Here I sit
What an odd turn of events. I have a permanent ileostomy just as planned, but no plans for followup cancer treatment. I don't have cancer! What I have might be worse, we do not know, but all indications seem to be a chronic infection of some kind (CDC to investigate). All my symptoms are/were cancer type symptoms and none for infection. Odd, huh? The bone has been eaten away, there are fast growing masses all down there, I have a colon blockage from the masses (hence the perm ileo) and it is all acting just like cancer, but it isn't. The whole mess is as serious as cancer, but probably infinitely more treatable (again probably). Still scared, but knowing that I do not have sacral cancer is somehow reassuring. No wonder my CEA was unaffected! Now they have to puzzle out why nothing else was effected and how this happened so quickly and of course come up with a cure ASAP. Right now I am just on a broad spectrum antibiotic.
I have read through the first page of posts trying to get caught up and I am pretty overwhelmed, let me tell you. I wish I was feeling well enough to comment on some posts, but I am just not up to it yet. God knows many of you could use the encouragement and are going through so muhc as well. It will have to be a generic CSN prayer for you all for a while. I hope to get well enough to get back into the swing of things soon - be at peace!
Rick
Comments
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Dear Rick
If you have to come up with a good news/bad news post...I guess you win the prize.
So very happy that you do not have sacral cancer, and pray that the CDC gets on the stick and finds out what you do have and how to fix it pronto!
Rest up, heal up and keep on the CDC and the docs to come up with a cure for that 'unknown' problem.
Hugs,
Marie0 -
Rick I am so grateful you
Rick I am so grateful you don't have cancer! I am wondering what you do have that is acting like cancer but isn't. I will be hoping, wishing, praying for an easy, speedy recovery. I know how it gets being in the hospital. I'm sure you will keep us posted on what they find...I hope.
Love and hugs to you, Gail0 -
What a relief it isn'tplh4gail said:Rick I am so grateful you
Rick I am so grateful you don't have cancer! I am wondering what you do have that is acting like cancer but isn't. I will be hoping, wishing, praying for an easy, speedy recovery. I know how it gets being in the hospital. I'm sure you will keep us posted on what they find...I hope.
Love and hugs to you, Gail
What a relief it isn't cancer. Get some rest. They'll figure it out.0 -
hi rick goodluck from one hospital to another
what co-incidence.
i might get out thursday afternoon.
i am feeling much better today, its just the 30 plus trips to the loo that is cramping my style. and the nappies here really stuck.
Now thats a typo butt if think its funny so i have left it in. the nappies here really suck.
hope your feeling better soon, glad you don't have cancer and i hope your doctors come up with some answers for you.
hugs,
pete0 -
Rick
Rick,
I think not having cancer is great! I hope and pray they figure out your issue soon.
Aloha,
Kathleen0 -
You're almost out of there!
Hi Rick,
I'm so glad to hear it's not cancer, but I know you have the worry about what it actually is and what can be done about it. Hang in there- I will pray that you're well enough to get out soon and that the doctors can figure out what the actual problem is and how to treat it. Take care!!
Lisa0 -
Ricklisa42 said:You're almost out of there!
Hi Rick,
I'm so glad to hear it's not cancer, but I know you have the worry about what it actually is and what can be done about it. Hang in there- I will pray that you're well enough to get out soon and that the doctors can figure out what the actual problem is and how to treat it. Take care!!
Lisa
I hope you feel better soon there is no place like home
michelle0 -
You have the right attitude
Its hard to bear these things we have happening to us. I mostly pray for peace of mind because I never know what tomorrow will bring.
I love your comment about paying attention to your poo. LOL that was great. Its so true
God bless and go home soon
Betty Jo0 -
Dearest RickBettyJoM said:You have the right attitude
Its hard to bear these things we have happening to us. I mostly pray for peace of mind because I never know what tomorrow will bring.
I love your comment about paying attention to your poo. LOL that was great. Its so true
God bless and go home soon
Betty Jo
your story is a strange one for sure Rick....wow it must just be all so hard to absorb.
I hope they get you up and running quickly
don't you even think about leaving the CANCER forum
mags0 -
That's great it's notTMac52 said:Get well soon Rick.
My prayers include you my brother.
Tom
That's great it's not cancer. It's been a few days now have they figured out yet what is going on, or are they just waiting to see if the antibiotics are doing their job. Hopefully they're working and your getting better!! Leena0
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