Mixed results ending with more confusion after ct scan

D Lewis said:

Why do unnecessary surgery?
I had an MRI about two months after end of chemo and rads. My Stanford doc told me that I had one or two lymph nodes that were large/inflamed, but that was to be expected after what I'd gone through. Three months after end of chemo and rads, I got a PET/CT. It showed NO hotspots. They were just inflamed lymph nodes, and not cancerous.

The surgeon is probably not going to be the best source for recommendations on whether or not to cut out the node now. If the radiation oncologist says wait, I'd wait. And, needle biopsies are notoriously inconclusive.

Healing thoughts to you and Connie. Sounds like you are right on track.

Deb

Deb, I am with you on this.

Deb, I am with you on this. I talked to Connie and she just doesn't want to do a needle biopsy right now. She has bad memories of the last one and she doesn't want to do anything to upset her lymph nodes, if that makes sense. They are all connected and she is afraid "all hell might break loose" if she messes with them. On Thursday we got great news "all clear" on Friday we're talking needle biopsy. Our celebration was short lived and we don't understand how 2 doctors from the same hospital and same team could give us such conflicting news. Either way, you responded within an hour of my posting this question. This site is "unbelievable". Thanks, Connie & Homer

Hondo said:

Hi Homer


You might want to get the CT report and disk and get another opinion. That is what I do and one reason why I am still here, the doctors don’t mind in fact some of them will encourage you to do so.

Wishing you the best
Hondo

Hondo, We probably won't get
Hondo, We probably won't get a 2nd opinion because Connie's doctor has done so much for us their is not enough room on this page to list everything. I wouldn't want her to think we have lost confidence in her and I think she is just going the extra mile for Connie to make sure nothing gets overlooked. I never mentioned this before but Connie's medicaid was canceled last week and we were at MDA for an appointment and a social worker led us from the waiting room to a private room and told us we would not be seeing anymore doctors till we got the medicaid issue resolved. I reminded them that Connie applied and was excepted at MDA for 100% assistance and the only reason we applied for medicaid was because our advocate requested we do so. They told us that the day Connie received medicaid our assistance was canceled and that we would have to re-apply if we wanted assistance. It took over a month to be accepted for assistance the 1st time so we headed for the social security office to see why her medicaid was canceled. The social security office said Connie was placed on social security disability and would now start receiving a check for $350 a month and this added to my income made her ineligible for medicaid. This would place her on medicare and she would have to wait 24 months before she could actually get medicare. That night I wrote her doctor and explained our situation and she wrote the head of the social worker department and told them that we would not be re-applying for assistance and that they needed to get the situation resolved pronto. So the next morning we got a phone call at 8am asking us to come back to the hospital and to make a long story short we got assistance so when doctors help in that way we could never 2nd guess her. Believe it or not though Connie's medicaid was restored and we ended up with medicaid coverage again. Crazy huh! Your friends, Homer & Connie