War

Radioactive34
Radioactive34 Member Posts: 391 Member
I am 34 years old. I was just diagnosed with small cell carcinoma of the hypercalcemic type. I had an ovary the size of a grapefruit. Thankfully it had not spread. A PET scan showed the rest of the body clear. With chemo, we are taking a preemptive strike at any free floating spores.

Lol, to say the least these past few weeks have been a roller coaster. My family and friends are in shock. I have read just about everything I can get ahold of concerning this. The numbers just look bleak.

I am gearing up for war. If you can imagine a soldier, knight, samurai donning their armor and weapons that is me.

My support system is my supply line. This board is going to become part of my supply line. My schedule does not allow me to go to local support groups. I find that I am much more open via this type of communication.

It is utterly sad that we are here. Though that we are here is a good thing for each other. We can read and nod our head on this side of the screen. We can understand each other when no one else can. Unless our most intimate friends, and families have walked in these shoes, it is hard to truly understand the myriad of things racing through our minds.

Off to war we go,
Radioactive34

Comments

  • Mum2bellaandwilliam
    Mum2bellaandwilliam Member Posts: 412
    hi
    Love you screen name, love your attitude!
    Welcome to the boards that no one wants to be on.
    Keep up that fighting spirit and good luck with your treatment.

    Liz x
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member

    hi
    Love you screen name, love your attitude!
    Welcome to the boards that no one wants to be on.
    Keep up that fighting spirit and good luck with your treatment.

    Liz x

    radioactive...This truly a battle to win. Come here anytime you like. You are so very young. We have other young woman here as well. Keep a positive outlook ,rest when you can. What type of chomo will you be on? God bless...val
  • klg
    klg Member Posts: 1
    War
    Hi Radioactive 34,

    My heart goes out to you. My 18 year old daughter has been fighting the same battle since October. She too had a large small cell cancer tumor removed from her ovary, and is just finishing treatment (chemo and radiation). Her last scans were clear and we are very hopeful, but of course this is a marathon, not a race. She is doing well, not letting this diagnosis stop her from living her life.

    I wanted to let you know about another group that might be of interest--the smallcellovca group that you can find through yahoo groups (not sure if I can post websites here, but if so: http://health.groups.yahoo.com/group/smallcellovca). There you will find others living with SCCO, and perhaps some information that will help along the way. We have found it very helpful. There is also a research study on small cell ovca recently started. You can find information here, http://www.tgen.org/research/index.cfm?pageid=1469. While the study is new, we have been in touch with the people involved, and they are so nice. I feel like being connected with them may help us stay abreast of any new information.

    My thoughts and prayers are with you. You have a wonderful attitude, and that is such a big part of the battle.
  • kikz
    kikz Member Posts: 1,345 Member
    klg said:

    War
    Hi Radioactive 34,

    My heart goes out to you. My 18 year old daughter has been fighting the same battle since October. She too had a large small cell cancer tumor removed from her ovary, and is just finishing treatment (chemo and radiation). Her last scans were clear and we are very hopeful, but of course this is a marathon, not a race. She is doing well, not letting this diagnosis stop her from living her life.

    I wanted to let you know about another group that might be of interest--the smallcellovca group that you can find through yahoo groups (not sure if I can post websites here, but if so: http://health.groups.yahoo.com/group/smallcellovca). There you will find others living with SCCO, and perhaps some information that will help along the way. We have found it very helpful. There is also a research study on small cell ovca recently started. You can find information here, http://www.tgen.org/research/index.cfm?pageid=1469. While the study is new, we have been in touch with the people involved, and they are so nice. I feel like being connected with them may help us stay abreast of any new information.

    My thoughts and prayers are with you. You have a wonderful attitude, and that is such a big part of the battle.

    We are here to help you wage your war
    against this horrible foe. I have a shirt that describes exactly what you are doing, "fight like a girl."

    Karen
  • jbeans888
    jbeans888 Member Posts: 313
    Warriors
    I like your screen name too. I felt the exact same way as you. When I first started chemo I really did feel like a warrior going into battle. It's like your scared but brave all at once. To put it breifly cancer sucks. But with a good support group like your family, friends and this site it makes the process a little easier knowing you have people to talk to or cry on their shoulders with. Stay strong keep up the fight even when your not feelin it.. We are all teal warriors.
  • Radioactive34
    Radioactive34 Member Posts: 391 Member

    radioactive...This truly a battle to win. Come here anytime you like. You are so very young. We have other young woman here as well. Keep a positive outlook ,rest when you can. What type of chomo will you be on? God bless...val

    Chemo
    Val,

    The doctor mentioned it was a platinum based chemo. He even wrote it down but my brain refused to process. I am going to have to go back and check the clinics website. All that I keep thinking about chemo is that it is so bad for the body. My mind rebels at the idea. How do you get past the negativity of the medication?

    R34
  • Radioactive34
    Radioactive34 Member Posts: 391 Member
    klg said:

    War
    Hi Radioactive 34,

    My heart goes out to you. My 18 year old daughter has been fighting the same battle since October. She too had a large small cell cancer tumor removed from her ovary, and is just finishing treatment (chemo and radiation). Her last scans were clear and we are very hopeful, but of course this is a marathon, not a race. She is doing well, not letting this diagnosis stop her from living her life.

    I wanted to let you know about another group that might be of interest--the smallcellovca group that you can find through yahoo groups (not sure if I can post websites here, but if so: http://health.groups.yahoo.com/group/smallcellovca). There you will find others living with SCCO, and perhaps some information that will help along the way. We have found it very helpful. There is also a research study on small cell ovca recently started. You can find information here, http://www.tgen.org/research/index.cfm?pageid=1469. While the study is new, we have been in touch with the people involved, and they are so nice. I feel like being connected with them may help us stay abreast of any new information.

    My thoughts and prayers are with you. You have a wonderful attitude, and that is such a big part of the battle.

    Marathons
    I had this idea that I would do chemo and be on my merry way. After chemo the world would right itself. The more I read about this, the more I realize normal is not going to be the same anymore.

    This is truly a marathon. A short sprint is not going to make this better. Lol, the only things that come to mind are cliched phrases. Yet we use them for a reason.

    R34
  • Radioactive34
    Radioactive34 Member Posts: 391 Member
    jbeans888 said:

    Warriors
    I like your screen name too. I felt the exact same way as you. When I first started chemo I really did feel like a warrior going into battle. It's like your scared but brave all at once. To put it breifly cancer sucks. But with a good support group like your family, friends and this site it makes the process a little easier knowing you have people to talk to or cry on their shoulders with. Stay strong keep up the fight even when your not feelin it.. We are all teal warriors.

    :-)
    I see all of you. I read your messages and think more than someone understands. Thank you for your support. Off to war we go.

    R34
  • luckyone
    luckyone Member Posts: 1

    :-)
    I see all of you. I read your messages and think more than someone understands. Thank you for your support. Off to war we go.

    R34

    It Can Be Done!!!
    Radio- At age 21 I was diagnosed with a small cell carcinoma of the ovary in December of 1985. Yes, 1985. I was treated at the University of Chicago teaching hospital. I had a complete hysterectomy and I r'cved 6 rounds of chemo, with a 6 drug cocktail each time. It was horrible, but I survived. Life after cancer (or more accurately; life after chemotherapy) is not perfect, but it is a life worth living anyway. I wish you luck- kick ****, girl! -Susan