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Hi suzynanny--
I'm sorry your circumstances have brought you here. I'm sure you are very anxious about starting treatment, but there are so many of us who have been through this and come through it okay--so will you! You've asked for advice, so I have copied information that I posted awhile back to Ron, whose wife was recently diagnosed. You can read through what I said to him. There are also a couple of websites you should visit for some very complete information: analcancerfoundation.org and the website for the National Comprehensive Cancer Network NCCN.org. You will have to register on the second site, but it's simple, and will allow you to access the very latest guidelines for treatment of anal cancer. I hope this helps!

"Hi Ron--I'm so sorry that your wife's diagnosis has brought you to this support forum. But bless you for being her advocate and trying to learn more about how to help her get through her treatment. I was diagnosed with anal cancer in June 2008 and went through 2 rounds of chemo (mitomycin & 5FU) and 6 weeks of radiation. You mention rectal cancer as your wife's diagnosis, so I'm a little unsure about what chemo drugs she might be receiving. However, that aside, she will most likely experience extreme fatigue, nausea, possible loss of appetite with weight loss, mouth sores, hair loss, skin irritation/burns, diarrhea and painful urination. I will try to address each of these, based on my own experience.

1) Fatigue--When her body tells her it needs rest or a nap, she needs to do just that.
2) Nausea--Gingerale, ginger tea, hard candy, crackers, jello--all good things to have on hand.
3) Loss of Appetite--Now is not the time to try to adhere to a healthy diet, as fruits and veggies may cause her serious digestive problems. Whatever she feels like eating and agrees with her, that's what she should eat. I would try to include some form of protein in every meal or snack.
4) Mouth Sores--These can really get bad, so I would recommend that she routinely rinse with a solution of water and salt or baking soda several times a day. If she gets mouth sores or thrush, there are specially prepared prescription mouthwashes that can help. Regular toothpaste should be substituted with Biotene or some other mild paste.
5) Hair Loss--There's not much one can do to prevent this. The chemo drugs that I received do not cause hair loss in everyone, but I lost about half of my hair in patches all over my head. If she experiences hair loss, check with your ins. co.--they may cover the cost of a wig, which for many, boosts their morale.
6) Skin Irritation/Burns--Hopefully, she has already been given some soothing creams to use to keep her skin from breaking down. However, the effects of the radiation are cumulative, so skin will deteriorate over the course of treatment if not cared for. She can use pure aloe, Vitamin E liquid, or get a prescription for something else, such as Silver Sulfadiazine cream, which is what I used. She just needs to make sure that there are NO traces of any creams, lotions or ointments on her skin prior to radiation. I would also recommend getting some men's boxer shorts for her to wear to reduce contact with her skin. She may even want to go bottomless around home as much as possible.
7) Diarrhea--This was one of my most serious side effects. The first to remember is that everytime she has a BM or urinates, her body loses fluids. A good rule is to drink a glass of water after each trip to the bathroom, insuring that she won't become dehydrated. Dehydration can land people in the hospital and is very serious. To curb the diarrhea, she's probably already been given some type of anti-diarrheal medication and perhaps given some suggestions of foods which can help slow things down, such as the BRAT diet (bananas, rice, applesauce and toast). I used Immodium (over the counter), which helped, but some people must get prescription meds to help ease diarrhea.
8) Painful Urination--Get her a spray bottle to keep filled with water by the toilet. When she urinates, she can spray her genital area with water and keep the urine from burning her skin so badly. Also, regular toilet paper should not be used, as it will be much too abrasive. Get some type of alcohol-free disposable wipes for her. Again, she needs to take in plenty of fluids, as this will help dilute her urine.

There is an e-book written by a woman named Theresa Mayhew that you can download at the following address: theresamayhew.com. It was written by a woman who was diagnosed and treated for anal cancer and contains lots of helpful suggestions from other anal cancer survivors, including myself. I would highly recommend it. There is also a book titled "The Chemotherapy Survival Guide" which might offer lots of good advice on dealing with chemo side effects."

suzynanny said:

sandy
Glad everything turned out benign. I have done my first chemo and two rounds of radiation. Chemo making me sick. I have the pump right now for four days. Hopefully you get started soon. I dont know alot about this type of stuff but learning as I go. Good luck and I will also be watching your progress.

we are here for you
Sending lots of love! Please check in as specific things come up so we can support you!