Ports....kind of in a panic...sort of alone

Just one opinion
R34

If I were you, I would not do chemo without a port. If the chemo leaks out of the vein, it is really damaging to your tissues. You can use the port to have your blood drawn, too.

I would call the doctor's office first thing in the morning & see if it will be OK to postpone the chemo for a week. Then see about getting on the schedule for the infusion port ASAP.
The port can be used the next day after it is placed.

I can relate
R34,

This is a scary and unstable time. Your personal situation makes things worse, but there really is no going back to norm at this point, for anyone. Anyone with this diagnosis loses any semblance of normalcy. It is wonderful that you have a friend and relative who can help you now. I was displaced when I was treated because there was no gyn/onc near my home. I ended up spending 3 months living with my brother three states away during surgery and the first part of my treatment. To make matters worse, my husband was an emotional wreck and expected me to take care of him, instead of the other way around. I was always the responsible one too, the go-to person in an emergency. I had to learn to rely on others, and not take responsibility for everyone else.

You will be fine. All these extraneous things are disconcerting, but you will be fine. There will be so much for you to focus on during treatment, that you will hardly notice that things are not even close to normal. Focus on getting well. That is the answer to all of your concerns.

As far as a port is concerned, if you still have the options of getting one, which you should, it would be helpful if you would get it. I took someone's bad advice prior to my surgery and opted not to have a port put in. I paid many visits to the hospital after my surgery, and the nurses had a lot of trouble accessing my veins. Subsequently, I got a port put in and it was wonderful. Call your doctor and see if you can have a port put in this week. If not, don't fret. Have one put in after your treatment.

Everything will work out for you, possibly in ways you cannot see right now.

Radioactive34 said:

The port thing....it is
The port thing....it is surreal. I am walking, talking and feel for the most part fine. If not for the nagging pain in my side, I would have no clue there was something wrong. I am recovering from surgery, and thinking that I still feel fine...well except for the cancer thing. Even with the residual pain from the debulking, this is surreal.

I guess, once the chemo actually starts this becomes more real. As it becomes more real and I have to deal with the consequnces, I will be able to see the need for things like ports. Denial comes in many forms. I keep expecting to wake up prior to chemo.

Man, I can so relate on taking care of people. I am far away from immediate family and most of my closest friends. I have been editing myself like crazy. This cancer feels like it is taking my control.

I have been taking care of just about everyone up until, like, this past weekend. I have become a bit more weepy and needy. My husband is front and center. He is doing pretty good with it. I am not quite ready to share this extent of fear with my family and friends. At one point I am not going to have a choice. I am just going to have to be taken care of.

R34

I know this is tough but I
I know this is tough but I would advise a port. I had perfect veins before Chemo, but was not offered a port. (my joke is that the Doctors did not think I would be around long enough to use it.) I had 6 rounds and I am NED but my veins are now shot. They tried 4 times to hook me up for the last scan and finally had to use my hand. I know they can take them out if you end up NED but at least you won't have to be poked for veins over and over.

Good luck

Lori

Radioactive34 said:

The port thing....it is
The port thing....it is surreal. I am walking, talking and feel for the most part fine. If not for the nagging pain in my side, I would have no clue there was something wrong. I am recovering from surgery, and thinking that I still feel fine...well except for the cancer thing. Even with the residual pain from the debulking, this is surreal.

I guess, once the chemo actually starts this becomes more real. As it becomes more real and I have to deal with the consequnces, I will be able to see the need for things like ports. Denial comes in many forms. I keep expecting to wake up prior to chemo.

Man, I can so relate on taking care of people. I am far away from immediate family and most of my closest friends. I have been editing myself like crazy. This cancer feels like it is taking my control.

I have been taking care of just about everyone up until, like, this past weekend. I have become a bit more weepy and needy. My husband is front and center. He is doing pretty good with it. I am not quite ready to share this extent of fear with my family and friends. At one point I am not going to have a choice. I am just going to have to be taken care of.

R34

Dear R34
I can so relate to what you're going through. I have been dealing with this disease for 5 years and have gone through lots of chemo. I have a port/had it for all that time and it works just like it should. I also have to do a lot of this by myself because my husband works out of town most of the time. I want you to know that chemo is very doable. I think you said that you'll be given cisplatin. I'm taking that now along with gemzar. As chemos go, it's not too bad.

It's not a new story to hear that you are busy taking care of all those around you. I guess we're just born caretakers. It'll take awhile for to you to process all this. We'll be here to help you every step of the way. I sometimes think I'd have gone mad long ago without the wonderful and caring women on this site.
((((HUGS)))) Maria

Radioactive34 said:

update
I called the oncologist this morning. The nurse returned my call and asked me if I knew what a port was. I told her about my experience with my mother in law's. She said she would talk to the doctor. I should have one in before end of week. Come Monday I will more than likely have chemo via a port. I even asked about the numbing creme. That is getting called into the pharmacy in anticipation of the port.

Ladies, I love you. The anxiety and pain you saved me is a lot. Yesterday, I cried all afternoon at the idea of adding one more aspect of pain. I still hurt from the debulking surgery. The pain is constant in the abdomen. Heaping one more thing was just overwhelming. Thank God for modern chemistry. I remembered I had been prescribed some clonazepan and kicked myself for letting my panic get that bad. I took one of those and while my brain still raced....I was able to get a grip.

I did a happy dance when I found out I could get the port in. When I hung up the phone, I looked at my hubby and said, "I have never been so happy to have a procedure as I am right now!" I even did a happy dance.

Thank you, Thank you, Thank you!!!!!

R34

You won't regret it. One
You won't regret it. One stick, never more, and NO PAIN if you remember to use the cream an hour before.

One more tip....before the nurse accesses your port, throw your shoulders back and push your chest forward. It really helps. (I learned this at Sloan-Kettering, where they use the port for every single blood draw.)

Carlene

Radioactive34 said:

update
I called the oncologist this morning. The nurse returned my call and asked me if I knew what a port was. I told her about my experience with my mother in law's. She said she would talk to the doctor. I should have one in before end of week. Come Monday I will more than likely have chemo via a port. I even asked about the numbing creme. That is getting called into the pharmacy in anticipation of the port.

Ladies, I love you. The anxiety and pain you saved me is a lot. Yesterday, I cried all afternoon at the idea of adding one more aspect of pain. I still hurt from the debulking surgery. The pain is constant in the abdomen. Heaping one more thing was just overwhelming. Thank God for modern chemistry. I remembered I had been prescribed some clonazepan and kicked myself for letting my panic get that bad. I took one of those and while my brain still raced....I was able to get a grip.

I did a happy dance when I found out I could get the port in. When I hung up the phone, I looked at my hubby and said, "I have never been so happy to have a procedure as I am right now!" I even did a happy dance.

Thank you, Thank you, Thank you!!!!!

R34

Port
Hi R34
I finished my treatment for stage 11c in Dec last year. I had breast ca in 2000 and did not have a port and the treatments were horrible and my viens are shot from this..... So when i was dx this time around the onc said have a port and i went mad, like you i just didn't want any more poking, prodding pain etc etc. Anyway after much anxiety (i wish i had found this board then) I decided to have one and............
it was the best thing i ever did - my treatments were more or less pain free (i didn't even have numbing cream, didn't need it). I had the port placed on the first day of my treatment and had it removed 1 week after i had completed it.... would have had it removed same day as completion but the doc wasn't there!!!
Anyway have been left with a scar on right breast - not too bad.
Good luck to you and let us know how you get on.
Michelle x

Mwee said:

Yeah, you're getting a port!
that will make the chemo process so much more comfortable for you. I prefer having friends with me for chemo, they make me laugh and I don't feel I need to "caretake" them like I would family members. I can tell by your posts that you'll be one tough Teal Sister and just know that we're right here with you every step of the way.
(((HUGS))) Maria

Maria
that's so true about
Maria
that's so true about having your friends with you during chemo, i found that when i had family members with me i was always worried how they were feeling etc but with friends it was sooooo much more relaxed.
Michelle x

Radioactive34 said:

update
I called the oncologist this morning. The nurse returned my call and asked me if I knew what a port was. I told her about my experience with my mother in law's. She said she would talk to the doctor. I should have one in before end of week. Come Monday I will more than likely have chemo via a port. I even asked about the numbing creme. That is getting called into the pharmacy in anticipation of the port.

Ladies, I love you. The anxiety and pain you saved me is a lot. Yesterday, I cried all afternoon at the idea of adding one more aspect of pain. I still hurt from the debulking surgery. The pain is constant in the abdomen. Heaping one more thing was just overwhelming. Thank God for modern chemistry. I remembered I had been prescribed some clonazepan and kicked myself for letting my panic get that bad. I took one of those and while my brain still raced....I was able to get a grip.

I did a happy dance when I found out I could get the port in. When I hung up the phone, I looked at my hubby and said, "I have never been so happy to have a procedure as I am right now!" I even did a happy dance.

Thank you, Thank you, Thank you!!!!!

R34

good for you
I am so happy to read this. I burst into tears just knowing you were gonna get on the surgery schedule by the end of the week! It really made my day.

LQ