Metastasis to the liver and lining of the lung

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  • upsofloating
    upsofloating Member Posts: 466 Member
    #22
    Songflower said:

    Friends in Time of Need
    They are going to do radiation or surgery. I saw radiation oncology today but I have to see the specialized radiation oncologists this week. Regular radiation oncology said surgery is the gold standard. She wants to start topetocan two weeks after radiation. They plan to put a port in for pain soon. It's all happening so fast when when I should be planning wedding stuff. We have most of the big planning done; I have a dress and my daughter's dress is done. The bridesmaids will be here a few days before the rehearsal dinner. My friends from nursing school are flying out the 14 of June telling me they do anything and everything: cooking, scrubbing, dusting, errands....friendship is the gold of life.

    I don't have cancer in the lung, they are not even sure anything is there. Perhaps a slight fluid. My daughter wants to be in "take care of your mother mode," but she needs to be in bride mode and enjoy it. My other daughter comes in tomorrow to help me for a while. She makes me drink she makes me drink so much water, checks on my meds, I suddenly feel role reversal.

    Thank you friends for your posts and words of wisdom.

    Love, Diane

    You have a great support
    You have a great support system! With so many things to take care of, enjoy some role reversal. That is great news about lung issue. This gets you down to only the liver met. Surgery and radiation are both known to manage this quite well. Will you be able to get things underway quickly pre-wedding? Is the topetocan the plan whether you do surgery or do radiation? or is there a possibility of both?

    If friendship is gold then it sounds like you are very rich indeed. And it takes a good friend to be returned in kind so this speaks so very highly of you, Diane.

    You're in my thoughts for a smooth ride over this bump.
    Annie
  • Sunny777
    Sunny777 Member Posts: 7 Member
    #23
    Songflower said:

    Friends in Time of Need
    They are going to do radiation or surgery. I saw radiation oncology today but I have to see the specialized radiation oncologists this week. Regular radiation oncology said surgery is the gold standard. She wants to start topetocan two weeks after radiation. They plan to put a port in for pain soon. It's all happening so fast when when I should be planning wedding stuff. We have most of the big planning done; I have a dress and my daughter's dress is done. The bridesmaids will be here a few days before the rehearsal dinner. My friends from nursing school are flying out the 14 of June telling me they do anything and everything: cooking, scrubbing, dusting, errands....friendship is the gold of life.

    I don't have cancer in the lung, they are not even sure anything is there. Perhaps a slight fluid. My daughter wants to be in "take care of your mother mode," but she needs to be in bride mode and enjoy it. My other daughter comes in tomorrow to help me for a while. She makes me drink she makes me drink so much water, checks on my meds, I suddenly feel role reversal.

    Thank you friends for your posts and words of wisdom.

    Love, Diane

    In my prayers
    Hi Diane,
    It's great the cancer isn't in you lung. Hang in there and enjoy the wedding. I'll keep you in my prayers, and this bump will be just a little bump.

    Take Care
    Sunny
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #24
    Sunny777 said:

    In my prayers
    Hi Diane,
    It's great the cancer isn't in you lung. Hang in there and enjoy the wedding. I'll keep you in my prayers, and this bump will be just a little bump.

    Take Care
    Sunny

    Little silver linings
    I'm so happy there is no cancer in your lungs and that a treatment plan is maybe not complete, but in the works. A bump in the road indeed!

    I don't know if the new chemo will cause hair loss or not, but with radiation first, if it does, you'll probably still have your hair for the wedding (pictures!). Silly things that cross my mind.

    Your friends are so much more than a silver lining. Let them take over when they arrive and you sit back and enjoy. You've done all the ground work. Stupid cancer doesn't bother to take your other commitments into consideration, and it sounds like you have a fabulous group of friends and family.

    Take good care of you so you can be in the very best shape possible to enjoy the wedding.

    Best,
    Suzanne
  • Songflower
    Songflower Member Posts: 608
    #25
    Double Whammy said:

    Little silver linings
    I'm so happy there is no cancer in your lungs and that a treatment plan is maybe not complete, but in the works. A bump in the road indeed!

    I don't know if the new chemo will cause hair loss or not, but with radiation first, if it does, you'll probably still have your hair for the wedding (pictures!). Silly things that cross my mind.

    Your friends are so much more than a silver lining. Let them take over when they arrive and you sit back and enjoy. You've done all the ground work. Stupid cancer doesn't bother to take your other commitments into consideration, and it sounds like you have a fabulous group of friends and family.

    Take good care of you so you can be in the very best shape possible to enjoy the wedding.

    Best,
    Suzanne

    We're all Bumping Along
    Thank you for all your positive comments and care. Expressing anger is part of healing and I appreciate that honesty. I just have appts yet and no plan. Chemo will start two weeks after radiation if I go that route. I will be on chemo for the wedding. May or may not have hair. Giggle....I thought of that too. But the wig is on hold in the closet.

    We are all bumping along aren't we? Even in remission we bump along. Bumping with friends going the same route is the best healing medicine I've found.
    Love, Diane
  • california_artist
    california_artist Member Posts: 816 Member
    #26
    Songflower said:

    We're all Bumping Along
    Thank you for all your positive comments and care. Expressing anger is part of healing and I appreciate that honesty. I just have appts yet and no plan. Chemo will start two weeks after radiation if I go that route. I will be on chemo for the wedding. May or may not have hair. Giggle....I thought of that too. But the wig is on hold in the closet.

    We are all bumping along aren't we? Even in remission we bump along. Bumping with friends going the same route is the best healing medicine I've found.
    Love, Diane

    You
    Diane,

    Your picture always brings joy to my heart. If there is anything I can do after the bustle of the wedding, like research something you may have heard of but aren't familiar with, just let me know and I'll do anything I can that might be of help.

    Hold hands with people you love, even if it's not a situation where you would normally be holding hands. That simple act makes you feel you are stronger in any trial you find yourself in.

    You know, I love you and your strength. It's the best I have to offer.

    Claudia
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #27
    Songflower said:

    We're all Bumping Along
    Thank you for all your positive comments and care. Expressing anger is part of healing and I appreciate that honesty. I just have appts yet and no plan. Chemo will start two weeks after radiation if I go that route. I will be on chemo for the wedding. May or may not have hair. Giggle....I thought of that too. But the wig is on hold in the closet.

    We are all bumping along aren't we? Even in remission we bump along. Bumping with friends going the same route is the best healing medicine I've found.
    Love, Diane

    Diane continue to bump along
    Glad you have friends coming to help you before the wedding. My hope is that you are feeling well enough to enjoy them and the wedding. I know you will be a beautiful mother of the bride. Your smile will speak volumes. You are a very strong person. In peace and caring.
  • Songflower
    Songflower Member Posts: 608
    #28
    Ro10 said:

    Diane continue to bump along
    Glad you have friends coming to help you before the wedding. My hope is that you are feeling well enough to enjoy them and the wedding. I know you will be a beautiful mother of the bride. Your smile will speak volumes. You are a very strong person. In peace and caring.

    My Plan Keeps Changing
    I saw the specialist radiologist and he was going to do cyberknife for the tumor in the liver. They had tumor board meet and they decided that giving chemo first would be best as they worry about the fluid in the lining of my lungs. They could do cyberknife later. My head spins with the changes in the plan.

    I also have one other big plan/problem. My Gyn Onc went solo because of politics in health care. She only does chemo on Mondays where I live now. I could drive to Williamsburg two days a week. I could not get chemo on Thursday and Friday when she is in surgery. The tumor board wants me to get a medical oncologist to give chemo. I did that before with breast and someone is always on call and they are a large group to help you. I don't think my gyn onc has a good relationship with the chemo group as they are the group that let her and her husband go. I don't know the details and don't want to. I know there is competition when the gyn onc gives the chemo. I know she is over stressed; but she has always made good decisions for me. She is young and beautiful but also very dedicated and smart. She gives me hope. But if I have a complication from chemo she is not able to be there because of surgery demands. They have me set up with a different medical oncologist on Monday to get me on chemo quickly.

    All of this gives me anxiety. Just writing it out helps me to identify my worries. Thanks for listening Diane
  • Songflower
    Songflower Member Posts: 608
    #29
    Ro10 said:

    Diane continue to bump along
    Glad you have friends coming to help you before the wedding. My hope is that you are feeling well enough to enjoy them and the wedding. I know you will be a beautiful mother of the bride. Your smile will speak volumes. You are a very strong person. In peace and caring.

    My Plan Keeps Changing
    I saw the specialist radiologist and he was going to do cyberknife for the tumor in the liver. They had tumor board meet and they decided that giving chemo first would be best as they worry about the fluid in the lining of my lungs. They could do cyberknife later. My head spins with the changes in the plan.

    I also have one other big plan/problem. My Gyn Onc went solo because of politics in health care. She only does chemo on Mondays where I live now. I could drive to Williamsburg two days a week. I could not get chemo on Thursday and Friday when she is in surgery. The tumor board wants me to get a medical oncologist to give chemo. I did that before with breast and someone is always on call and they are a large group to help you. I don't think my gyn onc has a good relationship with the chemo group as they are the group that let her and her husband go. I don't know the details and don't want to. I know there is competition when the gyn onc gives the chemo. I know she is over stressed; but she has always made good decisions for me. She is young and beautiful but also very dedicated and smart. She gives me hope. But if I have a complication from chemo she is not able to be there because of surgery demands. They have me set up with a different medical oncologist on Monday to get me on chemo quickly.

    All of this gives me anxiety. Just writing it out helps me to identify my worries. Thanks for listening Diane
  • norma2
    norma2 Member Posts: 479
    #30
    Songflower said:

    My Plan Keeps Changing
    I saw the specialist radiologist and he was going to do cyberknife for the tumor in the liver. They had tumor board meet and they decided that giving chemo first would be best as they worry about the fluid in the lining of my lungs. They could do cyberknife later. My head spins with the changes in the plan.

    I also have one other big plan/problem. My Gyn Onc went solo because of politics in health care. She only does chemo on Mondays where I live now. I could drive to Williamsburg two days a week. I could not get chemo on Thursday and Friday when she is in surgery. The tumor board wants me to get a medical oncologist to give chemo. I did that before with breast and someone is always on call and they are a large group to help you. I don't think my gyn onc has a good relationship with the chemo group as they are the group that let her and her husband go. I don't know the details and don't want to. I know there is competition when the gyn onc gives the chemo. I know she is over stressed; but she has always made good decisions for me. She is young and beautiful but also very dedicated and smart. She gives me hope. But if I have a complication from chemo she is not able to be there because of surgery demands. They have me set up with a different medical oncologist on Monday to get me on chemo quickly.

    All of this gives me anxiety. Just writing it out helps me to identify my worries. Thanks for listening Diane

    {{{Diane}}}}
    Cyberholding your hand!!! here is hoping for the stress and anxiety to go away. Norma
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #31
    Songflower said:

    My Plan Keeps Changing
    I saw the specialist radiologist and he was going to do cyberknife for the tumor in the liver. They had tumor board meet and they decided that giving chemo first would be best as they worry about the fluid in the lining of my lungs. They could do cyberknife later. My head spins with the changes in the plan.

    I also have one other big plan/problem. My Gyn Onc went solo because of politics in health care. She only does chemo on Mondays where I live now. I could drive to Williamsburg two days a week. I could not get chemo on Thursday and Friday when she is in surgery. The tumor board wants me to get a medical oncologist to give chemo. I did that before with breast and someone is always on call and they are a large group to help you. I don't think my gyn onc has a good relationship with the chemo group as they are the group that let her and her husband go. I don't know the details and don't want to. I know there is competition when the gyn onc gives the chemo. I know she is over stressed; but she has always made good decisions for me. She is young and beautiful but also very dedicated and smart. She gives me hope. But if I have a complication from chemo she is not able to be there because of surgery demands. They have me set up with a different medical oncologist on Monday to get me on chemo quickly.

    All of this gives me anxiety. Just writing it out helps me to identify my worries. Thanks for listening Diane

    Diane sorry for your anxiety
    But I certainly understand your anxiety. When you think you have a plan in place and then it changes.......that does cause anxiety. It is hard when you have confidence in your doctor and then you need to change to another doctor. Sending you cyber hugs and holding your hand as you go Monday to the medical onocologist. In peace and caring.
  • HellieC
    HellieC Member Posts: 524 Member
    #32
    Songflower said:

    My Plan Keeps Changing
    I saw the specialist radiologist and he was going to do cyberknife for the tumor in the liver. They had tumor board meet and they decided that giving chemo first would be best as they worry about the fluid in the lining of my lungs. They could do cyberknife later. My head spins with the changes in the plan.

    I also have one other big plan/problem. My Gyn Onc went solo because of politics in health care. She only does chemo on Mondays where I live now. I could drive to Williamsburg two days a week. I could not get chemo on Thursday and Friday when she is in surgery. The tumor board wants me to get a medical oncologist to give chemo. I did that before with breast and someone is always on call and they are a large group to help you. I don't think my gyn onc has a good relationship with the chemo group as they are the group that let her and her husband go. I don't know the details and don't want to. I know there is competition when the gyn onc gives the chemo. I know she is over stressed; but she has always made good decisions for me. She is young and beautiful but also very dedicated and smart. She gives me hope. But if I have a complication from chemo she is not able to be there because of surgery demands. They have me set up with a different medical oncologist on Monday to get me on chemo quickly.

    All of this gives me anxiety. Just writing it out helps me to identify my worries. Thanks for listening Diane

    Thniking of you, Diane
    Just wanted you to know that you're in my thoughts and prayers today (Monday) as you put your plan together.
    Helen
  • TiggersDoBounce
    TiggersDoBounce Member Posts: 408
    #33
    kathybd said:

    Bumps, big and small!
    Dear Diane

    I am so very sorry to hear this news. Just checking in on my cohorts from the board. But bumps in the road are just that. You have been and still are a very strong lady. Reading your posts in the past have proven that to me. I send you strength, hugs and hope, which you already have plenty of, so think of this as an extra boost. I feel we come out able to handle anything life gives us with cancer.

    Haven't been on here in some time. My husband who had Stage 4 colon cancer passed away in Jan of this year. Lived 3 years after his diagnosis. Really miss him, but he fought hard and lived his life on his terms.

    My endometrial cancer is still gone. Last tests ahve been normal. Almost 2 years out. I thank God everyday for giving me the strength to cope with all of this. One day, one hour, one step at a time.

    Blessings to you!
    Kathy

    Kathy
    Sending condolences over your loss of your husband....

    This must be such a hard time for you...

    Keep in touch..

    Laurie
  • lindaprocopio
    lindaprocopio Member Posts: 1,980 Member
    #34
    HellieC said:

    Thniking of you, Diane
    Just wanted you to know that you're in my thoughts and prayers today (Monday) as you put your plan together.
    Helen

    Like you, I do better once I have a plan.
    ((((Diane))))). I think of you all the time as I get closer to my radioembolism. I will be happy to know, one way or the other, after my mapping procedure on Thursday, whether I can really do this or not. So I surely do understand your anxiety at not having a solid plan. The only thing to do is let it go. Throw it up to the winds and let fate and God land it where they land it. Keep us posted, kiddo. Know I'm thinking of you and rooting for you.
  • Northwoodsgirl
    Northwoodsgirl Member Posts: 571
    #35
    Songflower said:

    My Plan Keeps Changing
    I saw the specialist radiologist and he was going to do cyberknife for the tumor in the liver. They had tumor board meet and they decided that giving chemo first would be best as they worry about the fluid in the lining of my lungs. They could do cyberknife later. My head spins with the changes in the plan.

    I also have one other big plan/problem. My Gyn Onc went solo because of politics in health care. She only does chemo on Mondays where I live now. I could drive to Williamsburg two days a week. I could not get chemo on Thursday and Friday when she is in surgery. The tumor board wants me to get a medical oncologist to give chemo. I did that before with breast and someone is always on call and they are a large group to help you. I don't think my gyn onc has a good relationship with the chemo group as they are the group that let her and her husband go. I don't know the details and don't want to. I know there is competition when the gyn onc gives the chemo. I know she is over stressed; but she has always made good decisions for me. She is young and beautiful but also very dedicated and smart. She gives me hope. But if I have a complication from chemo she is not able to be there because of surgery demands. They have me set up with a different medical oncologist on Monday to get me on chemo quickly.

    All of this gives me anxiety. Just writing it out helps me to identify my worries. Thanks for listening Diane

    New physician required
    Diane, I am sorry that your gyn/onc is splitting from the medical group. Sounds like you talked with her about her back up or coverage plans? I wonder if she could work somehthing out with an oncologist from the previous medical group. I hate the politics of healthcare....Glad to hear that you have such wonderful friends who will go into action to help you prior to the wedding. My prayers are with you....(((HUG)))
    Lori
  • denyingarea
    denyingarea Member Posts: 11
    #36
    Songflower said:

    My Plan Keeps Changing
    I saw the specialist radiologist and he was going to do cyberknife for the tumor in the liver. They had tumor board meet and they decided that giving chemo first would be best as they worry about the fluid in the lining of my lungs. They could do cyberknife later. My head spins with the changes in the plan.

    I also have one other big plan/problem. My Gyn Onc went solo because of politics in health care. She only does chemo on Mondays where I live now. I could drive to Williamsburg two days a week. I could not get chemo on Thursday and Friday when she is in surgery. The tumor board wants me to get a medical oncologist to give chemo. I did that before with breast and someone is always on call and they are a large group to help you. I don't think my gyn onc has a good relationship with the chemo group as they are the group that let her and her husband go. I don't know the details and don't want to. I know there is competition when the gyn onc gives the chemo. I know she is over stressed; but she has always made good decisions for me. She is young and beautiful but also very dedicated and smart. She gives me hope. But if I have a complication from chemo she is not able to be there because of surgery demands. They have me set up with a different medical oncologist on Monday to get me on chemo quickly.

    All of this gives me anxiety. Just writing it out helps me to identify my worries. Thanks for listening Diane

    Diane - Does this new plan....
    ...mean that chemo could be finished potentially before the wedding? (fingers crossed!)
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #37
    denyingarea said:

    Diane - Does this new plan....
    ...mean that chemo could be finished potentially before the wedding? (fingers crossed!)

    Hi Diane
    I was away for a few weeks and just read your post - darn it!!!

    I like your plan though - I was wondering about the cyberknife and think it's encouraging that they will do this!!!!! The technology is amazing. What do you mean about getting a port for pain? Is that the regular mediport that I have??? Will they use it for pain meds? I'm interested in learning about this.

    It sounds like you are in good hands. Enjoy your daughter's wedding and all the planning that goes with it. I'm sure you will have an awesome time and will be the MOST bee-uuu-ti-ful mother of the bride!!

    Prayers and hugs on the way to you, dear one. Lots of love, Mary Ann
  • Sara Zipora
    Sara Zipora Member Posts: 231
    #38
    daisy366 said:

    Hi Diane
    I was away for a few weeks and just read your post - darn it!!!

    I like your plan though - I was wondering about the cyberknife and think it's encouraging that they will do this!!!!! The technology is amazing. What do you mean about getting a port for pain? Is that the regular mediport that I have??? Will they use it for pain meds? I'm interested in learning about this.

    It sounds like you are in good hands. Enjoy your daughter's wedding and all the planning that goes with it. I'm sure you will have an awesome time and will be the MOST bee-uuu-ti-ful mother of the bride!!

    Prayers and hugs on the way to you, dear one. Lots of love, Mary Ann

    Thread of posts
    Was away doing some 'Bucket 'list' tripping and have been catching up on the List.

    OMG, what an emotional roller coaster you've been on! My heart goes out to you! I,m not sure where your Williamsburg is located but just read that a new Onco interventional(?)Radiologist is at Cornell/New York/Sloan I think. His name is Madoff ( not a popular NY name) and the article about him was in the NYTimes.

    I am wondering if you solved your Mother of the Bride hat questions. I noticed that Princess Beatrix's hat is on the block for a mere $30,000 ((((hugs and smiles)))).

    Sara

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