bone-seeking radioisotope - ?

taraHK
taraHK Member Posts: 1,952 Member
in Colorectal Cancer #1
Hi all,

This may only be of interest to those with bone mets. I'm on chemo now but my oncologist mentioned as a possibility in the future bone seeking radioisotopes.

Administered intravenously -- and apparently the drug (or radioisotope thingy) then selectively targets the bone mets -- ideally leaving healthy stuff alone. I understand this has been used a fair amount for prostate cancer (that is, for bone mets secondary to prostate cancer) but less so/rarely for colorectal. I'd be very interested to learn if others have experience/knowledge of this - -welcome any views.

Apparently it can have a negative impact on bone marrow - and hammer white and blood cell counts -- but once you stop, recovery is pretty swift (say, within 3 months) (kinda like hitting your head against a wall ha ha)

Cheers,
Tara

Comments

  • luvmum
    luvmum Member Posts: 457 Member
    #2
    Hi Tara
    How are you coping with the new chemo regimen?

    I'm just wondering if you could tell me which oncologist are you seeing at the moment? can you PM me?

    My mum's oncologist will say something negative every now and then, that really hurts both of us a lot. =(

    Thanks!
    Dora
  • taraHK
    taraHK Member Posts: 1,952 Member
    #3
    luvmum said:

    Hi Tara
    How are you coping with the new chemo regimen?

    I'm just wondering if you could tell me which oncologist are you seeing at the moment? can you PM me?

    My mum's oncologist will say something negative every now and then, that really hurts both of us a lot. =(

    Thanks!
    Dora

    oncologist
    Hi Dora,

    Thanks for asking about my new chemo regime (FOLFOXFIRI). I posted a separate message about that -- it is going OK -- not too bad -- thanks!

    Happy to pass on the name of my oncologist -- but I live in Hong Kong -- so probably not of much use to you! I have consulted with Dr. Lenz in Los Angeles (second opinion) which was useful. You are right -- the attitude of one's oncologist is very important -- sometimes I think they don't realize that we weigh every word they say so heavily, and roll in around in our brains for ages afterwards....Would it be possible for you to 'have a word' with hers? Maybe even slip in a comment like 'We are adapting a positive attitude and we really appreciate it when those around us do too' -- but I know it's easier said than done -- and may have no effect....Sigh.

    Sending best wishes to you both/all

    Tara
  • luvmum
    luvmum Member Posts: 457 Member
    #4
    taraHK said:

    oncologist
    Hi Dora,

    Thanks for asking about my new chemo regime (FOLFOXFIRI). I posted a separate message about that -- it is going OK -- not too bad -- thanks!

    Happy to pass on the name of my oncologist -- but I live in Hong Kong -- so probably not of much use to you! I have consulted with Dr. Lenz in Los Angeles (second opinion) which was useful. You are right -- the attitude of one's oncologist is very important -- sometimes I think they don't realize that we weigh every word they say so heavily, and roll in around in our brains for ages afterwards....Would it be possible for you to 'have a word' with hers? Maybe even slip in a comment like 'We are adapting a positive attitude and we really appreciate it when those around us do too' -- but I know it's easier said than done -- and may have no effect....Sigh.

    Sending best wishes to you both/all

    Tara

    Hi tara
    I am glad to know you are coping the new chemo well!

    We also live in Hong Kong... I would really love to seek 2nd opinion or change to a more positive oncologist. My Mum's onc knows I am the aggressive type!

    Best wishes to you,
    Dora
  • taraHK
    taraHK Member Posts: 1,952 Member
    #5
    luvmum said:

    Hi tara
    I am glad to know you are coping the new chemo well!

    We also live in Hong Kong... I would really love to seek 2nd opinion or change to a more positive oncologist. My Mum's onc knows I am the aggressive type!

    Best wishes to you,
    Dora

    Hong Kong
    Dora,

    Great! Please 'personal message' me (I can receive PM but don't know how to send - duh) -- I am very happy to pass on the name of my oncologist and his contact details. He is Wonderful. I'd also be happy to chat! if you like....I can pass on my phone number via PM

    Tara

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