CyberKnife

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  • Julie2011
    Julie2011 Member Posts: 58
    #22
    Glenna M said:

    Julie
    Believe me I'm not crazy about having any type of surgery but I know I would feel better if they could have removed the tumor and used the chemo and rads later if it ever returned. Kind of a back up plan :)

    They have found something new in my lung but haven't determined yet what it is and I wonder if I will be able to have any type of radiation now since I had the SR in '09.

    I'm sure there are many who would prefer not to have surgery but I personally would feel better knowing they had removed that "beast" from my lung and tell me I'm NED instead of "in remission". My way of thinking may seem weird...but that's me - LOL.

    Stay strong,
    Glenna

    Surgery
    I guess each situation is different. I have emphysema and would rather have cyberknife so that I do not lose too much additional lung function and then get close follow up and take it from there. But who knows I may change my mind after I see the surgeon, depending on what the surgeon advises me to do.

    I can't remember what NED means?

    It is a beautiful Saturday! Hugs, Julie
  • AlanRinHBG
    AlanRinHBG Member Posts: 121
    #23
    Julie2011 said:

    Surgery
    I guess each situation is different. I have emphysema and would rather have cyberknife so that I do not lose too much additional lung function and then get close follow up and take it from there. But who knows I may change my mind after I see the surgeon, depending on what the surgeon advises me to do.

    I can't remember what NED means?

    It is a beautiful Saturday! Hugs, Julie

    no evedence of disease (ned)
    Julie + Glenna, At CTCA they do new Radiation while in surgery. They radiate while the operation is happening. I forget what it's called but you can ask about it at there site. Sounds like killing 2 birds with one stone. I don't know anything about SR compared to CK. I doubt if it's the same. Gamma knife and Cyberknife are not quite the same either.
  • Julie2011
    Julie2011 Member Posts: 58
    #24
    AlanRinHBG said:

    no evedence of disease (ned)
    Julie + Glenna, At CTCA they do new Radiation while in surgery. They radiate while the operation is happening. I forget what it's called but you can ask about it at there site. Sounds like killing 2 birds with one stone. I don't know anything about SR compared to CK. I doubt if it's the same. Gamma knife and Cyberknife are not quite the same either.

    NED - thanks
    There of a wealth of different procedures that I am ignorant about. Will follow-up with getting more info as soon as I visit the Thorasic Surgeon in about 2 1/2 weeks. Alan - thanks for the information.

    Julie :)
  • sassy62
    sassy62 Member Posts: 8
    #25
    CyberKnife Day 1
    First day to treat a newly discovered tumor (menenginoma) near brain stem. Not bad. Thanks to Sue and Chris at Hematology/Oncology in Syracuse). Went for 33 minutes. Listened to Vivaldy. Felt a little wierd during (was given anti-inflamatory before - Decadrone ?) Also tired, hungry and a little spaced out afterwards. Jaw was stiff from wearing the mesh mask for so long.

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