Surgery soon

JimboC
JimboC Member Posts: 264
To my many friends and comrades in arms in the battle against this horrible disease. I have just finished eating my final regular meal with my diseased esophagus. I start my pre-op diet tomorrow and surgery is Friday in Pittsburgh. I know there has been some debate about the MIE and Pittsburgh lately but I have every confidence in Dr. Luketich and his team. I met with him in May to discuss it and the date is finally upon us. I'd be lying if I said I wasn't scared. Fact of the matter is I am more afraid than I ever have been but I feel better and stronger than I think I have ever in my life so I'm as ready as I can be. When I was in Pittsburgh, I was very impressed by the facility. Dr L was running late and they actually called me so that I wouldn't have to wait unnecessarily. Class act. I found his staff to be as great as he was.

After surgery, the plan is to do another 3 rounds of ECF chemo to totally lick this thing. I'll be sure to update everyone ASAP once I get out of surgery.

At this point, it's all in God's hands and I'm definitely okay with that.

Take care everyone.
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Comments

  • BMGky
    BMGky Member Posts: 621
    Good Luck
    May you have the very best of outcomes from your surgery. You are in good hands, and I am confident that Dr. L. will take good care of you. As you noted, different people have different experiences but also, circumstances, conditions and events are different as well. Each patient is unique. Everyone here will be praying for you. Please keep us informed. It is an exciting time. Good Luck. Mary
  • Gatoraid
    Gatoraid Member Posts: 66
    Surgery
    Minimally invasive surgery when compared to the Ivor Lewis traditional method is definitely the way to go. I had 9 holes, the largest being an inch long. One was for feeding, 2 drains and the 6 were for cameras and the actual surgery. 3 were on my right side and right back where they did most of the work. I know it is scary but the way to look at it is that withing a week, your 3000% better. I was walking the day after surgery and pushed myself to keep doing that to get my strength up. I was home 6 days after surgery. With the traditional Ivor Lewis, you're home in 4 to 6 weeks, you are sliced open big time and there is a much greater risk of infection. I'll pray for you and I wish you the best of luck. I hear good things about your surgeon so you're in the best of hands.
  • linda1120
    linda1120 Member Posts: 389
    Thinking of You
    Dear Jim,

    We will be thinking about you and praying for you. My Jim is now six months on the 5th from his MIE. We live on the West Coast and were so grateful for the MIE vs the Ivor-Lewis. It is a major operation and I know you are in good hands there in Pittsburg.

    Linda and Jim
  • This comment has been removed by the Moderator
  • rose20
    rose20 Member Posts: 258
    Been thinking about you...
    Jimbo, I have been thinking of you I knew your surgery was coming up.
    You said it all, "...it's all in God's hands and I'm definitely okay with that."
    There's no better place to be than that!
    You will be in our family's prayers.
  • GerryS
    GerryS Member Posts: 227 Member
    my thoughts and prayers are with you today....
    I too, remember those feelings as 15 months ago I had my surgery. I put that day in God's hands and He was there with me. Keep poitive as this will change and improve your life. It is a big day for you and your family. Everything will go well and we look forward to hearing from you. God bless....

    Gerry
  • cher76
    cher76 Member Posts: 292
    Jumbo,
    Will be keeping you

    Jumbo,
    Will be keeping you in our prayers this week as you go through your surgery and recovery. Good luck!
    Cheryl
  • flmo
    flmo Member Posts: 65
    Best of luck to you on Friday.
    I know Dr. Luketich and his team will take great care of you. My husband is 4 months out from his surgery with Dr. L. He is doing great. I will pray that you have excellent results, too.

    Maureen
  • paul61
    paul61 Member Posts: 1,392 Member
    We will be thinking of you on Friday
    Jimbo,

    I remember that anxious feeling during the days leading up to my surgery. I had never been in the hospital before. When my surgeon described the specifics of my surgery and that I would be in the hospital for 10 to 12 days, if all went well, it certainly gave me pause. You are fortunate to be able to have surgery; and very fortunate to have an MIE.

    I remember the 4 hour drive to the hospital and the hour it took to check into my room was some of the longest hours of my life. But interestingly once I got in my room and got settled a strange calm came over me. Like you, I thought “it is in God’s hands now”.

    I will be thinking about you and praying for you on Friday.

    Best Regards,

    Paul Adams
    McCormick, South Carolina

    DX 10/22/2009 T2N1M0 Stage IIB
    12/03/2009 Ivor Lewis
    2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
    6/21/2010 CT Scan NED
    3/14/2011 CT Scan NED

    Life may not be the party we hoped for, but while we are here we might as well dance!
  • Joel C
    Joel C Member Posts: 174
    paul61 said:

    We will be thinking of you on Friday
    Jimbo,

    I remember that anxious feeling during the days leading up to my surgery. I had never been in the hospital before. When my surgeon described the specifics of my surgery and that I would be in the hospital for 10 to 12 days, if all went well, it certainly gave me pause. You are fortunate to be able to have surgery; and very fortunate to have an MIE.

    I remember the 4 hour drive to the hospital and the hour it took to check into my room was some of the longest hours of my life. But interestingly once I got in my room and got settled a strange calm came over me. Like you, I thought “it is in God’s hands now”.

    I will be thinking about you and praying for you on Friday.

    Best Regards,

    Paul Adams
    McCormick, South Carolina

    DX 10/22/2009 T2N1M0 Stage IIB
    12/03/2009 Ivor Lewis
    2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
    6/21/2010 CT Scan NED
    3/14/2011 CT Scan NED

    Life may not be the party we hoped for, but while we are here we might as well dance!

    Just go with it
    Hi Jimbo,
    I just wanted to let you know I’m also thinking of you and wishing for the best possible results. Like Paul I also felt no anxiety going in for my surgery. All during my pre-op treatment I worried about the surgery and wondered what surgeon I should pick but by the time of the surgery I knew I had done my homework to the best of my ability and was completely comfortable with my decisions. All that’s left to do now is put your fate in the hands of your gifted surgeon and go with it. Recovery in the hospital will be the same way but you’ll have the ability to participate in how fast you recover. Personally during my 10 days in the hospital I pushed everyday to get stronger and become more independent. For example everyday at ~7:00am the nurse would come in to help with cleaning up. The usual stuff, sponge bath, hair wash, shave that kind of stuff. By the second day I figured out the routine and would get up at six and have myself cleaned up before the nurse showed up. By the third day the nurses on each shift were fighting over who was going to get me as a patient. Also get up and walk as often and as far as you can. When you go to stand for the first time you’re going to be a little surprised that your legs feel like a couple of wet noodles but that will pass quickly.

    Best of luck and please keep us posted,
    Joel
  • Alaska_Kim
    Alaska_Kim Member Posts: 34
    Good luck!
    JimboC, Wishing you all the best on Friday. As long as you are comfortable with your surgical team, that is all that matters. You have gotten some great advise so far: walk (often - we were told it isn't a distance race; frequency is key), breathe (use that spirometer even though you don't want to), and don't be afraid of the pain meds. The nurses at MD Anderson had to remind my husband all the time to "push the button". He thought it would keep him in the hospital longer, but the pain med would help him relax and take deeper breaths using the spirometer ( there was another breathing thing he had to do also, can't remember the name now- like a big party favor you blow into). The nurses also did a great job of talking to the doctor for us about Mikes medications, and got a couple changed that were J-tube friendly (I was clueless at the time) when he couldnt swallow. You may want to check into that before you leave the hospital.

    Again good luck!

    Kim
  • Joel C said:

    Just go with it
    Hi Jimbo,
    I just wanted to let you know I’m also thinking of you and wishing for the best possible results. Like Paul I also felt no anxiety going in for my surgery. All during my pre-op treatment I worried about the surgery and wondered what surgeon I should pick but by the time of the surgery I knew I had done my homework to the best of my ability and was completely comfortable with my decisions. All that’s left to do now is put your fate in the hands of your gifted surgeon and go with it. Recovery in the hospital will be the same way but you’ll have the ability to participate in how fast you recover. Personally during my 10 days in the hospital I pushed everyday to get stronger and become more independent. For example everyday at ~7:00am the nurse would come in to help with cleaning up. The usual stuff, sponge bath, hair wash, shave that kind of stuff. By the second day I figured out the routine and would get up at six and have myself cleaned up before the nurse showed up. By the third day the nurses on each shift were fighting over who was going to get me as a patient. Also get up and walk as often and as far as you can. When you go to stand for the first time you’re going to be a little surprised that your legs feel like a couple of wet noodles but that will pass quickly.

    Best of luck and please keep us posted,
    Joel

    This comment has been removed by the Moderator
  • ArchTB
    ArchTB Member Posts: 150
    All the best!
    Jimbo, good luck to you! It might be scary, but it is the best way to get this beast out. I hope to hear some good stories about the surgery and your stay at the hospital. We will be thinking of you.

    Olya
  • sandy1943
    sandy1943 Member Posts: 824
    Jimbo, surgery is always a
    Jimbo, surgery is always a scary time. but I remember what a releif, when that day finally came.

    From the first day I was diagnosed, I just wanted it out of there.When that day finally came, the Lord filled me with peace.

    Will be praying for you ,
    Sandra
  • JimboC
    JimboC Member Posts: 264
    Thank you all for the kind
    Thank you all for the kind comments and prayers. We are now in Pittsburgh and checked into Family House. For my last meal, my wife fixed me some meatloaf, hash brown casserole and bread. It was great. I am now in the last few hours of my full liquid diet, tomorrow is clear liquids. The last for several days. I may have a bowl of cream of wheat before I got to bed. Surgery is Friday so I'm freaking out a good bit but I'll be fine I'm sure.

    All my best
  • hopper52
    hopper52 Member Posts: 108
    JimboC said:

    Thank you all for the kind
    Thank you all for the kind comments and prayers. We are now in Pittsburgh and checked into Family House. For my last meal, my wife fixed me some meatloaf, hash brown casserole and bread. It was great. I am now in the last few hours of my full liquid diet, tomorrow is clear liquids. The last for several days. I may have a bowl of cream of wheat before I got to bed. Surgery is Friday so I'm freaking out a good bit but I'll be fine I'm sure.

    All my best

    Praying for you Brother
    I can imagine the emotions you're having going into surgery. I'm a few months out and already I experiencing some of the same. You've done the footwork and now it's up to the docs to perform theirs. Good luck man and I hope to hear a progress report from you shortly. I'll pray for you

    Michael Daniels
    Brandon, FL
  • Daisylin
    Daisylin Member Posts: 365
    hopper52 said:

    Praying for you Brother
    I can imagine the emotions you're having going into surgery. I'm a few months out and already I experiencing some of the same. You've done the footwork and now it's up to the docs to perform theirs. Good luck man and I hope to hear a progress report from you shortly. I'll pray for you

    Michael Daniels
    Brandon, FL

    best wishes
    Wishing you all the best, Jimbo as you face your upcoming surgery. Hope it is all smooth sailing! Thinking of you,
    Chantal
  • jthomas233
    jthomas233 Member Posts: 85
    JimboC said:

    Thank you all for the kind
    Thank you all for the kind comments and prayers. We are now in Pittsburgh and checked into Family House. For my last meal, my wife fixed me some meatloaf, hash brown casserole and bread. It was great. I am now in the last few hours of my full liquid diet, tomorrow is clear liquids. The last for several days. I may have a bowl of cream of wheat before I got to bed. Surgery is Friday so I'm freaking out a good bit but I'll be fine I'm sure.

    All my best

    God Luck!
    Jimbo-Good luck over the next few weeks! I'm n ew to the site, but I'm not new to Pittsburgh. I graduated from Pitt in 1982. Indulge me while I tell you a story that mat amuse you.

    In an effort to meet more women, I agreed to try out for the cheerleading squad. Hundreds of girls try out and it was a good way to meet people. As part of my responsibilities, I would also occasionally cover for the PITT PAnther, the mascot, when he was unable to attend events. One day he called me and asked if I would do the girls swim meet being held later that night,m because he didn't feel well. I went to his apartment and picked up the panther suit and headed up to the pool.

    Everything was going well until they stopped and changed the events to diving. They had to move the lane dividers. To kill some time, I got on the diving board and started jumping up and down. There were about 70 girls swimmers there from both teams and they started chanting "jump, Panther, jump!". I innediately made my way over to the 3 meter board and pretended to jump. Then I went up to the 5 meter platform and pretended to hang over the end. The girls were going wild. I proceeded up the steps to a 10 meter platform and looked down at all the cheering women! I don't know what came over me, but I jumped.

    A 40 foot jump into a pool with a panther suit is alot like the surgery you are facing. It's not something you can practice for...you have to take the leap and hope for the best. But I digress.

    I hit the water and felt my ears pop almost immediately as my feet hit bottom. There were bubbles coming out of the mouth of the panther head where I was supposed to look out, so I couldn't see so well. The suit was very heavy amd made out of some sort of burlap. I eventually made it up to just below the ladder where I grabbed some indents in the side of the pool and pulled myself up and was just starting to black out when the lifeguard grabbed my panther mouth with the pool hook and rolled me out on to the side. Before they could take my helmet off, I ran to the locker room and grabbed my stuff and got out of there amid a mixed reaction from the crowd. I stopped at a laundromat and tried to dry the suit, but it was too wet and too big. I got to my friend's appartment and explained the situation and he said he might have done the same thing. The suit took 3 weeks to dry on a radiator.

    Hope this story brings a smile to your face and I wish you the very best of luck!
  • BMGky
    BMGky Member Posts: 621

    God Luck!
    Jimbo-Good luck over the next few weeks! I'm n ew to the site, but I'm not new to Pittsburgh. I graduated from Pitt in 1982. Indulge me while I tell you a story that mat amuse you.

    In an effort to meet more women, I agreed to try out for the cheerleading squad. Hundreds of girls try out and it was a good way to meet people. As part of my responsibilities, I would also occasionally cover for the PITT PAnther, the mascot, when he was unable to attend events. One day he called me and asked if I would do the girls swim meet being held later that night,m because he didn't feel well. I went to his apartment and picked up the panther suit and headed up to the pool.

    Everything was going well until they stopped and changed the events to diving. They had to move the lane dividers. To kill some time, I got on the diving board and started jumping up and down. There were about 70 girls swimmers there from both teams and they started chanting "jump, Panther, jump!". I innediately made my way over to the 3 meter board and pretended to jump. Then I went up to the 5 meter platform and pretended to hang over the end. The girls were going wild. I proceeded up the steps to a 10 meter platform and looked down at all the cheering women! I don't know what came over me, but I jumped.

    A 40 foot jump into a pool with a panther suit is alot like the surgery you are facing. It's not something you can practice for...you have to take the leap and hope for the best. But I digress.

    I hit the water and felt my ears pop almost immediately as my feet hit bottom. There were bubbles coming out of the mouth of the panther head where I was supposed to look out, so I couldn't see so well. The suit was very heavy amd made out of some sort of burlap. I eventually made it up to just below the ladder where I grabbed some indents in the side of the pool and pulled myself up and was just starting to black out when the lifeguard grabbed my panther mouth with the pool hook and rolled me out on to the side. Before they could take my helmet off, I ran to the locker room and grabbed my stuff and got out of there amid a mixed reaction from the crowd. I stopped at a laundromat and tried to dry the suit, but it was too wet and too big. I got to my friend's appartment and explained the situation and he said he might have done the same thing. The suit took 3 weeks to dry on a radiator.

    Hope this story brings a smile to your face and I wish you the very best of luck!

    That was funny
    Hope it made Jimbo smile as I sure got a laugh out of it. Obviously, as my husband and sons likewise demonstrated, you were seriously focused on your college interests. And like you, they made it through college, somehow. I'm being too hard on them.

    Anyways, Jimbo you are in our prayers for a successful surgery.

    A little levity helps your body cope with challenges. As Norman Cousins, deceased, former editor of Saturday Review, wrote: "I made the joyous discovery that ten minutes of genuine belly laughter had an anesthetic effect and would give me at least two hours of pain-free sleep," [He had some bad form of arthritis that was extremely painful] Of course, I don't know if a belly laugh would be best since you're having stomach surgery, but a hearty chuckle sure feels good. I feel it is helpful on this site as well as we are facing a sobering battle with EC.

    Please let us know how you are doing.
  • mrsbotch
    mrsbotch Member Posts: 349
    BMGky said:

    That was funny
    Hope it made Jimbo smile as I sure got a laugh out of it. Obviously, as my husband and sons likewise demonstrated, you were seriously focused on your college interests. And like you, they made it through college, somehow. I'm being too hard on them.

    Anyways, Jimbo you are in our prayers for a successful surgery.

    A little levity helps your body cope with challenges. As Norman Cousins, deceased, former editor of Saturday Review, wrote: "I made the joyous discovery that ten minutes of genuine belly laughter had an anesthetic effect and would give me at least two hours of pain-free sleep," [He had some bad form of arthritis that was extremely painful] Of course, I don't know if a belly laugh would be best since you're having stomach surgery, but a hearty chuckle sure feels good. I feel it is helpful on this site as well as we are facing a sobering battle with EC.

    Please let us know how you are doing.

    best wishes
    Good luck tomorrow with Dr. L and his team. You are in the BEST hands you could possibly be in. I only wish we had gone to him.

    You will do great and live a long healthy life just like our buddy William



    Barbara