Pleomorphic Liposarcoma Metastasis

beckster99
beckster99 Member Posts: 1
in Sarcoma #1
My husband is 40 years old. He was diagnosed in 2008 with pleomorphic Liposarcoma. He has had several surgeries, radation and chemo. He currently has metastasis to the lungs, liver and ribs.

I am looking for anyone else out there that is dealing with liposarcoma metastasis or has dealt with. I am aware that my husband's prognosis is not great but would like to talk to anyone that has had to deal with this type.

Thank you.

Comments

  • mdoherty5
    mdoherty5 Member Posts: 2
    #2
    My boyfriend
    I am so sorry to hear of your husbands condition, my heart and prayers go out to him and you. My boyfriend found a large tumor in his upper right chest last August and has surgery to remove a very large pleomorphic Liposarcoma tumor. He then went through radiation, the tumor was gone and the mri looked good. We were told that if it came back a likely place may be in the spot of the first tumor or in the lungs. Early March he thought that he had a chest cold but really the sarcoma had metastasis to his lungs, he was in severe pain. The option now is for chemotherapy and right away. What have you learned about chemotherapy treatment and sarcoma?
  • mdoherty5
    mdoherty5 Member Posts: 2
    #3
    mdoherty5 said:

    My boyfriend
    I am so sorry to hear of your husbands condition, my heart and prayers go out to him and you. My boyfriend found a large tumor in his upper right chest last August and has surgery to remove a very large pleomorphic Liposarcoma tumor. He then went through radiation, the tumor was gone and the mri looked good. We were told that if it came back a likely place may be in the spot of the first tumor or in the lungs. Early March he thought that he had a chest cold but really the sarcoma had metastasis to his lungs, he was in severe pain. The option now is for chemotherapy and right away. What have you learned about chemotherapy treatment and sarcoma?

    Chemotherapy for Pleomorphic Liposarcoma metastasis to lungs
    I would love to hear from anyone that has had experience with liposarcoma that has matastasis to lungs and treatment. Thank you and keep the hope and faith.
  • DeniceH
    DeniceH Member Posts: 11
    #4
    mdoherty5 said:

    Chemotherapy for Pleomorphic Liposarcoma metastasis to lungs
    I would love to hear from anyone that has had experience with liposarcoma that has matastasis to lungs and treatment. Thank you and keep the hope and faith.

    I had a pleomorphic
    I had a pleomorphic liposarcoma removed a few years ago and have been diligently watched by my oncologist for matastasis into the lungs, as that's the favorite place for this type of cancer to go. So far it has not matastisized.

    I have always heard that, in treatment of the tumors themselves anyway, chemo is useless. I do not know what treatment is best for when that happens though. I would recommend making sure you consult with an oncologist who has a lot of experience with these types of tumors because they are really rare and the treatment is crucial.

    Good luck to you and your boyfriend. Please keep me updated on how he, and you, are doing!
  • DeniceH
    DeniceH Member Posts: 11
    #5
    Beckster, please keep us in
    Beckster, please keep us in the loop about how your husband is doing. Healing positive thoughts are on their way to him and you.

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