished 6 months of chemo, and I feel slightly tired and dizzy.
    It was not that bad.

    The main thing is to find a good onco/gyno, have your surgery, and then decide what treatment is best for you.

    Keep us posted, please, so we can help you get through it.
  • norma2
    norma2 Member Posts: 479
    #11
    Hi! Sandy!
    Hi! There Sandy,
    I was diagnosed 2 yrs ago and am doing fine. It really is scary when you hear that you have cancer. I know I was so afraid my teeth chattered. Been through the surgery, chemo, radiation, etc. Finished treatment in Feb 2010. So far so good. I am feeling fine.

    This site has some great ladies who are very supportive. I think you will find it a wealth of information and help. I know I have.

    Norma
  • Sara Zipora
    Sara Zipora Member Posts: 231
    #12
    norma2 said:

    Hi! Sandy!
    Hi! There Sandy,
    I was diagnosed 2 yrs ago and am doing fine. It really is scary when you hear that you have cancer. I know I was so afraid my teeth chattered. Been through the surgery, chemo, radiation, etc. Finished treatment in Feb 2010. So far so good. I am feeling fine.

    This site has some great ladies who are very supportive. I think you will find it a wealth of information and help. I know I have.

    Norma

    Hi there Sandy,
    I am a year since diagnosis and surgery and six months since I finished Chemo. Hang in there, you can do I!
    Sara
  • paris11
    paris11 Member Posts: 159
    #13
    Chestnut51 said:

    Thank you for responding. I
    Thank you for responding. I think Im a little nutty now. Im from the Chicago area. I love horses thats where the chestnut came from. Im single and have a wonderful family. I need the support. I have to stop crying.

    Chestnut, I live in Edgewater, Chicago
    I would be happy to arrange a second opinion with my Onc at Northwestern. Many of his close collegaues are from Boston. Seems Oncs are always at meetings and in contact. Is your family in Chicago???


    Just read your post - you live in Chicago??? Julian C. Schink MD at Northwestern; Diane Yamada MD at U of CHICAGO;
    Jacob Rotmensch MD at Rush.

    Dr. Schink is my ONC. I have heard both Drs. Yamada and Rotmensch give lectures. All three are on the A List.

    I am ten minutes from Michigan Ave. I can meet you anytime.

    Connie
  • Chestnut51
    Chestnut51 Member Posts: 16
    #14
    Sara Zipora said:

    Hi there Sandy,
    I am a year since diagnosis and surgery and six months since I finished Chemo. Hang in there, you can do I!
    Sara

    I am happy I found this chat
    I am happy I found this chat group. Thank you for all the words of encourgement. I know I will be okay.
    Sandy
  • Chestnut51
    Chestnut51 Member Posts: 16
    #15
    Chestnut51 said:

    I am happy I found this chat
    I am happy I found this chat group. Thank you for all the words of encourgement. I know I will be okay.
    Sandy

    Norma,
    I know what you mean
    Norma,

    I know what you mean about teeth chattering when you heard the diagnosis. I just started to shake. I am getting control of myself and will feel better when I start getting treatment. Right now I feel I don't have any control. I just want to get it over with.
    Thank you for your help.
  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #16
    Chestnut51 said:

    Kathy,I don't know what
    Kathy,I don't know what stage yet or grade yet. I am learning all these things. I'm having a ct scan on Tues. then talking to the gyno Tues. pm about surgery. I do know that i live in Chicago and I am going to take advantage of all the wonderful hospitals we have here. Right now Im at a local hospital but I need to go to the big guns downtown. Thank you so much for responding to me. I feel better talking with people who have gone through this. I learned on one of the discusions to make sure I go to a gyno oncologist and someone who specializes in these surgeries. I am learning so much already. Thank you.
    My name is Sandy. I have been diagnosed with the same cancer. I know I will be okay!!!

    Sandy:
    Right now everything
    Sandy:

    Right now everything is going to seem crazy to you. Just hang in there. Also, you may be surprised if the surgery may be a month away. When you hear you have cancer, you want it out right away.

    Take questions you want to ask your gyn on Tuesday. Don't be afraid to ask questions no matter how small of a question it is. Your gyne should refer you to a gyn/onc. So you will have to set up another appointment and wait again. Hang in there! Also, if you are not sure what your gyn/onc is suggesting, ask that you can think about it and/or get a second opinion. It is ok and a lot of doctors would suggest that.

    Another thing, if you are to get chemo, the doctor may want to place a port. Don't panic about this. It is a simple procedure (out-patient), but it will save your veins and make getting treatment a lot easier. In fact, although I was done treating in 2006, I just had my port removed last week.

    Also, if you are having a hysterectomy, ask what else they are going to remove. I had a total hysterectomy (removed ovaries, etc). At my Itstaging surgery, they removed my omentum?? my appendix and various lymph nodes. So you may want to ask about these things too.

    It is good that you have a great hospital to go to. It should make all of this less stressful for you.

    My thoughts are with you.

    Kathy
  • antigone_42
    antigone_42 Member Posts: 8
    #17
    Chestnut51 said:

    Thank you for responding. I
    Thank you for responding. I think Im a little nutty now. Im from the Chicago area. I love horses thats where the chestnut came from. Im single and have a wonderful family. I need the support. I have to stop crying.

    Hi Chesnut,
    I'm in the
    Hi Chesnut,

    I'm in the Chicago area too. I am a patient of Dr. Rotmench's at Rush. I was diagnosed in November of 2010 after a D&C my regular OBgyn performed because of heavy menstrual bleeding I was having. Because I am young and have not yet had children and my husband and I were actually trying to when I was diagnosed, I am on treatments of megestrol to try to reverse the condition. Dr. Rotmensch and his team have been very caring and supportive in addition to the fact that they are very experieced and knowledgable and can speak in terms of experiences with other patients about exactly what should be happening and what to expect.

    I'm not sure where you are located, but in the south suburbs of Homewood and Mokena there are Cancer Support Centers that have different group meetings in person throughout the week. A support group to help talk through things can really help releive some of the early fears and anxiety you may be going through right now. I know it helped me.
  • jazzy1
    jazzy1 Member Posts: 1,379
    #18
    Chestnut51 said:

    Norma,
    I know what you mean
    Norma,

    I know what you mean about teeth chattering when you heard the diagnosis. I just started to shake. I am getting control of myself and will feel better when I start getting treatment. Right now I feel I don't have any control. I just want to get it over with.
    Thank you for your help.

    Sandy
    Welcome to our group! You'll meet a lot of wonderful and helpful women who can hold your hand thru your process. I know just hearing the word "cancer" freaks us all out (did me), but know baby steps along the way and it'll be behind you so very soon. Doesn't seem that way at the beginning, but it's true.

    The biggest thing at the start, get a good Oncol OB and even better if they have experience with whatever type of cancer you're diagnosed. I was lucky and referred to my oncol by my primary OB...wonderful people, both docs. Secondly read a lot and ask lots of question about any part of the disease from type, stage, treatments, side affects, foods, etc, etc. Don't get stuck on the statistics as --- WE'RE A STATISTIC OF ONE!!! You're unique and should be treated this way, not another number on the boards for statisticians.

    Keep us posted on your progress as we can help you...ask us questions as you'll gain insight from any of us.

    Best to you and BE STRONG, THIS IS JUST A SMALL BLIMP IN THE PATH OF LIFE. You'll get thru it as you've done with other difficult things in life.

    Sending positive vibes......
    Jan
  • Chestnut51
    Chestnut51 Member Posts: 16
    #19
    jazzy1 said:

    Sandy
    Welcome to our group! You'll meet a lot of wonderful and helpful women who can hold your hand thru your process. I know just hearing the word "cancer" freaks us all out (did me), but know baby steps along the way and it'll be behind you so very soon. Doesn't seem that way at the beginning, but it's true.

    The biggest thing at the start, get a good Oncol OB and even better if they have experience with whatever type of cancer you're diagnosed. I was lucky and referred to my oncol by my primary OB...wonderful people, both docs. Secondly read a lot and ask lots of question about any part of the disease from type, stage, treatments, side affects, foods, etc, etc. Don't get stuck on the statistics as --- WE'RE A STATISTIC OF ONE!!! You're unique and should be treated this way, not another number on the boards for statisticians.

    Keep us posted on your progress as we can help you...ask us questions as you'll gain insight from any of us.

    Best to you and BE STRONG, THIS IS JUST A SMALL BLIMP IN THE PATH OF LIFE. You'll get thru it as you've done with other difficult things in life.

    Sending positive vibes......
    Jan

    Jan,
    I have learned so much
    Jan,

    I have learned so much already. All of you have been so helpful and supportive. Today was a much better day for me. Im getting the fight back in me and I know I can beat this. I will keep all of you informed, I will let you know how my appt. goes on Tues. and what the gyne has to say.
    You are so right about statistics.
    I'm starting to feel those positive vibes from all.
    Sandy
  • Chestnut51
    Chestnut51 Member Posts: 16
    #20
    Chestnut51 said:

    Jan,
    I have learned so much
    Jan,

    I have learned so much already. All of you have been so helpful and supportive. Today was a much better day for me. Im getting the fight back in me and I know I can beat this. I will keep all of you informed, I will let you know how my appt. goes on Tues. and what the gyne has to say.
    You are so right about statistics.
    I'm starting to feel those positive vibes from all.
    Sandy

    Hi it's me again. I will be
    Hi it's me again. I will be going to my gyno Tues. and I have compiled a list of questions. Could you all give me some of advise on what questions to ask! I want to be very thorough.

    Thanks
    Sandy
  • clscurnutt
    clscurnutt Member Posts: 26
    #21
    Chestnut51 said:

    I totally lost. Please help
    I totally lost. Please help me.

    Know how you feel. It really
    Know how you feel. It really is a lost feeling initially. But now that you're here, you are certainly not lost. I was diagnosed and treated for stage 3 adenocarcinoma beginning in June 2009. Currently dancing with NED. Work, work, work to stay as positive as possible. Never give up and never surrender!

    You are in all of our thoughts on this journey.

    Lynn

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