New to this site!

Nana C.
Nana C. Member Posts: 108
in Breast Cancer #1
I am new, well not really I have been on this site almost everyday for over a year. I found myself being able to answer some of the questions your sisters have so I thought it was about time I became a sister TOO! I was diagnosed in February of 2010 with Invasive Ductal Carsinoma. Stage 11B. I was really shocked because I have had a monogram every year for the last 10 years, sometimes 2! My main concern from the beginning was my Granddaughter, did not want to think that I passed this disease to her. Took the Brac test. Came back negative! Yea!!!!… I went through Chemo just fine, matter of fact I worked through Chemo, But soon after my last treatment I got Neuropathy so bad I can’t hardly raise my arms!. My doctor, who has been wonderful, says that sometimes it takes up to 2 years to go away, so I must be half way through! Before I bore you with the rest of my story I will go for now. I would love to hear from anyone that got neuropathy from chemo. Thank you all for all the goods things you do!

Comments

  • jo jo
    jo jo Member Posts: 1,175 Member
    #2
    Hi Nana C...just wanted to
    Hi Nana C...just wanted to welcome you to the board and being one of the sisters!
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    #3
    Welcome Nana!
    Just wanted to welcome you too. Glad you found us. :)
  • smalldoggroomer
    smalldoggroomer Member Posts: 1,184
    #4
    Hi there!!!
    Always room for another Sister Welcome, Glad to meet ya.
  • poplolly
    poplolly Member Posts: 346
    #5
    I can't answer your
    I can't answer your question, but I wanted to say hello and welcome.
  • Nana C.
    Nana C. Member Posts: 108
    #6
    poplolly said:

    I can't answer your
    I can't answer your question, but I wanted to say hello and welcome.

    Thank you all!
    Thank you all for your warm welcome!
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    #7
    Wecome
    I am glad you decided to join us in more than just reading.
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    #8
    laughs_a_lot said:

    Wecome
    I am glad you decided to join us in more than just reading.

    Welcome Nana C ! I can't
    Welcome Nana C ! I can't help you on your question but I'm sure one of our sisters can.
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #9
    I have neuropathy also, but
    I have neuropathy also, but it is in my hands and feet. My last chemo was Dec 2010, so it isn't quite as bad as during treatment. But it still sometimes makes writing and typing difficult, and walking is sometimes painful. My onc said that neuropathy is the one chemo side effect he worries most about, because recovery takes so long and it is sometimes permanent. I don't usually let it stop me though.

    Welcome, I'm glad you decided to speak up.

    Hugs,

    Linda
  • mollyz
    mollyz Member Posts: 756 Member
    #10
    Hi Nana C.
    Welcome to the boards.I was diagnosed in May 2010 and finished chemo at the end of January and yes mam i have neuropathy really bad for me it was worst after treatments i thought it was just tingling in your feet and hands but it's pain in the hands and feet and like you i can't raise my arms hardly some days are better than others. my Dr. recommended lyrica but i didn't want it,it had a whole new list of side effects so I'm trying to deal with it. MOLLYZ
  • missrenee
    missrenee Member Posts: 2,136 Member
    #11
    mollyz said:

    Hi Nana C.
    Welcome to the boards.I was diagnosed in May 2010 and finished chemo at the end of January and yes mam i have neuropathy really bad for me it was worst after treatments i thought it was just tingling in your feet and hands but it's pain in the hands and feet and like you i can't raise my arms hardly some days are better than others. my Dr. recommended lyrica but i didn't want it,it had a whole new list of side effects so I'm trying to deal with it. MOLLYZ

    Welcome, Nana C.
    I did not get the neuropathy--but I see others have given some input. Just wanted to say hi and glad you posted.

    Hugs, Renee
  • Mare33
    Mare33 Member Posts: 3
    #12
    I'm new, too
    This is my first time on this site. My last chemo was Dec. I had peripheral neuropathy before chemo so it was nothing new. I have been on Neurontin since 2003. Every drug has it's side effects but you may want to look at Neurontin as an alternative to Lyrica. I've seen the commercials for Lyrica and it makes you wonder which is worse the treatment or the symptom.
  • carkris
    carkris Member Posts: 4,553 Member
    #13
    Mare33 said:

    I'm new, too
    This is my first time on this site. My last chemo was Dec. I had peripheral neuropathy before chemo so it was nothing new. I have been on Neurontin since 2003. Every drug has it's side effects but you may want to look at Neurontin as an alternative to Lyrica. I've seen the commercials for Lyrica and it makes you wonder which is worse the treatment or the symptom.

    I have neuropathy in my arms
    I have neuropathy in my arms and legs. I noticed my writing is better. I had it on my fave and eyes and that went away fairly quickly. I had itchy painful feelings in my forearms and that went away. I think it is plateauing, or getting better more slowly but its livable. except I cant be on my feet and I am anurse. I took vit B and was offered lyrica but didnt take it as I am working a temp research job. Neurontin made me horribly depressed. I wish it would go away but I can live with this except the job part it might even turn into being disabling from a work standpoint.
  • New Flower
    New Flower Member Posts: 4,294
    #14
    carkris said:

    I have neuropathy in my arms
    I have neuropathy in my arms and legs. I noticed my writing is better. I had it on my fave and eyes and that went away fairly quickly. I had itchy painful feelings in my forearms and that went away. I think it is plateauing, or getting better more slowly but its livable. except I cant be on my feet and I am anurse. I took vit B and was offered lyrica but didnt take it as I am working a temp research job. Neurontin made me horribly depressed. I wish it would go away but I can live with this except the job part it might even turn into being disabling from a work standpoint.

    welcome to the board
    Can physical therapy help? It worth to try
    Lyrica could cause swelling, please be careful
  • Noel
    Noel Member Posts: 3,095 Member
    #15
    missrenee said:

    Welcome, Nana C.
    I did not get the neuropathy--but I see others have given some input. Just wanted to say hi and glad you posted.

    Hugs, Renee

    I am late, but, I certainly
    I am late, but, I certainly want to welcome you to the site! Lots of great support, caring, hope and encouraging pink sisters are here for you.


    ♥ Noel

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