This is my first post, been lurking for about 2 weeks

CAjim2011
CAjim2011 Member Posts: 15
in Head and Neck Cancer #1
Hi everyone. I have stage 4 left tonsil CA diagnosed 4-1-11.You can read my story if interested as I just signed up to board and posted it. I am T2 n2a M0. Just started radiation today and currently hospitalized for PEG site infection. I wish all the best and will chime in form time to time. I have HPV related tonsil cancer. I am 49. Can't beleive I'm here. Seems like a ba dream at times.
Jim

Comments

  • buzz99
    buzz99 Member Posts: 404
    #2
    First post
    Welcome to the forum. I hope we can all be of help to you. Yes it does seem like a bad dream as it still continues to be for us. Karen
  • CAjim2011
    CAjim2011 Member Posts: 15
    #3
    buzz99 said:

    First post
    Welcome to the forum. I hope we can all be of help to you. Yes it does seem like a bad dream as it still continues to be for us. Karen

    How do you access peoples
    How do you access peoples stories? I'm just not familiar with the mechanics of this board. Thank-you.
    Jim
  • Scambuster
    Scambuster Member Posts: 973
    #4
    Get through treatment..
    Hi Jim,

    Sorry you ended up here but a good place for support and sharing experience.

    Treatment can be very rough, depending on many things. I hope yours is smooth. Best thing now is to go day by day, focus on getting through treatments. Question your doctors (and nurses) and be involved in all decisions if you are able.

    Once you are done, you will be able to work on your health, rebuild your body and immune system and keep the cancer away.

    My only suggestion which I did - was to use non dairy nutrition in the PEG feeds (all plant based). I used organic rice milk and a supplement powder with gave me 400 cals per feed. I don't believe the stuff the clinic recommend (Boost, Ensure etc) are that good for us due to the quantity of milk protein and other sugars they contain.

    PM if you want further information.

    Hang in there Jim, you can get through this and get your life back.

    Scam
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #5
    CAjim2011 said:

    How do you access peoples
    How do you access peoples stories? I'm just not familiar with the mechanics of this board. Thank-you.
    Jim

    Hi Jim
    Just wanted to welcome you. To access someone's story and CSN space, you would just click on their name in the blue box by their post. Or if you look at the HNC board itself, you will see their names in blue where they last posted or where they started a thread. You can click on their name there too, that will take you to their profile.

    If you look in the blue box by my avatar you will also see that by my screen name, there is also a little person with a + sign. You would click this if you wish to add them to your friends list. It is easier to send someone a private message when you friend them first because when you write the new message you can bring up their name and just click on it, and don't have to remember the screen name. If you friend someone, they are notified the next time they sign in.

    In the upper left hand corner in the burgundy section you can find the CSN email to click on and private message someone. Or can click on your own CSN space to access your stuff.

    Anything else, just ask, and someone will help.

    Sweets.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #6
    Similar
    Welcome to the forum...ya, hard to believe when they first tell you..especially if your a non-tobacco user like me....HPV+ also.

    I'm two years post treatment, rads,chemo, etc.... right tonsils for me.

    Here's a link to my BIO, you can get an idea of my specifics;

    Skiffin16 ~ BIO

    Best,
    John
  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    #7
    Welcome
    Jim, Welcome to the board and sorry that you're here. I'm pretty sure most of us had that 'bad dream' feeling. Yeah it sucks. My advice is to try and let those feelings go. Maintaining a positive attitude goes a long way in fighting this scourge. Remember, you are not alone, we are all here with you. Lots of great people on this board and lots of good advice also. The journey may be rough, but not impossible. Stay strong. Cheers

    Jimbo
  • Pam M
    Pam M Member Posts: 2,196
    #8
    Welcome
    Hi Jim,

    Sorry you need this site - glad you found it. People here have been a godsend for me. I also had the "bad dream" haze many times. I was also stage four, T2N2M0 (base of tongue, not tonsil, although they did take a tonsil, thinking it may have been affected - it wasn't). Also had PEG issues up front (no hospitalization - just ER visit). Glad to report (as can many others) that "stage four" is not the automatic death sentence it used to be. Hope you get that infection cleared up quickly.
  • Hondo
    Hondo Member Posts: 6,636 Member
    #9
    Hi Jim

    Welcome to the family, sorry to hear about your C but glad you found the right place to be.

    Take care
    Hondo
  • Glenna M
    Glenna M Member Posts: 1,576
    #10
    Jim
    Like everyone else I'm sorry that you found the need to find this site but glad you did as there are many here who can help you with any questions and concerns you may have.

    Hope they get the infection under control soon and you will be able to go home.

    Stay strong,
    Glenna
  • zepfreak
    zepfreak Member Posts: 24
    #11
    A conundrum
    It's unfortunate you're here, but your very fortunate to be here. This is a great site for information and support from people that have been where you are and understand the mixture of feelings and emotions that we all feel. I hope your recovery is very successful and problem-free. Stay Positive

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