Newbie in need of support

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  • lec2011
    lec2011 Member Posts: 14
    #22
    warriormum said:

    Thanks everyone
    Your words of support and kind thoughts mean so much to me. Being follicular cancer already showing vascular invasion I will definately be having the RAI...no doubt about that anymore! I'm trying to stay positive, but find my mind wandering at night when it's dark and quiet, that's when I feel alone and frankly terrified.

    Hi Warriormum,
    I am going
    Hi Warriormum,

    I am going through the same exact situation and they gave me the 20-30 percentage as well. I have not been diagnosed and I go to the doctor again tomorrow. I am scared and people tell me I am negative as well. I am not not I am actually pretty happy but I feel there is something going on just like you did. I just don't know what. Your post allows me to know I am not the only one in the world feeling this way.
  • warriormum
    warriormum Member Posts: 20
    #23
    lec2011 said:

    Hi Warriormum,
    I am going
    Hi Warriormum,

    I am going through the same exact situation and they gave me the 20-30 percentage as well. I have not been diagnosed and I go to the doctor again tomorrow. I am scared and people tell me I am negative as well. I am not not I am actually pretty happy but I feel there is something going on just like you did. I just don't know what. Your post allows me to know I am not the only one in the world feeling this way.

    Hi lec
    Lec, thanks for your post, I'm glad that posting about my own situation has helped you in some way. I think people are so quick to discount your own intuition, afterall it's your body, surely you know it the best? I'm still cross to be honest that my diagnosis dragged on for 4 months. I found the lump back before last Christmas and although I was referred for diagnostics straight away there was never any hurry because Thyroid nodules are so common in women I guess they all assumed I would be a benign nodule as well. Let us know how you go Lec.

    Well, my surgery is this afternoon, hoping recovery will be good again.
  • nasher
    nasher Member Posts: 505 Member
    #24
    warriormum said:

    Hi lec
    Lec, thanks for your post, I'm glad that posting about my own situation has helped you in some way. I think people are so quick to discount your own intuition, afterall it's your body, surely you know it the best? I'm still cross to be honest that my diagnosis dragged on for 4 months. I found the lump back before last Christmas and although I was referred for diagnostics straight away there was never any hurry because Thyroid nodules are so common in women I guess they all assumed I would be a benign nodule as well. Let us know how you go Lec.

    Well, my surgery is this afternoon, hoping recovery will be good again.

    its the wait and see approach
    Well...

    Talking with a lot of doctors I have found out that most will push the wait and see approach cause most thyroid goiters go away normally.

    For myself, the enlarged thyroid was found Dec 5 2009 had to wait till Jan 12 2010 (came back inconclusive)

    Due to the size of the goiter and the fact it was making it hard for me to breathe they finally agreed to take out 1/2 of it Feb 22 2010 (80 days). One week later they found cancer and then the next week the rest of my thyroid was removed.

    its not that they are common in men or women its that thyroid issues are normaly taken nice and slow and wait and see.

    Thyroid cancer dose not have large support groups like breast cancer and the like dose. Most doctors conceder it an easy cancer so again they don’t stress on it.

    I remember back in September-October 2009 I knew there was something wrong with me but back then I didn’t even know about thyroid cancer or even much about the thyroid.

    @ Lec2011 - Yes a lot of people will say you are being negative. You know your own body and you know there is something wrong.

    Remember you need to take charge and let the doctors know you want it checked now and want to review your labs and ask thousands of questions… I honestly wish I remembered the questions I asked so I would be able to post them here to help

    Please let us know how things go

    Craig
  • warriormum
    warriormum Member Posts: 20
    #25
    nasher said:

    its the wait and see approach
    Well...

    Talking with a lot of doctors I have found out that most will push the wait and see approach cause most thyroid goiters go away normally.

    For myself, the enlarged thyroid was found Dec 5 2009 had to wait till Jan 12 2010 (came back inconclusive)

    Due to the size of the goiter and the fact it was making it hard for me to breathe they finally agreed to take out 1/2 of it Feb 22 2010 (80 days). One week later they found cancer and then the next week the rest of my thyroid was removed.

    its not that they are common in men or women its that thyroid issues are normaly taken nice and slow and wait and see.

    Thyroid cancer dose not have large support groups like breast cancer and the like dose. Most doctors conceder it an easy cancer so again they don’t stress on it.

    I remember back in September-October 2009 I knew there was something wrong with me but back then I didn’t even know about thyroid cancer or even much about the thyroid.

    @ Lec2011 - Yes a lot of people will say you are being negative. You know your own body and you know there is something wrong.

    Remember you need to take charge and let the doctors know you want it checked now and want to review your labs and ask thousands of questions… I honestly wish I remembered the questions I asked so I would be able to post them here to help

    Please let us know how things go

    Craig

    Surgery recovery
    Well this second surgery has really knocked me for six. 3 days post op I still have terrible nausea which I'm praying is just residual anaesthetic effects and not a reaction to the Thyroxine I've started on. I also have tingling around my mouth and in my hands and feet, and have started taking calcium for this. A much tougher recovery than I had anticipated, not sure I'll be able to go back to work as soon as I'd hoped too.
  • Baldy
    Baldy Member Posts: 243
    #26
    warriormum said:

    Surgery recovery
    Well this second surgery has really knocked me for six. 3 days post op I still have terrible nausea which I'm praying is just residual anaesthetic effects and not a reaction to the Thyroxine I've started on. I also have tingling around my mouth and in my hands and feet, and have started taking calcium for this. A much tougher recovery than I had anticipated, not sure I'll be able to go back to work as soon as I'd hoped too.

    Hang in there Catherine!

    Just take it easy and take care of yourself. Don't worry about anything else.

    Alan
  • nasher
    nasher Member Posts: 505 Member
    #27
    warriormum said:

    Surgery recovery
    Well this second surgery has really knocked me for six. 3 days post op I still have terrible nausea which I'm praying is just residual anaesthetic effects and not a reaction to the Thyroxine I've started on. I also have tingling around my mouth and in my hands and feet, and have started taking calcium for this. A much tougher recovery than I had anticipated, not sure I'll be able to go back to work as soon as I'd hoped too.

    well first thing you can take off most the worries for thyroxine... your not going to be alergic to thyroid meds like this cause its the same type your thyroid produces...

    as far as the tingling and such... did they take any of your parathryroids when they took your thyroid out???

    if they put you on calcium hopefully they also put you on vitimin D. the calcium and vitimin D are for the fact that the surgery probaly put your parathyroid glands in shock they will probably start working again in a few days.

    definatly talk to the doctor about this and get copies of your bloodwork to determine what your issues are.

    ask questions and demand answers...

    good luck and keep us informed

    Craig
  • warriormum
    warriormum Member Posts: 20
    #28
    nasher said:

    well first thing you can take off most the worries for thyroxine... your not going to be alergic to thyroid meds like this cause its the same type your thyroid produces...

    as far as the tingling and such... did they take any of your parathryroids when they took your thyroid out???

    if they put you on calcium hopefully they also put you on vitimin D. the calcium and vitimin D are for the fact that the surgery probaly put your parathyroid glands in shock they will probably start working again in a few days.

    definatly talk to the doctor about this and get copies of your bloodwork to determine what your issues are.

    ask questions and demand answers...

    good luck and keep us informed

    Craig

    Thanks
    Thanks Alan, feeling slightly better today. Craig I will see the surgeon in 4 days and will ask re the parathyroids, assuming its just shock/disruption.
  • amorriso
    amorriso Member Posts: 185
    #29
    warriormum said:

    Thanks
    Thanks Alan, feeling slightly better today. Craig I will see the surgeon in 4 days and will ask re the parathyroids, assuming its just shock/disruption.

    How are you doing
    Hi there: Just wondering how you are doing. Hoping things are progressing well. Do keep in touch.

    Andree
  • warriormum
    warriormum Member Posts: 20
    #30
    amorriso said:

    How are you doing
    Hi there: Just wondering how you are doing. Hoping things are progressing well. Do keep in touch.

    Andree

    Update
    Thanks for prompting me to update Andree! Am doing ok, though very, very tired which I guess is to be expected only 4 weeks out of surgery. I'm a little frustrated at the moment waiting to hear from the nuclear medicine people as my surgeon told me to expect my RAI approx 6 weeks after surgery, which is only in 2 weeks time and I've not heard a thing. More waiting I guess.
  • amorriso
    amorriso Member Posts: 185
    #31
    warriormum said:

    Update
    Thanks for prompting me to update Andree! Am doing ok, though very, very tired which I guess is to be expected only 4 weeks out of surgery. I'm a little frustrated at the moment waiting to hear from the nuclear medicine people as my surgeon told me to expect my RAI approx 6 weeks after surgery, which is only in 2 weeks time and I've not heard a thing. More waiting I guess.

    Hang in there
    Glad to hear from you. I remember being really tired too after my TT. Did they start you on any thyroxine? I didnt start mine till after the RAI - I think that's why I was so tired.

    I had a second surgery in March to remove lymph nodes - oddly though it was a much more extensive surgery I recovered faster. Even went swimming after 2 weeks! I've just come home from doing my second RAI - glad its over and my scans initially look good.

    Keep on top of your nuclear medicene people and your surgeon. I found I had to be quite pushy and demanding to make sure treatment was done on time. I actually had one doctor tell me not to worry - its slow growing so I had time. I dont think he'll be telling anyone that again soon.

    I did the thyrogen injections for this second round - expensive yes - but it made a huge difference in how I felt.

    Hope you get treated soon and well.

    Keep in touch - lots of us there to help you.

    Andree

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