ROLL CALL, JANUARY 2011

13

Comments

  • janymac
    janymac Member Posts: 35
    #42
    HAWVET said:

    Bump
    Many have not checked back in for year 2011. The list will be updated in July 2011. This is a voluntary enrollment program. Here are the instructions:

    The enrollment date is not when you first had the cancer, but when you joined our roll call group. When you check in, provide a brief summary so others can read on your case and status. The date of enrollment and date checked in need not be provided. I can extract the information from the date of your posting.

    If enrolling for the first time, please provide information on where you are from, type of cancer and date diagnosed (if known), your treatment and status. If you prefer to only list your state or country, that will be fine. The date the information was posted for the first time will be the enrollment date.

    Janymac
    Janymac
    diagnosed 2002
    well out of treatment - well into long term side effects
    Nottinghamshire UK
    Bewildered but hanging in there
    Working full time- but had to change my occupation
  • janymac
    janymac Member Posts: 35
    #43
    HAWVET said:

    Bump
    Many have not checked back in for year 2011. The list will be updated in July 2011. This is a voluntary enrollment program. Here are the instructions:

    The enrollment date is not when you first had the cancer, but when you joined our roll call group. When you check in, provide a brief summary so others can read on your case and status. The date of enrollment and date checked in need not be provided. I can extract the information from the date of your posting.

    If enrolling for the first time, please provide information on where you are from, type of cancer and date diagnosed (if known), your treatment and status. If you prefer to only list your state or country, that will be fine. The date the information was posted for the first time will be the enrollment date.

    Janymac
    Janymac
    diagnosed 2002
    well out of treatment - well into long term side effects
    Nottinghamshire UK
    Bewildered but hanging in there
    Working full time- but had to change my occupation
  • janymac
    janymac Member Posts: 35
    #44
    janymac said:

    Janymac
    Janymac
    diagnosed 2002
    well out of treatment - well into long term side effects
    Nottinghamshire UK
    Bewildered but hanging in there
    Working full time- but had to change my occupation

    oops- sorry it did not look
    oops- sorry it did not look like it had gone
  • arndog64
    arndog64 Member Posts: 537
    #45
    janymac said:

    oops- sorry it did not look
    oops- sorry it did not look like it had gone

    Arndog64Diagnosed
    Arndog64
    Diagnosed 1.28.2011
    Left tongue base tumor with lymph node invasion
    Stage 4A T2N2M0
    3 rounds Ciplatin
    8 weeks of rads 2 x a day
  • HAWVET
    HAWVET Member Posts: 318
    #46
    arndog64 said:

    Arndog64Diagnosed
    Arndog64
    Diagnosed 1.28.2011
    Left tongue base tumor with lymph node invasion
    Stage 4A T2N2M0
    3 rounds Ciplatin
    8 weeks of rads 2 x a day

    Bringing it up forward in case others may want to enroll. Will post summary in early August.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #47
    HAWVET said:

    Bringing it up forward in case others may want to enroll. Will post summary in early August.

    Skiffin16 - Aloha Bruddah....
    Still alive and kickin in Lakeland, Florida....

    Thanks,
    John
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #48
    Skiffin16 said:

    Skiffin16 - Aloha Bruddah....
    Still alive and kickin in Lakeland, Florida....

    Thanks,
    John

    STILL HERE
    STILL STANDING UP AND LOOKING DOWN AT THE GOOD OL MISSOURI CLAY.

    MIKE

    A PRAYER AND A POSITIVE THOUGHT TO ALL OF MY CSN FRIENDS CURRENTLY IN THE BATTLE.
  • Dazey
    Dazey Member Posts: 91
    #49
    HAWVET said:

    Bringing it up forward in case others may want to enroll. Will post summary in early August.

    still here
    still doing well -upstate New York - will be celebrating 2 year anniversary since finishing treatment October 26. Dazey
  • connieprice1
    connieprice1 Member Posts: 300 Member
    #50
    Would like to be added:
    connieprice1, Cleveland, Tx., Stage IV Base of Tongue, Diagnosed SCC Oct. 2010, Induction Chemo & 7 weeks of Radiation, enrollment 07/17/11
  • rarph123
    rarph123 Member Posts: 64
    #51
    swartpb said:

    ENT performed an incisional biopsy on 21/07/10 and a well-differentiated infiltrating squamous cell carcinoma was found on the right side of the tongue and then was clinically staged as a T3 N2c Mx Ca Oral cavity. Started chemo treatment on the 22/02/11. God bless us all!

    Have same
    How is the treatment going? Seen your post and was looking for a second voice on the same situation I have a very close prog. as yours but mine went to the right lung.They said I was un-curable but treatable--what ever that means--Doc said maybe two years.

    Take Care rufus
  • luv2cut1
    luv2cut1 Member Posts: 288
    #52
    HAWVET said:

    Bringing it up forward in case others may want to enroll. Will post summary in early August.

    Checking In
    From Colorado! Hubby Pat still doing well 22mos post chemo reirradiation for recurrent/persistent scc. Thoughts, prayers and thanks to everyone here.

    Myka
  • Greg53
    Greg53 Member Posts: 849
    #53
    connieprice1 said:

    Would like to be added:
    connieprice1, Cleveland, Tx., Stage IV Base of Tongue, Diagnosed SCC Oct. 2010, Induction Chemo & 7 weeks of Radiation, enrollment 07/17/11

    Greg53 here
    15 months post tx and doing good!

    Positive thoughts to all!

    Greg
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #54
    Greg53 said:

    Greg53 here
    15 months post tx and doing good!

    Positive thoughts to all!

    Greg

    I have a correction, I just noticed:
    Sweetblood22, Pennsylvania, SCC HNC unknown primary stage 4 ****DX December 2009.**** Enrolled 03-18-2010. Checked back in July 23, 2010. Checked back in on January 5, 2011.


    I was DX December 2008.
  • KTeacher
    KTeacher Member Posts: 1,103 Member
    #55
    Please add me
    KTeacher, diagnosed July, 2010. Surgery at Stanford August 9, 2010. Radiation ended mid October, 2010. Back to work January, 2011. New lump on neck June, 2011, confirmed mets July 14, surgery cancelled Monday, rescheduled for this Friday, July 22. Will have a neck dissection.

    SCC, HPV-; spindel cell varient, perineural involvement

    I live in the central valley in California.
  • olybee
    olybee Member Posts: 85
    #56
    KTeacher said:

    Please add me
    KTeacher, diagnosed July, 2010. Surgery at Stanford August 9, 2010. Radiation ended mid October, 2010. Back to work January, 2011. New lump on neck June, 2011, confirmed mets July 14, surgery cancelled Monday, rescheduled for this Friday, July 22. Will have a neck dissection.

    SCC, HPV-; spindel cell varient, perineural involvement

    I live in the central valley in California.

    Add us
    Roll Call Olybee, diagnosed March 2011. Surgery in Olympia, WA, 4/20/11. Removed tonsils, 25 lymph nodes, 4 nodes over 4 mm. Stage 4a. Radiation ended July 19, 2011.
  • areomech
    areomech Member Posts: 33
    #57
    Checking in
    Still Alive and Healthy!!
    Diagnosed stage 1 scc right tonsil and left tonsil on Sept 24 2010. Next doctors visit in August for 8 months post treatment.
  • ratface
    ratface Member Posts: 1,337 Member
    #58
    areomech said:

    Checking in
    Still Alive and Healthy!!
    Diagnosed stage 1 scc right tonsil and left tonsil on Sept 24 2010. Next doctors visit in August for 8 months post treatment.

    enrolling
    Ratface, Chicago, DX July 2009 BOT, T1N2BMX, IMRT radiation x39, Cisplatin x3 right side selective neck disection.
  • seenanN
    seenanN Member Posts: 24
    #59
    Count me too
    SeenanN, Maryland. Dx 2004, NPC stage4 metastasis to lung. Tx ended 2004. No saliva, no taste, bad hearing but doing well.
  • Glenna M
    Glenna M Member Posts: 1,576
    #60
    seenanN said:

    Count me too
    SeenanN, Maryland. Dx 2004, NPC stage4 metastasis to lung. Tx ended 2004. No saliva, no taste, bad hearing but doing well.

    Checking in...
    Glenna M, New Hampshire, diagnosed May 2009 with NSCLC and Laryngeal cancer. Pet scan in June '11 shows cancer in both lung and lymph nodes. Can't have surgery yet as lungs are not strong enough. Will receive 6 to 10 weeks of Pulmonary Physical Therapy and see what happens. I haven't given up the fight!!!!
  • Ed_PortOrange
    Ed_PortOrange Member Posts: 110
    #61
    Checking In
    Ed - Port Orange Florida, Diagnosed stage 4 SCC of the Vallecula region of throat in Nov.2009

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