4 years bleeding before diagnosis

ally bongo
ally bongo Member Posts: 14
in Anal Cancer #1
4 years of bleeding before diagnosis what the chance of survival
hi i just been diagnosed. feel like i been hit with a brick anybody out there had long term bleeding before they got the cancer treated.
stupidly thought it was piles

Comments

  • suzynanny
    suzynanny Member Posts: 38 Member
    #2
    Have they staged it yet?
    Have they staged it yet? Remember its a curable cancer. I had pain and bleeding for over a year before I was diagnosed. I am a stage 11.
  • ally bongo
    ally bongo Member Posts: 14
    #3
    suzynanny said:

    Have they staged it yet?
    Have they staged it yet? Remember its a curable cancer. I had pain and bleeding for over a year before I was diagnosed. I am a stage 11.

    hi sue the pet scan results
    hi sue the pet scan results should be given to me on tuesday so they will tell me then. is that stage eleven or stage 2 its all new to me whats the difference between the stages.
  • z
    z Member Posts: 1,414 Member
    #4
    ally bongo said:

    hi sue the pet scan results
    hi sue the pet scan results should be given to me on tuesday so they will tell me then. is that stage eleven or stage 2 its all new to me whats the difference between the stages.

    ally bongo
    Hi and welcome, sorry you have to be here. I too thought I had piles, and waited about 6 months before going to the gyno, thought I would kill 2 birds with 1 stone. Well, the gyno PA said this is not a hemroid and reffered me to a gastrologist who said this could be a hemroid, who reffered me to a general surgeon, who said I'm 95% sure this is anal cancer. Well after the biopsy it was confirmed.

    I had muscle spasms and blood and then pain, and then a sick feeling, all could have been symptoms of hemroids. Anal cancer is rare and I'm fortunate that the PA refered me. Once you find out what stage you are, then you'll get a treatment plan. The 1st thing my general surgeon said was this is a curable cancer. I wish you well, and keep us posted. Lori
  • ally bongo
    ally bongo Member Posts: 14
    #5
    z said:

    ally bongo
    Hi and welcome, sorry you have to be here. I too thought I had piles, and waited about 6 months before going to the gyno, thought I would kill 2 birds with 1 stone. Well, the gyno PA said this is not a hemroid and reffered me to a gastrologist who said this could be a hemroid, who reffered me to a general surgeon, who said I'm 95% sure this is anal cancer. Well after the biopsy it was confirmed.

    I had muscle spasms and blood and then pain, and then a sick feeling, all could have been symptoms of hemroids. Anal cancer is rare and I'm fortunate that the PA refered me. Once you find out what stage you are, then you'll get a treatment plan. The 1st thing my general surgeon said was this is a curable cancer. I wish you well, and keep us posted. Lori

    thanks lori ill keep you all
    thanks lori ill keep you all posted
  • sephie
    sephie Member Posts: 650 Member
    #6
    ally bongo said:

    thanks lori ill keep you all
    thanks lori ill keep you all posted

    bled for 2 years
    hi, i thought it was hemmies. bled for over one year then went to procto who examined for 10 months and said it was NOT anal cancer. did colonoscopy and still said not anal cancer. but could not get relief so finally went to colorectal surgeon who did biopsy and yes it was anal cancer. i was stage 2. so it must be slow growing. good luck hugs sephie
  • suzynanny
    suzynanny Member Posts: 38 Member
    #7
    ally bongo said:

    hi sue the pet scan results
    hi sue the pet scan results should be given to me on tuesday so they will tell me then. is that stage eleven or stage 2 its all new to me whats the difference between the stages.

    ally
    I meant stage 2 sorry. I also has colonoscopy and flex sig. and both came back fine. Not until they did exam under anasthecia did the find it. I can feel mine from my vagina even though it hasnt went through praise God. Please let us know .
  • sandysp
    sandysp Member Posts: 868 Member
    #8
    Long term bleeding
    I started bleeding from internal hemorrhoids when I was nineteen. After I had my daughter at 20 the hemorrhoids became external. So until I bled big time and passed a clot, there was nothing unusual about my 61 year old body passing blood. My gastrointestinal doctor even said so eight years ago (I was on a ten year call back). But when I passed the black clot and called him and he did the exam, he said it was the first tumor he had ever seen like mine in 30 years of practice. So don't blame yourself. Even my doctor felt bad. The Radiologist said I have the tumor and I have bad hemorrhoids. I haven't had a pet scan yet. I don't know why it has took them so long to order mine since I was diagnosed on May 5th but I guess in New York you have to get used to waiting in lines:-) Mine is Wednesday. Keep us posted. I am T2N1 from the results of the other tests done so far, whatever that means.
  • ally bongo
    ally bongo Member Posts: 14
    #9
    sandysp said:

    Long term bleeding
    I started bleeding from internal hemorrhoids when I was nineteen. After I had my daughter at 20 the hemorrhoids became external. So until I bled big time and passed a clot, there was nothing unusual about my 61 year old body passing blood. My gastrointestinal doctor even said so eight years ago (I was on a ten year call back). But when I passed the black clot and called him and he did the exam, he said it was the first tumor he had ever seen like mine in 30 years of practice. So don't blame yourself. Even my doctor felt bad. The Radiologist said I have the tumor and I have bad hemorrhoids. I haven't had a pet scan yet. I don't know why it has took them so long to order mine since I was diagnosed on May 5th but I guess in New York you have to get used to waiting in lines:-) Mine is Wednesday. Keep us posted. I am T2N1 from the results of the other tests done so far, whatever that means.

    time
    good luck sandy its horrible knowing it has been in there for so long before its treated and waiting for the pet results has been hard. ive know idea about t2n1. im in england in cornwall they probably have a different code for it over here. it seems the treatment and meds are the same as the states though. my pet result on tuesday, im dreading it more so sitting my kids down and telling them.
  • ally bongo
    ally bongo Member Posts: 14
    #10
    sephie said:

    bled for 2 years
    hi, i thought it was hemmies. bled for over one year then went to procto who examined for 10 months and said it was NOT anal cancer. did colonoscopy and still said not anal cancer. but could not get relief so finally went to colorectal surgeon who did biopsy and yes it was anal cancer. i was stage 2. so it must be slow growing. good luck hugs sephie

    time
    thanks sephie, are you still being treated? where are you with it all now?
  • ally bongo
    ally bongo Member Posts: 14
    #11
    suzynanny said:

    ally
    I meant stage 2 sorry. I also has colonoscopy and flex sig. and both came back fine. Not until they did exam under anasthecia did the find it. I can feel mine from my vagina even though it hasnt went through praise God. Please let us know .

    time
    hi suzy how long have you been treated for yours? the onc told me i needed hiv test and asked me about sexual partners. i didnt even know about the conection to genital warts and never had any symptoms. i thought that they must have had me mixed up with sombody else.
  • suzynanny
    suzynanny Member Posts: 38 Member
    #12
    ally bongo said:

    time
    hi suzy how long have you been treated for yours? the onc told me i needed hiv test and asked me about sexual partners. i didnt even know about the conection to genital warts and never had any symptoms. i thought that they must have had me mixed up with sombody else.

    ally
    I just started treatment. I ma hiv negative. I didnt even know anything about this type of cancer. All I do know is I was hurting and bleeding. Colonoscopy and flex sig biospies came back fine but the proctoligist said because they dont do them deep enough. Hpv I know know can cause this but I dont think I have ever been tested for that.
  • ally bongo
    ally bongo Member Posts: 14
    #13
    suzynanny said:

    ally
    I just started treatment. I ma hiv negative. I didnt even know anything about this type of cancer. All I do know is I was hurting and bleeding. Colonoscopy and flex sig biospies came back fine but the proctoligist said because they dont do them deep enough. Hpv I know know can cause this but I dont think I have ever been tested for that.

    hpv
    you would think it would be comonly tested now that i am reading about it it seems that the docs attitude of it being mostly related to gay men is a bit of an urban myth. many many women are at risk from it as it is as likely to turn up in the cervix. and it has nothing to do with promiscuity just bad luck as most cariers dont know they have it. question is can you pass it to your kids when you give birth. i have had the same partner for 21 years. so many questions i need to be answered. im hoping its not going to put my kids at risk in the future. i had cancer of the cervix ten years ago and was lucky that they just cut off an area of bad cells. i dont even know if it was the same thing. do you have children?
  • sephie
    sephie Member Posts: 650 Member
    #14
    ally bongo said:

    time
    thanks sephie, are you still being treated? where are you with it all now?

    hi
    no i finished tx in july 2009. i still bleed and i still hurt on left anal side with every movement. everyone is different. they ck it out and say it is ok. nothing needed to be biopsied at this time. scar tissue inside where large biopsy was taken and stitiched up. scar tissue inside due to radiaiton but they ck it out every 3-6months. and cat scan one time per year. sephie
  • sephie
    sephie Member Posts: 650 Member
    #15
    ally bongo said:

    time
    good luck sandy its horrible knowing it has been in there for so long before its treated and waiting for the pet results has been hard. ive know idea about t2n1. im in england in cornwall they probably have a different code for it over here. it seems the treatment and meds are the same as the states though. my pet result on tuesday, im dreading it more so sitting my kids down and telling them.

    stages
    surely after all the publicity of farrah fawcett, things will get more universal. t2 means stage 2, then they see if it has gone anywhere else in the body and then they see the # of lymph nodes that it has attacked. good luck to you. sephie
  • suzynanny
    suzynanny Member Posts: 38 Member
    #16
    ally bongo said:

    hpv
    you would think it would be comonly tested now that i am reading about it it seems that the docs attitude of it being mostly related to gay men is a bit of an urban myth. many many women are at risk from it as it is as likely to turn up in the cervix. and it has nothing to do with promiscuity just bad luck as most cariers dont know they have it. question is can you pass it to your kids when you give birth. i have had the same partner for 21 years. so many questions i need to be answered. im hoping its not going to put my kids at risk in the future. i had cancer of the cervix ten years ago and was lucky that they just cut off an area of bad cells. i dont even know if it was the same thing. do you have children?

    ally
    Yes I have two children all grown now.

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