Started Folfox for the second time today
I'm just hoping I can stay with the Folfox longer this time. I only made it 6 rounds the first time before onc was concerned about the side effects I was having and switched me to Iriontecan and vectibix. I did well on that combo for about 10 months when scans and rising CEA showed it was no longer affective. So back to Folfox, it worked well while I was on it the first time. Hoping it works well again and I have fewer issues.
Hope everyone is having a good day,weather here is finally warming up and I'm loving it.
Deb
Comments
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Folfox side effectsjanie1 said:Hi Deb. The first time with
Hi Deb. The first time with the Folfox, what other side effects were you having other than the cold sensitivity, that he felt it necessary to stop the folfox?
The biggest side effect I experienced the first time on folfox was neuropathy so bad I was losing the ability to walk. My feet and lower legs became so numb I could almost no longer lift my feet. Plus I had major fatique that I had trouble with everyday self care. My onc felt that the oxi was to much for me even after reducing it. I did stay on the rest of the folfox combo( minus the oxi) and started feeling much better. But my cancer showed progression and onc wanted to try different chemo instead of going back to the oxi. The new chemo worked great for awhile but once again cancer showed progression. It was decided by me and onc to give the folfox another try. Hoping the extra meds and supplements help minimize the side effects this time.
Deb0 -
Dear Deb
I hope you are coping the Folfox + avastin well this time. My mum started Folfox + avastin again 2 days ago. She is very tired and also has cold sensitive. it's very hot here but she is wearing long sleeves and gloves =( She also has running nose (not sure if this is from this treatment or not). Today is only the 2nd day of her treatment (she is still having the 5-FU infusion with her), she has lost her appetite already!
Her hands turn rough too... I try to put as much hand cream and foot cream on her as possible.
I hope you and my mum will respond well to this regimen!
Love Dora0 -
i used milk thistle during my folfoxdamama24 said:Folfox side effects
The biggest side effect I experienced the first time on folfox was neuropathy so bad I was losing the ability to walk. My feet and lower legs became so numb I could almost no longer lift my feet. Plus I had major fatique that I had trouble with everyday self care. My onc felt that the oxi was to much for me even after reducing it. I did stay on the rest of the folfox combo( minus the oxi) and started feeling much better. But my cancer showed progression and onc wanted to try different chemo instead of going back to the oxi. The new chemo worked great for awhile but once again cancer showed progression. It was decided by me and onc to give the folfox another try. Hoping the extra meds and supplements help minimize the side effects this time.
Deb
hi deb,
this helped my liver. doctor lenz seemed ok with it, some oncs are some not.
just goodluck this time on folfox.
hugs,
pete0 -
My cold touch sensitivitydamama24 said:Folfox side effects
The biggest side effect I experienced the first time on folfox was neuropathy so bad I was losing the ability to walk. My feet and lower legs became so numb I could almost no longer lift my feet. Plus I had major fatique that I had trouble with everyday self care. My onc felt that the oxi was to much for me even after reducing it. I did stay on the rest of the folfox combo( minus the oxi) and started feeling much better. But my cancer showed progression and onc wanted to try different chemo instead of going back to the oxi. The new chemo worked great for awhile but once again cancer showed progression. It was decided by me and onc to give the folfox another try. Hoping the extra meds and supplements help minimize the side effects this time.
Deb
My cold touch sensitivity went away about 1 month after stopping FolFox. (The burning feeling when touching something cold.) The lips tingeling went away also.
I still have difficulties getting physically warm. The Neuropathy is still bad. I saw my Onc yesterday and he told me it will take months for the neuropathy to go away. My feet feel asleep and my hands are numb.
On the positive, my appetite is back, and foods are tasting the way they used to! The bloating is starting to go away also! woo hoo
Best Always, mike0
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