Grace Micgraces wife

micgrace
micgrace Member Posts: 131
in Brain Cancer #1
Hi The last thread was getting a bit cluttered. My wife Grace is scheduled for radiation in early July at full strength. I am trying to organise chemo at the same time as it greatly sensitises the cancer cells for destruction but they seem less keen on that approach although willing to concede it is a rather good idea.

Her deficits in thinking continue, but she appears to be making new connections and can communicate most of the time. Her movement is returning. I am optimistic she can be one of the very few to survive the dreaded GBM with the lowest survival rate of all primary brain cancers.

As to in-laws I think they are returning home soon. My mum will be coming down soon. She is nearly 90 but drives every day and is completely self reliant. However she forgot to eat one day and blacked out and injured herself. She has no healed. My wife gets on far better with her than her own mother by far. Her own mother has serious psychological and mental issues dating back 3 decades and is best kept away.

Comments

  • 4theloveofmysis
    4theloveofmysis Member Posts: 248
    #2
    your wife
    I glad she is doing well.Is she back home now?
  • micgrace
    micgrace Member Posts: 131
    #3
    4theloveofmysis said:

    your wife
    I glad she is doing well.Is she back home now?

    Mum in law
    She has left for her home town tonight. Myself and my children are very much relieved. My wife has a very long road ahead of her and doesn't need that sort of negativity around. Apparently the mum in law has got the idea she has a terminal illness and needs to come down to Brisbane all the time. She always manages to make herself the centre of attention all the time.
  • micgrace
    micgrace Member Posts: 131
    #4
    4theloveofmysis said:

    your wife
    I glad she is doing well.Is she back home now?

    update
    Hi all. I wound up in hospital myself as I was eventually unable to cope and became seriously overstressed. I do suffer high blood pressure so severe stress can cause blackouts etc. Anyway I am out but not so good myself. My wife isn't doing so good with a very poor prognosis with chemo now considered to be of little point due to very low performance scores. This leaves pallative radiation only for now.

    The performance scores are highly unlikely to improve so we need to prepare for the inevitable demise which I cannot really accept that a young person driving a car 4 weeks ago can now have a terminal condition seemingly at random.
  • Beckymarie
    Beckymarie Member Posts: 357
    #5
    micgrace said:

    update
    Hi all. I wound up in hospital myself as I was eventually unable to cope and became seriously overstressed. I do suffer high blood pressure so severe stress can cause blackouts etc. Anyway I am out but not so good myself. My wife isn't doing so good with a very poor prognosis with chemo now considered to be of little point due to very low performance scores. This leaves pallative radiation only for now.

    The performance scores are highly unlikely to improve so we need to prepare for the inevitable demise which I cannot really accept that a young person driving a car 4 weeks ago can now have a terminal condition seemingly at random.

    The inevitable
    I cannot tell you how sorry I am for what you are going through. Lost my husband a year ago to GBM. He was 56 and a wonderful husband and father. Looking back over the last 2 yrs., I don't know how my children and I made it through but we did and now we are trying to heal. When treatments stopped helping, we brought in hospice. They are wonderful. It's like having someone else take over the helm when the ship is heading into a storm. You and your wife are in my thoughts.
  • 4theloveofmysis
    4theloveofmysis Member Posts: 248
    #6
    micgrace said:

    update
    Hi all. I wound up in hospital myself as I was eventually unable to cope and became seriously overstressed. I do suffer high blood pressure so severe stress can cause blackouts etc. Anyway I am out but not so good myself. My wife isn't doing so good with a very poor prognosis with chemo now considered to be of little point due to very low performance scores. This leaves pallative radiation only for now.

    The performance scores are highly unlikely to improve so we need to prepare for the inevitable demise which I cannot really accept that a young person driving a car 4 weeks ago can now have a terminal condition seemingly at random.

    micgrace
    Im very sorry. This thing is so unfair...I do truely know how you feel. You are not alone. It seem with each ray of sunshine there is a dark cloud quickly coming our way.Im waiting for that rainbow....I dont want to give up... Praying a lot... using way to many tissues...
  • micgrace
    micgrace Member Posts: 131
    #7
    4theloveofmysis said:

    micgrace
    Im very sorry. This thing is so unfair...I do truely know how you feel. You are not alone. It seem with each ray of sunshine there is a dark cloud quickly coming our way.Im waiting for that rainbow....I dont want to give up... Praying a lot... using way to many tissues...

    crying
    I cry in the shower, when alone or at any random time when something associated with Grace comes up. I still can't get my head around why does someone cop this fatal disease at random with no known risk factors.?? And no known cure?
  • Beckymarie
    Beckymarie Member Posts: 357
    #8
    micgrace said:

    crying
    I cry in the shower, when alone or at any random time when something associated with Grace comes up. I still can't get my head around why does someone cop this fatal disease at random with no known risk factors.?? And no known cure?

    Crying in the car
    My car while driving home from work, was where I did most of my crying. Probably not the smartest place, but that's where it was. Even a year later, I still ask why. I have always felt his cell phone played a part in this, although many would disagree with me. He was healthy, smart and we had a wonderful life and it all came to abrupt end with a CAT scan in March 2009. I guess he just drew the short straw. Sorry for what you are going through. It plain sucks.
  • Beckymarie
    Beckymarie Member Posts: 357
    #9
    micgrace said:

    crying
    I cry in the shower, when alone or at any random time when something associated with Grace comes up. I still can't get my head around why does someone cop this fatal disease at random with no known risk factors.?? And no known cure?

    Crying in the car
    My car while driving home from work, was where I did most of my crying. Probably not the smartest place, but that's where it was. Even a year later, I still ask why. I have always felt his cell phone played a part in this, although many would disagree with me. He was healthy, smart and we had a wonderful life and it all came to abrupt end with a CAT scan in March 2009. I guess he just drew the short straw. Sorry for what you are going through. It plain sucks.
  • micgrace
    micgrace Member Posts: 131
    #10
    micgrace said:

    crying
    I cry in the shower, when alone or at any random time when something associated with Grace comes up. I still can't get my head around why does someone cop this fatal disease at random with no known risk factors.?? And no known cure?

    still crying
    I still can't stop crying about the situation. It is less now but still there. it comes in waves and gets pretty intense to the point of total despair.

    Grace today was exhibiting classic cancer pain to the extreme and was thrashing around non stop while groaning. They were reluctant to administer painkillers due to her already low performance scores. This is so hard to take to see the one I love in such pain and unable to do a damn thing about it.

    Myself, I had a marathon, heavy duty grief counselling session at a price i could afford FREE thanks to the uni I do research at. It continues for as long as required. I am also very depressed and they view me as potentially suicidal due to the rapid deterioation of my young wife and highly prone to a potentially disasterous rebound relationship if a woman takes advantage of my total vunerability at this time.

    Its so damn unfair. Can't they hurry up and do something? Like start radiation?
  • micgrace
    micgrace Member Posts: 131
    #11
    micgrace said:

    crying
    I cry in the shower, when alone or at any random time when something associated with Grace comes up. I still can't get my head around why does someone cop this fatal disease at random with no known risk factors.?? And no known cure?

    still crying
    I still can't stop crying about the situation. It is less now but still there. it comes in waves and gets pretty intense to the point of total despair.

    Grace today was exhibiting classic cancer pain to the extreme and was thrashing around non stop while groaning. They were reluctant to administer painkillers due to her already low performance scores. This is so hard to take to see the one I love in such pain and unable to do a damn thing about it.

    Myself, I had a marathon, heavy duty grief counselling session at a price i could afford FREE thanks to the uni I do research at. It continues for as long as required. I am also very depressed and they view me as potentially suicidal due to the rapid deterioation of my young wife and highly prone to a potentially disasterous rebound relationship if a woman takes advantage of my total vunerability at this time.

    Its so damn unfair. Can't they hurry up and do something? Like start radiation?

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