Yervoy
Comments
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she'll be one of the first
This drug was just approved by the FDA on March 25th 2011 so unless someone was part of a test group your mom will be one of the first.
The article I read says this drug is used to extend the life of those diagnosed with metastatic melanoma. If this is the case I'll assume your mother's melanoma is advanced and I wish you and your entire family the best. There is always that crazy 'call-it-what-you-want' instance where someone defies the odds. I sincerely hope your mom is one of those stories.0 -
Yervoy treatmentZod66 said:she'll be one of the first
This drug was just approved by the FDA on March 25th 2011 so unless someone was part of a test group your mom will be one of the first.
The article I read says this drug is used to extend the life of those diagnosed with metastatic melanoma. If this is the case I'll assume your mother's melanoma is advanced and I wish you and your entire family the best. There is always that crazy 'call-it-what-you-want' instance where someone defies the odds. I sincerely hope your mom is one of those stories.
Yes, this is the newest FDA drug approved for advanced metastatic melanoma. My mom had her first infusion last week (April 26, 2011). She lives in Florida so I do not get to see her often. However, she said that she really does not have any side effects from the first treatment. She will receive one treatment per month for a total of 4 months at a cost of $132,000 to her insurance company.
I will be participating in the Aim at Melanoma Aim for a Cure Walk in Dallas this weekend in her honor.0 -
Yervoy
Yes. My 38 year old daughter had her first injection a week ago Wednesday. It just got approved by the FDA in March and is for the treatment of metastazied melanoma. My daughter is a patient at MD Anderson Hospital in Houston. It is our understanding this is a series of four injections with three weeks between each injection. It is suppose to boost the immune cells so that no new tumors grow so the tumors that are here can be treated. Google yervoy and you will find the information.0 -
yervoytxhamilton5 said:Yervoy treatment
Yes, this is the newest FDA drug approved for advanced metastatic melanoma. My mom had her first infusion last week (April 26, 2011). She lives in Florida so I do not get to see her often. However, she said that she really does not have any side effects from the first treatment. She will receive one treatment per month for a total of 4 months at a cost of $132,000 to her insurance company.
I will be participating in the Aim at Melanoma Aim for a Cure Walk in Dallas this weekend in her honor.
My daughter had her first injection same day and too has had no side effects from it yet, however, the P.A. we talk with hedges around the idea that it is just the first injection and we have to see how she reacts as she gets each one. So being around this long enough sounds like side effects are premature to judge. I hope our family members don't have too much trouble with this drug. It's so new they don't know how it affects each individual as melanoma is the hardest of cancers to treat for that reason. It doesn't react the same way to everyone. So each treatment plan has to be customized to that individual. No treatment plan is ever the same. Good luck to your mom. We wish her the best.0 -
Yervoy side effectKathy Strauss said:Yervoy
Yes. My 38 year old daughter had her first injection a week ago Wednesday. It just got approved by the FDA in March and is for the treatment of metastazied melanoma. My daughter is a patient at MD Anderson Hospital in Houston. It is our understanding this is a series of four injections with three weeks between each injection. It is suppose to boost the immune cells so that no new tumors grow so the tumors that are here can be treated. Google yervoy and you will find the information.
So far the side effect that my mom is experiencing is itchiness. How about your daughter? I wish her and your family the best too. Hoping that this new drug can be the answer to our prayers for all melanoma patients!0 -
yervoytxhamilton5 said:Yervoy treatment
Yes, this is the newest FDA drug approved for advanced metastatic melanoma. My mom had her first infusion last week (April 26, 2011). She lives in Florida so I do not get to see her often. However, she said that she really does not have any side effects from the first treatment. She will receive one treatment per month for a total of 4 months at a cost of $132,000 to her insurance company.
I will be participating in the Aim at Melanoma Aim for a Cure Walk in Dallas this weekend in her honor.
My daughter is debating this drug. Is your mom doing ok on it so far?0 -
Yervoytxhamilton5 said:Yervoy side effect
So far the side effect that my mom is experiencing is itchiness. How about your daughter? I wish her and your family the best too. Hoping that this new drug can be the answer to our prayers for all melanoma patients!
My mom had her second Yervoy infusion last Tuesday. By Friday she had fever, chills, nausea and diarrhea and itchiness. She is much better today (Monday). What symptoms are others experiencing so far?0 -
Yervoy
Hello, My name is Andrea, I am 39 years old and I have just been recently diagnosed with Stage 4 Melanoma and was wondering how your family members are doing with this treatment. This is a treatment I am considering. I would really appreciate any feedback you can give me.0 -
Yervoy TreatmentFowlera1 said:Yervoy
Hello, My name is Andrea, I am 39 years old and I have just been recently diagnosed with Stage 4 Melanoma and was wondering how your family members are doing with this treatment. This is a treatment I am considering. I would really appreciate any feedback you can give me.
I was diagnosed as Stage IV in June 2011 (I'm 31 years old), as I had 2 brain spots, then found out I had 2 spots in my right Lung & 1 spot in my Liver.
I had a few problems with my head/eyes after surgery, and took almost 2 months to correct including the Gamma Knife surgery, and I just finally started treatment on Sept. 2nd 2011.
My 1st treatment is the YERVOY. Had my 1st injection, no side effects besides super itchy skin on my head.
I go for my 2nd injection Sept. 23rd, hoping I don't get any bad side effects, can't remember if there are any good ones (that prove it may be working).
Just super scared, all us young people, it's a scary beast we are facing and with 2 young kids (ages 2 & 6), I need to fight this **** as good as I can.0 -
Yervoymomof2kids said:Yervoy Treatment
I was diagnosed as Stage IV in June 2011 (I'm 31 years old), as I had 2 brain spots, then found out I had 2 spots in my right Lung & 1 spot in my Liver.
I had a few problems with my head/eyes after surgery, and took almost 2 months to correct including the Gamma Knife surgery, and I just finally started treatment on Sept. 2nd 2011.
My 1st treatment is the YERVOY. Had my 1st injection, no side effects besides super itchy skin on my head.
I go for my 2nd injection Sept. 23rd, hoping I don't get any bad side effects, can't remember if there are any good ones (that prove it may be working).
Just super scared, all us young people, it's a scary beast we are facing and with 2 young kids (ages 2 & 6), I need to fight this **** as good as I can.
I am on my second treatment of yervoy and i am wondering how u did with the treatments i also have two kids they are older 17 and 14 i am a single mom. i am scared of the out come. I like u have no chioce but to fight with all i have and pray that God will see me through this horrible cancer. I am Stage 4 Metistatic Melenoma i have a tumor in my right lung and one in my leg and my back bone, vertibra.0 -
Yervoymomof2kids said:Yervoy Treatment
I was diagnosed as Stage IV in June 2011 (I'm 31 years old), as I had 2 brain spots, then found out I had 2 spots in my right Lung & 1 spot in my Liver.
I had a few problems with my head/eyes after surgery, and took almost 2 months to correct including the Gamma Knife surgery, and I just finally started treatment on Sept. 2nd 2011.
My 1st treatment is the YERVOY. Had my 1st injection, no side effects besides super itchy skin on my head.
I go for my 2nd injection Sept. 23rd, hoping I don't get any bad side effects, can't remember if there are any good ones (that prove it may be working).
Just super scared, all us young people, it's a scary beast we are facing and with 2 young kids (ages 2 & 6), I need to fight this **** as good as I can.
I am on my second treatment of yervoy and i am wondering how u did with the treatments i also have two kids they are older 17 and 14 i am a single mom. i am scared of the out come. I like u have no chioce but to fight with all i have and pray that God will see me through this horrible cancer. I am Stage 4 Metistatic Melenoma i have a tumor in my right lung and one in my leg and my back bone, vertibra.0 -
Yervoymomof2kids said:Yervoy Treatment
I was diagnosed as Stage IV in June 2011 (I'm 31 years old), as I had 2 brain spots, then found out I had 2 spots in my right Lung & 1 spot in my Liver.
I had a few problems with my head/eyes after surgery, and took almost 2 months to correct including the Gamma Knife surgery, and I just finally started treatment on Sept. 2nd 2011.
My 1st treatment is the YERVOY. Had my 1st injection, no side effects besides super itchy skin on my head.
I go for my 2nd injection Sept. 23rd, hoping I don't get any bad side effects, can't remember if there are any good ones (that prove it may be working).
Just super scared, all us young people, it's a scary beast we are facing and with 2 young kids (ages 2 & 6), I need to fight this **** as good as I can.
I am on my second treatment of yervoy and i am wondering how u did with the treatments i also have two kids they are older 17 and 14 i am a single mom. i am scared of the out come. I like u have no chioce but to fight with all i have and pray that God will see me through this horrible cancer. I am Stage 4 Metistatic Melenoma i have a tumor in my right lung and one in my leg and my back bone, vertibra.0 -
Yervoymomof2kids said:Yervoy Treatment
I was diagnosed as Stage IV in June 2011 (I'm 31 years old), as I had 2 brain spots, then found out I had 2 spots in my right Lung & 1 spot in my Liver.
I had a few problems with my head/eyes after surgery, and took almost 2 months to correct including the Gamma Knife surgery, and I just finally started treatment on Sept. 2nd 2011.
My 1st treatment is the YERVOY. Had my 1st injection, no side effects besides super itchy skin on my head.
I go for my 2nd injection Sept. 23rd, hoping I don't get any bad side effects, can't remember if there are any good ones (that prove it may be working).
Just super scared, all us young people, it's a scary beast we are facing and with 2 young kids (ages 2 & 6), I need to fight this **** as good as I can.
I am on my second treatment of yervoy and i am wondering how u did with the treatments i also have two kids they are older 17 and 14 i am a single mom. i am scared of the out come. I like u have no chioce but to fight with all i have and pray that God will see me through this horrible cancer. I am Stage 4 Metistatic Melenoma i have a tumor in my right lung and one in my leg and my back bone, vertibra.0 -
Yervoytxhamilton5 said:Yervoy
My mom had her second Yervoy infusion last Tuesday. By Friday she had fever, chills, nausea and diarrhea and itchiness. She is much better today (Monday). What symptoms are others experiencing so far?
Hi Hamilton,
I will begin my treatment with Yervoy very soon, I would like to know how your mom still reacting with Yervoy. Thank You for sharing the info. is very useful for everyone specially the one's are giving the battle with Cancer. God Bless your mom and all your family!!0 -
Yervoy side effectstxhamilton5 said:Yervoy side effect
So far the side effect that my mom is experiencing is itchiness. How about your daughter? I wish her and your family the best too. Hoping that this new drug can be the answer to our prayers for all melanoma patients!
I am a stage 3c metastic melonama patient I am participating in a clinical trial of yervoy. I saw your posting and wondered how your doctor treated the itching? I had my first infusion of yervoy 3 weeks ago. I told my doctor of the side effect and she put me on a steroid called Prednisone. Now she is telling me I can't have my next scheduled infusion until I am no longer taking the prednisone. This is very frustrating because this could potentially delay my treatment for another month.0 -
Yervoykp4mpr said:Yervoy
Hi Hamilton,
I will begin my treatment with Yervoy very soon, I would like to know how your mom still reacting with Yervoy. Thank You for sharing the info. is very useful for everyone specially the one's are giving the battle with Cancer. God Bless your mom and all your family!!
I believe my mom was treated with just benedryl for her itching. She has had some response to the Yervoy. We are still holding out hope that the next scans in January will show more response and shrinkage of various metastatic tumors.
I have seen others on another support site who needed Prednisone to get through their Yervoy treatments for various side effects. I believe one board is the Melanoma International site. I hope you were able to complete your treatments by now.
Prayers to all who are fighting melanoma! May the new year find even more promising treatments!0 -
YervoyLittlered43 said:Yervoy
I am on my second treatment of yervoy and i am wondering how u did with the treatments i also have two kids they are older 17 and 14 i am a single mom. i am scared of the out come. I like u have no chioce but to fight with all i have and pray that God will see me through this horrible cancer. I am Stage 4 Metistatic Melenoma i have a tumor in my right lung and one in my leg and my back bone, vertibra.
My husband is going to start his treatments next week, his also spread to his lungs, liver & spine. how are things going?0 -
yervoy for your mom
I STARTED YERVOY MID-MAY. FIRST TREATMENT GAVE ME A RASH FOR ABOUT 1 1/2 WEEKS. THEN IT WENT AWAY AND I FELT GOOD UNTIL THE THIRD TREATMENT. THAT ONE, A WEEK AGO, MADE ME NEASEAOUS AND GAVE ME MILD DIARRHEA. THAT'S WHERE I AM NOW. HOW'S YOUR MOM DOING? btw, I'M 67 YEAR OLD FEMALE0 -
yes i have been given Yervoy
i am part of a clinical trial and my chemo treatments are Ipilimumab (Yervoy)
May 7th, 2012 was my first chemo
i am currently at 6 of 8 scheduled treatments, it accumulates after the 5th dose
after they cut out all of my lymph nodes, every CT scan to date has been NEG
for the itching they ordered me a cream (triamcinolone 0.1% cream)
0
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