angiosarcoma of the breast

4everlate
4everlate Member Posts: 2
in Breast Cancer #1
I was diagnosed with angiosarcoma of the breast 2008, I was told this is a rare cancer.
This type of cancer has a high mortality rate, Iam looking for more information. please help.
So far the information i have gathered is that this cancer is very aggressive. It is from exposure to radiation and toxins such as vinyl chloride, it is not hereditary. I was only 33 when diagnosed. The only thing I could think of is I got it from 911 being an emt for the FDNY I was exposed to many toxins by form of the respiratory track...the only solution was to remove the sarcoma from my breast, as far as treatment I underwent chemotherapy and radiation I wasn't to happy about the radiation but I felt at the time anything could help..there wasn't to much information on how to treat it. But its been three years and Im still alive..
cancer free...

Comments

  • roseann4
    roseann4 Member Posts: 992 Member
    #2
    I'm very sorry.
    I don't have any information but wanted to express my gratitude for your service and regret forth consequences. May God keek you safe.

    Roseann
  • QueenOfSwords
    QueenOfSwords Member Posts: 2
    #3
    Angiosarcoma Support Group
    Hi,

    I'm so sorry to hear that you're battling AS.

    Please consider visiting our Facebook group: "Angiosarcoma Cancer". We are a support group for those fighting AS and someone there may have additional suggestions for you. We also conduct fundraising for reseach to learn more about AS and to develop targeted therapies.

    You can also learn more about our non-profit group at: www.cureasc.org

    Wishing you the best!

    Laura
  • Lynn Smith
    Lynn Smith Member Posts: 1,264 Member
    #4
    QueenOfSwords said:

    Angiosarcoma Support Group
    Hi,

    I'm so sorry to hear that you're battling AS.

    Please consider visiting our Facebook group: "Angiosarcoma Cancer". We are a support group for those fighting AS and someone there may have additional suggestions for you. We also conduct fundraising for reseach to learn more about AS and to develop targeted therapies.

    You can also learn more about our non-profit group at: www.cureasc.org

    Wishing you the best!

    Laura

    Agressive Cancer
    I don't know much about your cancer but have a friend who was diagnosed with a agressive cancer.She is a 6 year survivor. What she had done was immediate.Her doctor said there was no time.Test, surgery and chemo started within 3 weeks.She had doc appts, test and surgery done right away.Within short time after surgery she had chemo. Her doctor said her life would be on fast speed and he meant it.

    Wish you the best.There seems to be some info on this type of cancer for you. You will learn alot and also make new friends who might have the same type of cancer as you.

    Be Well
    Lynn Smith
  • eileent54
    eileent54 Member Posts: 5
    #5
    angiosarcoma of breast
    Hi- My daughter had angiosarcoma of the breast- diagnosed in 2008- misdiagnosed for a year before that. There are different degrees of aggressiveness but yes, it is an aggressive cancer. You can find lots of information and support through www.cureasc.org ( my daughter, Bethany Richmond's story is under the forum tab "our stories") or go to Facebook and you can find us under "angiosarcoma cancer". My daughter was one of the first of this group. The number of people in our group is now quite large, and from all over the world. We are definitely a "family" and are raising money ourselves and have hired labs to do research-- as with a cancer this rare, precious little research is/has been done.I really encourage you to seek out this site, it is a treasure trove of information about different treatments and best places to seek treatment- also, it is full of kind and supportive people who are going through what you are. Congrats to you as you must be doing something right, you're still here! =)
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #6
    QueenOfSwords said:

    Angiosarcoma Support Group
    Hi,

    I'm so sorry to hear that you're battling AS.

    Please consider visiting our Facebook group: "Angiosarcoma Cancer". We are a support group for those fighting AS and someone there may have additional suggestions for you. We also conduct fundraising for reseach to learn more about AS and to develop targeted therapies.

    You can also learn more about our non-profit group at: www.cureasc.org

    Wishing you the best!

    Laura

    I am very sorry. It seems
    I am very sorry. It seems Laura has given you some other great sites to look at to seek some help and answers.


    Praying for you,


    Jan
  • MAJW
    MAJW Member Posts: 2,510 Member
    #7
    eileent54 said:

    angiosarcoma of breast
    Hi- My daughter had angiosarcoma of the breast- diagnosed in 2008- misdiagnosed for a year before that. There are different degrees of aggressiveness but yes, it is an aggressive cancer. You can find lots of information and support through www.cureasc.org ( my daughter, Bethany Richmond's story is under the forum tab "our stories") or go to Facebook and you can find us under "angiosarcoma cancer". My daughter was one of the first of this group. The number of people in our group is now quite large, and from all over the world. We are definitely a "family" and are raising money ourselves and have hired labs to do research-- as with a cancer this rare, precious little research is/has been done.I really encourage you to seek out this site, it is a treasure trove of information about different treatments and best places to seek treatment- also, it is full of kind and supportive people who are going through what you are. Congrats to you as you must be doing something right, you're still here! =)

    My sister in law...
    Had this type of bc....21 YEARS AGO!!!!!!!!! It took 3 months from her lumpectomy to find out EXACTLY what she had...then all they knew to do at that time was a mastectomy...she had no chemo and no radiation.....she was told it was very aggressive...but she is alive and well 21 years later!
  • Noel
    Noel Member Posts: 3,095 Member
    #8
    QueenOfSwords said:

    Angiosarcoma Support Group
    Hi,

    I'm so sorry to hear that you're battling AS.

    Please consider visiting our Facebook group: "Angiosarcoma Cancer". We are a support group for those fighting AS and someone there may have additional suggestions for you. We also conduct fundraising for reseach to learn more about AS and to develop targeted therapies.

    You can also learn more about our non-profit group at: www.cureasc.org

    Wishing you the best!

    Laura

    I want to thank you for your
    I want to thank you for your service too during 911. Sending prayers!
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #9
    thinking of you..
    Denise

    thinking of you..

    Denise
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #10
    eileent54 said:

    angiosarcoma of breast
    Hi- My daughter had angiosarcoma of the breast- diagnosed in 2008- misdiagnosed for a year before that. There are different degrees of aggressiveness but yes, it is an aggressive cancer. You can find lots of information and support through www.cureasc.org ( my daughter, Bethany Richmond's story is under the forum tab "our stories") or go to Facebook and you can find us under "angiosarcoma cancer". My daughter was one of the first of this group. The number of people in our group is now quite large, and from all over the world. We are definitely a "family" and are raising money ourselves and have hired labs to do research-- as with a cancer this rare, precious little research is/has been done.I really encourage you to seek out this site, it is a treasure trove of information about different treatments and best places to seek treatment- also, it is full of kind and supportive people who are going through what you are. Congrats to you as you must be doing something right, you're still here! =)

    I wish I could offer you
    I wish I could offer you information on your type of bc, but, I don't know anything about it. Just want you to know that I am sending prayers and hugs to you.


    Sue :)
  • Kylez
    Kylez Member Posts: 3,761 Member
    #11
    disneyfan2008 said:

    thinking of you..
    Denise

    thinking of you..

    Denise

    Thinking of you too and
    Thinking of you too and sending prayers.


    Hugs, Kylez
  • nerjeño
    nerjeño Member Posts: 4
    #12
    LIFE BEYOND ANGIOSARCOMA
    I´m an Spanish man living in Spain. So please acept my apologizes if my english is not too good .
    My father in law, now 85 years old, has suffered a head and neck angiosarcoma, wrongly diagnosed in 2006. Three years later, he was considered inoperable and said, no other treatment was possible, after five surgeries and 32 radiation treatments; all without success. After that, he was treated by a doctor with alternative techniques (electrotherapy, ozone therapy, high doses of Omega 3 DHA, mincroinmunoterapia, diet, nutritional supplements and herbal medicine. Since then the various tumor foci have been stabilized, reduced and, finally, they have disappeared. For almost 8 months there have been no new active focus and his latest analytical and tomography have been normal.
    Now I am writing a blog telling the story of this case and our experiences , hoping that can help other people now that actually or in the future could be affected by an angiosarcoma. The Blog can be viewed at the following link:

    http://historiadeunangiosarcoma.blogspot.com/

    About your comment, in spite of I´m not a doctor in my opiniòn, according with my experience about angiosarcoma, a breast angiosarcoma is a perfect candidate for electrotherapy. At least in our case has been a great result. So I suggest you find a doctor who practices electrotherapy, and talk with him about than posibility.
    Surgery, that is,normally the first election is not a very good election unless it is radical or the surgeons use "Mohs" surgery.
    I hope you can remove your angiosarcoma, because although it is difficult, is possible.
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    #13
    nerjeño said:

    LIFE BEYOND ANGIOSARCOMA
    I´m an Spanish man living in Spain. So please acept my apologizes if my english is not too good .
    My father in law, now 85 years old, has suffered a head and neck angiosarcoma, wrongly diagnosed in 2006. Three years later, he was considered inoperable and said, no other treatment was possible, after five surgeries and 32 radiation treatments; all without success. After that, he was treated by a doctor with alternative techniques (electrotherapy, ozone therapy, high doses of Omega 3 DHA, mincroinmunoterapia, diet, nutritional supplements and herbal medicine. Since then the various tumor foci have been stabilized, reduced and, finally, they have disappeared. For almost 8 months there have been no new active focus and his latest analytical and tomography have been normal.
    Now I am writing a blog telling the story of this case and our experiences , hoping that can help other people now that actually or in the future could be affected by an angiosarcoma. The Blog can be viewed at the following link:

    http://historiadeunangiosarcoma.blogspot.com/

    About your comment, in spite of I´m not a doctor in my opiniòn, according with my experience about angiosarcoma, a breast angiosarcoma is a perfect candidate for electrotherapy. At least in our case has been a great result. So I suggest you find a doctor who practices electrotherapy, and talk with him about than posibility.
    Surgery, that is,normally the first election is not a very good election unless it is radical or the surgeons use "Mohs" surgery.
    I hope you can remove your angiosarcoma, because although it is difficult, is possible.

    Great response nerjeno. I
    Great response nerjeno. I think you should create a new post just for this so others can read it too. Or if we ever want to do a look-up later, we can find it.

    Thanks for sharing your experience.
  • nerjeño
    nerjeño Member Posts: 4
    #14
    LoveBabyJesus said:

    Great response nerjeno. I
    Great response nerjeno. I think you should create a new post just for this so others can read it too. Or if we ever want to do a look-up later, we can find it.

    Thanks for sharing your experience.

    OK
    I think you are right. So I´m following your suggestion and creating a new post.

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