SOMEONE PLEASE ANSWER MY POST, RE: PLEASE HELP ME, ANAL CANCER SURVIVOR CT RESULTS

secondtime2 said:

ultrasound
Nina, I'm so sorry to hear of your situation. I too am a 11 yr survivor of anal cancer. The vaginal problem has been an issue with me also, even since the pelvic radiation and the burns. It tighten the whole area. However my gyne has been able to use a pediatric speculum to obtain a very quick pap smear. A month ago they were able to do an intravaginal ultrasound, to find uterine masses. We decided not to do any further testing because a hysterectomy was a necessity, and just did the CT. I went through a abdominal hysterectomy due to the risk of robotics with my adhesions and scar tissue from my radiation. They looked around, removed the uterus, tubes and ovaries and then did a biopsy on the uterus. That is when they diagnosed me again with cancer, MMMT, very rare and aggressive. This too was a probable cause from the original radiation. Treatment has not yet been determined. Have to heal from the surgery, then see oncology.
Hope this gives you some insight.
Sue from IL

ULTRASOUND


Sue, thanks for your response. I am a 6 year survivor of anal cancer and 9 yr of breast cancer, neither related. As far as I am concerned, these doctors who did the pelvic radiation without any cancer being there, and did it as a precausion, call me crazy, but they should be sued. Because, they never told me, the aftereffects it could cause, they never said, lets put a dilator up there, to prevent some of the problems. I think it was very selfish and inconsiderate of them. My tumor was between stages 1 and 2, he told me, if it was a 1, i wouldnt have needed rads in front, but since it was between, he took the grader stage and radiated. I dont think that was his call, had i known, the pelvic scarring was going to happen, I would have fought him on it. Sue? you mean ROBOTIC surgery was not an option for your hysterectomy? I was hoping that was my only option left, I am an OBESE women, big abdomen, and I read that ROBOTIC surgery is an option for women who are obese to do a hysterectomy or biopsy, I read they will not do vaginal hysterectomy for women who are obese or who had pelvic rads. Now you stated that because the adhesions and scar tissue, they had to do abdominal hysterectomy? OMG, no robotic? this means if i have scar tissue and all this FAT, they might not do the robotic or abdominal.

To Sue and the rest of the responders to my post: Latest update is, I did OPEN MRI, THE PELVIC TRANSVAGINAL, CT ABDOMINAL AND PELVIC, PET/CT SCAN. The PET SCAN showed minimal activity down in pelvic, it did NOT take the glucose, which is good, I spoke to the head of the dept, he knows about the machines and he said, he cant give diagnosis and nothing is guaranteed, but 85% accurate and sure, the uptake in the pelvic was very low and did NOT light up. ( good thing ) All other tests, still show the MASS but nobody seems to know what it is. My primary sent the results to a GYNO ONCOLOGIST and he didnt have the colonoscopy report or MRI yet, he thought it wasnt a pelvic problem, but a rectum one, but when he saw the colonoscopy, he changed his thoughts. I have an appointment to see him on July 19, I begged for a sooner appt, he is booked, they squeezing me in. Meantime, I am seeing a reg,
gyno, this coming Tuesday, to see if by some miracle, he can at least culture, my vaginal and other parts, and if he could by some miracle, get a PAP. ( doubt it ). but worth a try.

I am still in pain when going to bathroom from behind, and hip, groin, sciatic pain, very bad, I dont know if its the mass doing it, or vice versa sciatic hips ect causing it. I am scared, that NO GYNO, OR GYNO ONCOLOGIST WILL GET UP THERE, ( SOME TRIED IN 2008 ) I am afraid, now after hearing you SUE couldnt do the ROBOTIC hysterectomy due to the scar tissue, then, that might not be an option now for me also. They wont do the reg vaginal, hysterectomy or biopsy, how the heck, are they going to get in there to even see what this is?????