More problems...this is getting old...already!

MAJW
MAJW Member Posts: 2,510 Member
in Breast Cancer #1
Long story short....took the second cycle of my trial chemo with the upped dosage..one day late..last Thursday...because my right arm and hand had been swelling with pain... and some funky looking veins appearing on the upper part of my arm.......had to have yet ANOTHER CAT scan...it shows that the tumor above my clavicle is pressing on and has occluded a blood vessel...not a major one but occluded one all the same...now on Cumadin. So as not to " throw a clot " as the nurse so delicately put it......meeting with my radiation oncologist tomorrow morning....If he feels that the tumor needs to be radiated pronto to shrink it, I am out of the clinical trial....grrrr but my Oncologist who is out of country and called me Sunday said they are thinking of putting a stent in to open the occluded vessel...this would buy me time to stay in the trial....I never expected this with bc...the stent would be placed into the vessel through the groin......groan....where they sand bag you for 4 hours afterwards....now doesn't this sound like fun? And this second, upped dosage has kicked my butt! Lots of aches and pains, no energy or appetite....I can deal with that...the idea of a stent isn't thrilling me....

So....my appt is at 9:00 am...so I will jump on the pink bus for Chen's appt when I'm finished...it's okay, I can just jump on the back as it passes and hang on....I'll be sure not to drop the Xanax!
Hugs to all,
Nancy
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Comments

  • chenheart
    chenheart Member Posts: 5,159 Member
    #2
    The Pink Bus needs to be a
    The Pink Bus needs to be a mega-camper so we can rest up in between picking the Kindreds up for various appts! As Meg Ryan said to Tom Hanks in Joe vs The Volcano: "It's always going to be something with you, isnt it???"

    What an odd twist to be sure! I as always wish you every good and positive outcome to the latest pothole in the road called Breast CAncer! We maneuver every step with you, sweet sister!

    Hugs,
    Chen♥
  • renee616
    renee616 Member Posts: 181
    #3
    chenheart said:

    The Pink Bus needs to be a
    The Pink Bus needs to be a mega-camper so we can rest up in between picking the Kindreds up for various appts! As Meg Ryan said to Tom Hanks in Joe vs The Volcano: "It's always going to be something with you, isnt it???"

    What an odd twist to be sure! I as always wish you every good and positive outcome to the latest pothole in the road called Breast CAncer! We maneuver every step with you, sweet sister!

    Hugs,
    Chen♥

    I'm sorry you are going through all this!!!!
    I will be praying for you! It does get old! Wishing you well in surgery....One day at a time........
    Hugs & prayers,
    Renee
  • skipper54
    skipper54 Member Posts: 936 Member
    #4
    renee616 said:

    I'm sorry you are going through all this!!!!
    I will be praying for you! It does get old! Wishing you well in surgery....One day at a time........
    Hugs & prayers,
    Renee

    Be careful
    as you jump up and hang on to the back.

    Sending prayers and good wishes! They just keep coming, just like the issues that pop up.
  • fauxma
    fauxma Member Posts: 3,577 Member
    #5
    skipper54 said:

    Be careful
    as you jump up and hang on to the back.

    Sending prayers and good wishes! They just keep coming, just like the issues that pop up.

    I will be there with you
    I will be there with you also. So many unexpected twists and turns in this gosh darn journey. Hoping you can stay in your clinical trial. Prayers and support coming your way.
    Stef
  • cahjah75
    cahjah75 Member Posts: 2,631
    #6
    Nancy
    we'll just all stay on the bus. After Chen is done we'll be with you so hop on and hold tight! Keeping you in my thoughts and prayers.
    {{hugs}} Char
  • CAchick
    CAchick Member Posts: 277
    #7
    Count me in on the bus...
    Nancy,
    I am so sorry that you are having complications...
    Sending prayers and positive thoughts...pink clouds coming your way!
    Sybil
  • lynn1950
    lynn1950 Member Posts: 2,570
    #8
    Dear Nancy, You are truly
    Dear Nancy, You are truly getting an education, one I wish you didn't need. I'm with you on the bus. xoxoxoxo Lynn
  • Boppy_of_6
    Boppy_of_6 Member Posts: 1,138
    #9
    lynn1950 said:

    Dear Nancy, You are truly
    Dear Nancy, You are truly getting an education, one I wish you didn't need. I'm with you on the bus. xoxoxoxo Lynn

    So sorry that you are having
    So sorry that you are having to deal with all these issues Nancy. Praying for you. God Bless
    (((hugs))) Janice
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #10
    Boppy_of_6 said:

    So sorry that you are having
    So sorry that you are having to deal with all these issues Nancy. Praying for you. God Bless
    (((hugs))) Janice

    the beast and all his nonsense is testing your
    patience, dear Nancy .. I am so sorry! I sense the frustration in your voice .. Keep your spirits up by knowing that we are here for you === praying, sending positive vibes and gentle hugs your way.

    Time to kick some assssxxxx!

    Strength, Courage and Hope.

    Vicki Sam
  • GreeneyedGirl
    GreeneyedGirl Member Posts: 1,077
    #11
    Boppy_of_6 said:

    So sorry that you are having
    So sorry that you are having to deal with all these issues Nancy. Praying for you. God Bless
    (((hugs))) Janice

    Thinking of you~
    ~ I never get used to having procedures done, on this journey. I dread anytime they say they need to do something. I know it is what needs to be done, but it is never a fun time. Pack the chocolate, the wine, the games, good chick flicks, whatever it takes to make the trip more bearable~ certainly all the girlfriends on board make it a more joyful time, being surrounded by sisters who know the emotions, discomfort, and challenges.
    Love ya Nancy~Praying for U.
    Melanie
  • linpsu
    linpsu Member Posts: 747
    #12
    sorry
    Oh my, Nancy, you sure have a lot to deal with. Sorry to hear of all these new complications. I never had a stent put in but did have 2 catheterizations, where they threaded the needle through the groin and it went up into the heart - it didn't hurt at all. The laying still afterwards with the pressure on the entry site was boring, but not painful, except when the strong male nurse pressed all of his weight on it for a long time. Good luck to you and I hope all of this stuff soon settles down. Hugs, Linda
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #13
    Goodness, I hope all this
    Goodness, I hope all this stuff gets better soon. I think it's enough that you're doing the trial...I'll help you hold on to the bus!

    Hugs,

    Linda
  • natly15
    natly15 Member Posts: 1,941
    #14
    Nancy this news simply
    Nancy this news simply "sucks" or Cancer Sucks. I'm praying for you. ((((HUGS))))
  • Angie2U
    Angie2U Member Posts: 2,991
    #15
    cahjah75 said:

    Nancy
    we'll just all stay on the bus. After Chen is done we'll be with you so hop on and hold tight! Keeping you in my thoughts and prayers.
    {{hugs}} Char

    So sorry Nancy!
    So sorry Nancy!


    Praying,

    Angie
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #16
    natly15 said:

    Nancy this news simply
    Nancy this news simply "sucks" or Cancer Sucks. I'm praying for you. ((((HUGS))))

    Good Grief!
    Enough already. Nancy, I'm so sorry for these new complications. We need a coordinator for these bus schedules.

    Seriously, this is just terrible for you and I hate that you're having to go through it. Sending hugs and prayers.

    Suzanne
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    #17
    on the bus with you
    Don't hang on to the back of the bus. Come on in where we can make you more ccomfortable.

    If they are going to sandbag you, I wonder if that is anything like being burried in the sand at the beach?
  • Mitzi333
    Mitzi333 Member Posts: 511 Member
    #18
    laughs_a_lot said:

    on the bus with you
    Don't hang on to the back of the bus. Come on in where we can make you more ccomfortable.

    If they are going to sandbag you, I wonder if that is anything like being burried in the sand at the beach?

    You're in my thoughts and prayers...
    I'm hopping on the bus too. We have to all stay strong to beat this Beast!!!

    Hugs,
    Mitzi ;0)
  • Mitzi333
    Mitzi333 Member Posts: 511 Member
    #19
    laughs_a_lot said:

    on the bus with you
    Don't hang on to the back of the bus. Come on in where we can make you more ccomfortable.

    If they are going to sandbag you, I wonder if that is anything like being burried in the sand at the beach?

    You're in my thoughts and prayers...
    I'm hopping on the bus too. We have to all stay strong to beat this Beast!!!

    Hugs,
    Mitzi ;0)
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    #20
    Hi Nancy - Sorry this got
    Hi Nancy - Sorry this got complicated for you, and I pray you keep on taing your chemo trial. Please keep us posted.

    You are in my thoughts and prayers.
  • grams2jc
    grams2jc Member Posts: 756
    #21
    Sorry you are having so much trouble
    I will just take the whole day off to make all the bus trips neeeded. Hopefully you can stay in the trial.

    Positive thoughts and prayers to you,

    Jennifer

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