Hello to all.............

nancyann3
nancyann3 Member Posts: 173 Member
in Esophageal Cancer #1
Its been awhile since I posted. I have been spending time since surgery trying to get catch up on life and I think I just needed a break. I guess that sounds selfish, but really have no other excuse for staying away. I always think of all of you often.

Steve is hanging in there. Been a quiet couple month since the surgery aftermath quieted down. Eating about anything he wants, just not enough yet. But, consider him doing pretty good considering.

Unfortunately the surgery wont be the cure we were hoping for. Three month ct scan showed something suspisious. That led to a PET. PET shows mets to bone and other areas. The biggest concern is the mets to spine. We will do radiation first to help with the pain in back. Then decide if more chemo should be done. Doctor is willing so we are glad for that. Steve hasnt really recovered all the way from surgery, so the idea of chemo is a big decision. Three new chemo drugs. I dont know the names off the top of my head right now, but if we decide to go that route, I will probably be asking questions.

We know what this means and we know there is no cure now. Were 18 months into this fight and we still have fight left in us. One day at a time.

Thanks for listening
Nancy

Comments

  • Unknown
    Unknown
    #2
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  • jojoshort
    jojoshort Member Posts: 230 Member
    #3
    unknown said:

    This comment has been removed by the Moderator

    Well said
    So sorry to hear of the mets, Nancy. I am a Stage IVb wife so I know a bit of what you must be feeling.
    Well said William. An honest oncologist. And one day at a time.
    You are in my thoughts Nancy--Peace to you and and Steve,
    Jojo
  • spensir
    spensir Member Posts: 44
    #4
    unknown said:

    This comment has been removed by the Moderator

    No regrets
    It has only been three weeks since John made his journey into heaven. I do not regret the fact that John stopped his chemo treatment to buy himself and the family some special time. We had time that we were able to prepare for the final goodbyes. Our priority was teaching our family and friends that dying is not to be feared, sad yes and difficult but beautiful. John died proud and with dignity and knowing he was surrounded by love and had many waiting for him as he entered the pearly gates. Enjoy eachother love one another. Shirley
  • sandy1943
    sandy1943 Member Posts: 824
    #5
    Nancy, Sorry about the
    Nancy, Sorry about the latest diagnois. This isn't what we want to hear after we've been through the surgery. I really don't know what I would do, if cancer comes back. It would be a very hard decision. Knowing personally what the treatment is like, I don't know if I would want it or just have quality time with my family. I missed so much enjoyment with the grandchildren, because they couldn't come around, because of my counts, and when that was better, I was to weak to enjoy the times together.

    i pray God will direct you in the right decisions. Everyone is different.

    We're here fo you praying and helping any way we can,
    Sandra
  • nancyann3
    nancyann3 Member Posts: 173 Member
    #6
    sandy1943 said:

    Nancy, Sorry about the
    Nancy, Sorry about the latest diagnois. This isn't what we want to hear after we've been through the surgery. I really don't know what I would do, if cancer comes back. It would be a very hard decision. Knowing personally what the treatment is like, I don't know if I would want it or just have quality time with my family. I missed so much enjoyment with the grandchildren, because they couldn't come around, because of my counts, and when that was better, I was to weak to enjoy the times together.

    i pray God will direct you in the right decisions. Everyone is different.

    We're here fo you praying and helping any way we can,
    Sandra

    Thank you
    Thank your for your kind words. We arent sure what route we will take yet. Going to have radiation for the tumor in the spine to help prevent a break or spinal cord compression. After that we havent decided.

    We are just taking one day at a time. Biggest focus is our kids. Going to be a long haul which ever way we go.

    Thanks again
    Nancy
  • K_ann1015
    K_ann1015 Member Posts: 500
    #7
    nancyann3 said:

    Thank you
    Thank your for your kind words. We arent sure what route we will take yet. Going to have radiation for the tumor in the spine to help prevent a break or spinal cord compression. After that we havent decided.

    We are just taking one day at a time. Biggest focus is our kids. Going to be a long haul which ever way we go.

    Thanks again
    Nancy

    just saw your post
    Nancy
    sorry I just saw your post. I too know that sick disappointment of a possible mets (see--I still say possible). My dad was found to have a small 1cm EC met "nodule" in his lung after about 2 1/2 years of being diagnosed with EC. Right now he is not well enough for treatment--still has a chest tube & on antibiotics---such a long story. Just wanted you to know that you & hubby are not alone. I don't have suggestions right now-I apologize---but I do believe that others here will have some.

    Prayers for you both
    Kim
  • linda1120
    linda1120 Member Posts: 389
    #8
    nancyann3 said:

    Thank you
    Thank your for your kind words. We arent sure what route we will take yet. Going to have radiation for the tumor in the spine to help prevent a break or spinal cord compression. After that we havent decided.

    We are just taking one day at a time. Biggest focus is our kids. Going to be a long haul which ever way we go.

    Thanks again
    Nancy

    Prayers are with you both
    Dear Nancy,

    I am so sorry you are going through this. EC takes over control of your lives. I do hope and pray that the radiation will help the spine. Take time to enjoy your children. Know there are people here who care very much.

    Linda
  • Donna70
    Donna70 Member Posts: 852 Member
    #9
    linda1120 said:

    Prayers are with you both
    Dear Nancy,

    I am so sorry you are going through this. EC takes over control of your lives. I do hope and pray that the radiation will help the spine. Take time to enjoy your children. Know there are people here who care very much.

    Linda

    my thoughts are with you
    Dear Nancy,
    I hope that the radiation does help with the back pain and I think you are making the right decision going one step at a time. May you have the strength to do what you can and hope Steve has many more good times with you and your family. take care,
    Donna70

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