Folfox Again
I start back on folfox next wednesday. I'm going to enjoy all the cold drinks I can until then. Also the weight loss thing might be a blessing in disguise. I've gained 35 lbs in the last year and wouldn't mind if I got rid of most of it.
Deb
Comments
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Hi Deb
Deb,
I'm sorry to hear the news wasn't as good as it might be. I'm glad your pelvic mass has improved.
I did six treatments of Folfox before my doc chnaged things up with Avastin. I didn't have the same intensity of side effects you had, but I can sympathize with you about the "hot and cold tingles", buzzing fingers, and the need for naps. I have a love/hate relationship with the pump too. It makes getting cleaned up a drag, but I can't be mad since it saved my life. I guess we're "frenemies" :-)
I hope this round is easier and that it yields amazing results for you!
Take care,
Ray0 -
ask your onc about canadian clinical trial 4 neuropathy
tried something similar myself.
I hope your folfoxed not folfocked.
Hugs.
Pete
ps so much can be done about all the side effects just search folfox here0 -
This comment has been removed by the Moderatorpete43lost_at_sea said:ask your onc about canadian clinical trial 4 neuropathy
tried something similar myself.
I hope your folfoxed not folfocked.
Hugs.
Pete
ps so much can be done about all the side effects just search folfox here0 -
hi gracieunknown said:This comment has been removed by the Moderator
what team work.
You know the practical issue in the chemo wards that i picked up.
Oh the cal mag adds an hour to the folfox infusion. So its a resource staff issue.
Sad in a sense that our suffering side effects is such a low priority. You had to insist. You got your cal mag.
I did not get it. I did it myself with supplements and then got my naturopath on board. Interesting i suspect simultaneous infusion maybe more effective. Remember the irony last folfox treatment the protocol was adopted here. Ah the joy of timing.
Bit like 5fu better xeloda oral.
Hugs.
Pete0 -
Cal/Mag in Canadaunknown said:This comment has been removed by the Moderator
Hi: First I've heard of adding cal/mag to the oxiliplatin chemo. I'm starting it May 17 and so will definitely ask my oncologist to add it. However, I have to pay big bucks for the oxiliplatin as it is not covered in Ontario. Might be the same with the cal/mag.
Cheryl0 -
This comment has been removed by the Moderatorwestie66 said:Cal/Mag in Canada
Hi: First I've heard of adding cal/mag to the oxiliplatin chemo. I'm starting it May 17 and so will definitely ask my oncologist to add it. However, I have to pay big bucks for the oxiliplatin as it is not covered in Ontario. Might be the same with the cal/mag.
Cheryl0 -
Cal/Magunknown said:This comment has been removed by the Moderator
HI: Thanks, Graci. I can only ask but suspect here in Ontario it will cost. I'm sure not looking forward to the treatment as it sounds as everyone has had a rough go of it. The cisplatin/gemiticibine was really not a problem for me but the oxiliplatin/irenotican and 5FU sound just awful. I live alone and have a dog to walk so hope I may be one of the rare ones who don't get those horrible symptoms. Not sure what I'd do as I don't have family here. Can only try I guess.
Cheryl0
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