new stage 4 with mets to liver
Comments
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Hope you are doing well.
I read your post with interest. i know very little about Stage IV EC with mets. I do know that the Winston-Salem area is replete with fine medical facilities and doctors. Since you are very young for most people identified with EC, that may be the reason they chose to operate as perhaps it does give you a fighting chance. I sure hope so. So many of the posts on here that speak of Stage IV report that the doctors do not do surgery but treat only with chemotherapy and radiation. I sure am hoping that your treatment plan works. My husband was stage IIB. He had a complete Ivor Lewis procedure. He still has his port with his surgery over a year ago. His scans all report him to have no evidence of disease. His surgeon says that if the port isn't bothering him, leave it in, that it can be removed at any time, and it's there in the event a future need arises. He has it flushed about every 6 weeks. As I understand, you are receiving post operation chemo. Did you also have radiation? Please continue to post here as it will be wonderful to hear of a Stage IV having successful treatment. Eating is a challenge. My husband still hasn't gotten the hang of frequent, small meals; not mixing liquid consumption with food consumption; avoiding sweets, etc. These all can cause dumping and/or stomach/intestine pain. Mr. William Marshall has some excellent posts on eating. Hopefully, he will see your post and offer suggestions. Right now, there has been just a bunch of "newbies" on the site. We all here are glad you found this site as it can help you; yet, so sorry you had a need to find us. Let us know how it is going.0 -
to BMGkyBMGky said:Hope you are doing well.
I read your post with interest. i know very little about Stage IV EC with mets. I do know that the Winston-Salem area is replete with fine medical facilities and doctors. Since you are very young for most people identified with EC, that may be the reason they chose to operate as perhaps it does give you a fighting chance. I sure hope so. So many of the posts on here that speak of Stage IV report that the doctors do not do surgery but treat only with chemotherapy and radiation. I sure am hoping that your treatment plan works. My husband was stage IIB. He had a complete Ivor Lewis procedure. He still has his port with his surgery over a year ago. His scans all report him to have no evidence of disease. His surgeon says that if the port isn't bothering him, leave it in, that it can be removed at any time, and it's there in the event a future need arises. He has it flushed about every 6 weeks. As I understand, you are receiving post operation chemo. Did you also have radiation? Please continue to post here as it will be wonderful to hear of a Stage IV having successful treatment. Eating is a challenge. My husband still hasn't gotten the hang of frequent, small meals; not mixing liquid consumption with food consumption; avoiding sweets, etc. These all can cause dumping and/or stomach/intestine pain. Mr. William Marshall has some excellent posts on eating. Hopefully, he will see your post and offer suggestions. Right now, there has been just a bunch of "newbies" on the site. We all here are glad you found this site as it can help you; yet, so sorry you had a need to find us. Let us know how it is going.
I am doin somewhat ok today, little naus and dir. Thanks for the info on the port my wife and I were just talking to eachother wondering how long they would leave it in after last round of chemo. I thankfully have had no radiation to date and hope that I do not. Just from my on lil experiance if your husband can drop all sugar from his diet it should help with the dumping, also look into diabetic options. Met with a nutritionast yest. She told me to try alternating solid food meals with liquid meals I hope this helps me and maybe yours to. I guess because of the surgery I am just goin to feel worst I went and had fluids today and scheduled more for tomorrow. Stomach feels bad but still able to eat lil right now. Thank you for repling to my post , will be praying for you and husband.0 -
Hi Sherriunknown said:This comment has been removed by the Moderator
I am hoping the surgery was to cure if not a long time remission. As far as the insurance goes its blue cross blue shield and to my knowledge they have not turned me down for anything yet. No therasperes for the liver, but they think they cut it all out during surgery I guess only scans will show. Thanks for the food tips.0 -
Best wishes for a fast and full recovery
I also read your post over several times to make sure I got the facts. I also re-read the NCCN treatment guidelines for esophageal cancer to see if I missed something, and I'm intrigued by your case. It sounds like you received very aggressive and unconventional treatment. I certainly wish the best for you.
I also wish you could ask your doctors and share with us what made them recommend surgery in your case and if it was in fact performed with curative intent. It would help other stage IVs to know what new ideas are floating out there, perhaps provide us with some reasons to challenge the conventional wisdom.
Currently, the treatment guidelines do not recommend surgery for any stage IV patients and, explicitly, when there are mets to the liver. The only mention of surgery for stage IV is palliation or "salvage" surgery, when the primary gastric tumor needs to be removed and radiation is not an option. So please tell us more if you can, and, in any event, keep us advised generally. I imagine a lot of people will be following your posts with great interest. Me included.
Lu0
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