anyone with upsc stage 3/4 NOT had a recurrence

Hi Maggie, I have been
Hi Maggie,
I have been hesitant to reply to your question, mainly because I felt like I might be jinxing myself ), but I was diagnosed with high grade UPSC stage IIIC and finished my treatment in 08/09 and so far so good. I had my last checkup w/ CTs last month and my doc said everything looked clean. My CA125 was 9.5, but it has never been above 15 even before my surgery. Of course I haven't even hit my 2 year mark since ending treatment, but it seems like, from what I have read, most people have recurred by this time. So maybe I'll get lucky!

I'll bet there are others who are like me, afraid to step forward...yet.
Hope I'm not jumping the gun,
Laura

maggie_wilson said:

laura,
so good to hear that you were stage 3 and no recurrence. may it ever be so. i have been on a strict anti-cancer diet for 10 months,--no sugar, white flour, dairy, hardly any meat, a little chicken, everything organic, lots of fruits and vegetables, exercise every day, vitamins, high dose vitamin d3, etc., and still i recurred. so, it's not just how we take care of ourselves after surgery, chemo, etc. that determines whether we have a recurrence or not. i still think it's a crap shoot.

i recurred a little over a year, which was considered good, so if you're at a year and a half, i think you have a great chance of being done with upsc. here's hoping.

sisterhood,
maggie

Hi Maggie,
You're right! It
Hi Maggie,
You're right! It is a crap shoot. I'm going to enjoy my life while I'm here. I try to eat a balanced diet and I exercise daily because I feel better when I do, and try to reduce my stress, but that's about it. I have a sister-in-law who died of breast cancer and she spent the last days of her life with people trying to force-feed her cottage cheese and flax seed oil. I don't think that's for me. Vitamin D3 is a good thing though, I think one of the most important really. We don't get enough.

Keep your spirits up Maggie!
Best wishes,
Laura

Cindy Bear said:

Crap shoot
Hi Maggie. I totally agree, it's a crap shoot. I just wanted to comment, I just saw a woman over on inspire.com (ovarian not uterine) who was diag. stage IV in 1996 and no recurrence to date!!!

Crap shoot
I agree as well, but I'm the type that just has to do something to try and keep my body built up. That's where the food, exercise, etc, comes into play. Really the only control I have, as cancer will do what it wants, when it wants.

Life is a crap shoot really, so just try and live each day, as if it were your last. AND...smile :-)

Enjoy the day ladies,
Jan

jazzy1 said:

Crap shoot
I agree as well, but I'm the type that just has to do something to try and keep my body built up. That's where the food, exercise, etc, comes into play. Really the only control I have, as cancer will do what it wants, when it wants.

Life is a crap shoot really, so just try and live each day, as if it were your last. AND...smile :-)

Enjoy the day ladies,
Jan

Maggie/crap shoot
Maggie, you wrote, back in March " i have been on a strict anti-cancer diet for 10 months,--no sugar, white flour, dairy, hardly any meat, a little chicken, everything organic, lots of fruits and vegetables, exercise every day, vitamins, high dose vitamin d3, etc., and still i recurred. so, it's not just how we take care of ourselves after surgery, chemo, etc. that determines whether we have a recurrence or not. i still think it's a crap shoot."

I could not agree more. I think being on a strict diet can be stressful, which we do not need. Thinking that we can control this evil (with a diet or anything else) can also be stressful because if there is recurrence, we think WE have done something wrong, or not enough, or whatever.

The anti-cancer diet might be great for everyone BEFORE getting cancer, but once that evil is in your body, it is just hiding out, waiting to spring again. And I do not think a diet will stop that.

mehulelx said:

MMMT Stage I
My mother had a Malignant Mixed Mullerian Tumor detected in CT Scan. She was operated but that time it was not confirmed whether it was malignant. Hence no lymph nodes etc were removed. But later in Histopath report, same was found to be malignant. PET scan shows some metastases in the Pelvic. Now there are 2 opinions of 2 different doctors.

One is give 3 Chemo treatment, then one surgery to remove residual metastases. Then again 3 Chemo treatment. This is done to dissolve the Tumor in first 3 Chemo cycles and then Surgery can be made easy.

Second doctor says remove the Tumor in Surgery first and then take Chemo cycles. SO that if 3 chemo do not respond to tumor, then it will spread. Hence first surgery and then Chemo.

Anyone has any experience in this. Pls help.

MMMT
I have this same type of aggressive cancer. Mine was prior to surgery (total hysterectomy) only found in uterus. After hysterectomy found in 1 lymph node - pelvic. Doc told me we used to do chemo prior to surgery, but now they suggest surgery-hysterectomy (total), chemo and in some instances radiation. I had it all and today NED for 2 years, stage 3C.

I know if you look into some earlier posts, I think Claudia posted about suggested treatments according to the medical outlines for cancer. But...that doesn't mean every doc follows this to the "t" as many of us have other health issues, which don't allow themto follow the outlines.

If you ever don't feel comfortable with what your doc suggests, alway get a second opinion. Most insurance companies will pay for these, too.

Surely a few others will chime in for suggestions or advice...

Best to you and keep coming back, as you'll learn so much from others.
Jan

maylynne said:

UPSC stage 3/4 NOT had a recurrence
Diagnosed UPSC stage 3 A. Finished treatment August 2008. Last checkup 1 month ago, everything clear.

There is hope for us all.
Maylynne

AWESOME!
Maylynne....I was so happy to hear about how long you have been diagnosed with a difficult diagnosis/stage and you are NED today. That is so hopeful to so many many on this site.

What type of treatment did you have and is there anything you are doing to stay NED?

Best wishes to you always.

Karen

P.S...I love your water lilies!

sleem said:

1A grade 3 USPC
I agree with all the comments. I try not worry if what I'm eating or not anymore will or will not stop this ugly USPC. I am fortunate to have been 1A grade 3 with no other signs after staging in any places. At this time I'm NED. Yet, my CA 125 is still in normal 'range' but rising. But, I am blessed to be NED as I write this. It might not make sense, but I worry the same as if I wasn't in NED. I have not found anyone with USPC who has not had it come back sometime in the future. So, we all seem to share the same feelings & worries at any stage. So, I continue to hope & pray that there are researchers, etc. that will continue to work on this USPC to help us all fight at any stage we are facing. You ladies keep me focused, hopeful, and filled with knowledge & support.

I can not say it enough that I am lucky to have the opportunity to learn from each of you.

Stage 3A, Grade 1
I was diagnosed with UPSC, Stage 3A, Grade 1. I go for my 1-1/2 yr ckup on Monday. Feeling good and I know I am very blessed to be here. This is a wonderful support group. I don't post often but thoughts & prayers are with you all.