Here we go again!

2»

Comments

  • sunnyaz
    sunnyaz Member Posts: 582
    chase2585 said:

    julie. thanks for the reply.
    julie. thanks for the reply. I actually see an endocrinologist who is supposed to be top notch. I'm sorry, but I dont know what an EMT is. My endo is the one who said the nodes right now were too small and I shouldnt remove them just yet. He wants me to wait for another ultrasound 4 months down the road (Aug). I actually like my surgean. He is a specialist in thyroid surgery.

    This cancer confuses me. So this doesnt mean my cancer is progressing. My surgean did tell me when I had my first surgery that is is very common that thyroid cancer keeps popping up in the nodes.

    I also had early stage breast cancer 8 years ago but I have to tell you this thyroid cancer is so frustrating.

    I like your suggestions about diet . I am going to look into the diet and will buy the reservatrol. The only thing that worries me is that they tell you to stay away from alcohol when you have breast cancer.

    You can get it in pill form. You don't have to drink red wine to get it. In fact I don't drink at all. I am allergic to most alcoholic beverages. I like to freeze red grapes and eat them as a snack.

    An ENT (Ear Nose and Throat) doctor is what I thought you said was watching the nodes. Do you have an Oncologist (cancer specialist)? If not I would have your Endocrinologist refer you to one for a second opinion.

    I know this is frustrating. My Oncologist told me that this cancer rarely kills but can get very annoying.

    Hang in there!

    Julie-SunnyAZ
  • BellsAngel69
    BellsAngel69 Member Posts: 104 Member
    I'm on my 5th surgery
    I have Hurthle cell and had a TT in 2004. Since then I've had a mestasis to my left hip bone in 2008, my liver in 2010, just last year, and now it's back in the same damn spot in my hip, and I'll have my 5th surgery next Wednesday. This cancer is relentless. It seems either you are lucky and never have a reocurrence or are unlucky and have to deal with them for the rest of your life.

    It sucks, plain and simple, but I know it could be so much worse, so I feel lucky in a way. It's just so much deeper than people think. My HCC is asymptomatic, except for the bitchiness, lol, you'd never know to look at me on the outside. It's inside that betrays me.
  • sunnyaz
    sunnyaz Member Posts: 582

    I'm on my 5th surgery
    I have Hurthle cell and had a TT in 2004. Since then I've had a mestasis to my left hip bone in 2008, my liver in 2010, just last year, and now it's back in the same damn spot in my hip, and I'll have my 5th surgery next Wednesday. This cancer is relentless. It seems either you are lucky and never have a reocurrence or are unlucky and have to deal with them for the rest of your life.

    It sucks, plain and simple, but I know it could be so much worse, so I feel lucky in a way. It's just so much deeper than people think. My HCC is asymptomatic, except for the bitchiness, lol, you'd never know to look at me on the outside. It's inside that betrays me.

    5th Surgery
    I am so sorry to hear this. You are such a trooper though. Never give up fighting and keep your positive attitude. I know how it feels to look totally normal but inside you are in so much turmoil. Nobody else understands but us cancer patients. It's so difficult for those that still have a thyroid and never had to deal with this to understand what we go through day in and day out, year after year wondering if we will have recurrence. The constant tired and exhausted feeling. I am like you, I feel lucky in a way. I haven't had lung metastasis thus far. I have a thirteen year old daughter that depends on me and my goal is to raise her before/if the cancer gets to the point I can't fight it anymore.

    You are in my thoughts and prayers for your surgery on Wednesday.

    Blessings and healthy healing wishes,
    Julie-SunnyAZ
  • BellsAngel69
    BellsAngel69 Member Posts: 104 Member
    sunnyaz said:

    5th Surgery
    I am so sorry to hear this. You are such a trooper though. Never give up fighting and keep your positive attitude. I know how it feels to look totally normal but inside you are in so much turmoil. Nobody else understands but us cancer patients. It's so difficult for those that still have a thyroid and never had to deal with this to understand what we go through day in and day out, year after year wondering if we will have recurrence. The constant tired and exhausted feeling. I am like you, I feel lucky in a way. I haven't had lung metastasis thus far. I have a thirteen year old daughter that depends on me and my goal is to raise her before/if the cancer gets to the point I can't fight it anymore.

    You are in my thoughts and prayers for your surgery on Wednesday.

    Blessings and healthy healing wishes,
    Julie-SunnyAZ

    Thanks Julie
    I feel the same way. I have a 20 year old daughter and 17 year old son and a husband who all depend on me and believe I'll always be there for them, so I plan on it. Thing is, sometimes they don't understand and aren't there for me when I need it. I guess it's hard to be objective when you're on the outside looking in.
  • sunnyaz
    sunnyaz Member Posts: 582

    Thanks Julie
    I feel the same way. I have a 20 year old daughter and 17 year old son and a husband who all depend on me and believe I'll always be there for them, so I plan on it. Thing is, sometimes they don't understand and aren't there for me when I need it. I guess it's hard to be objective when you're on the outside looking in.

    They just don't get it
    They just don't get it. It seems like they become numb to it because we are so strong that they don't need to worry about us. My husband and daughter are the same way. When they get older or have a similar experience they will realize what we went through and how tough we were. Hopefully it will be a good example to them. My mom has suffered with MS since I was born. I remember feeling sad for her when she was sick but I was also selfish in the aspect that I felt deprived of a mom that could not do the things other moms could do with their daughters. She did the best she could and it's only now that I realize her pain and her strength. My friends moms did things with us that I wished my mom could do. She is still alive and really tough for her age. I think she is the oldest living MS patient to date. I love her dearly and I truly believe that if it weren't for her dedication to fighting and keeping a positive attitude I wouldn't be the person I am today.
    Blessings,
    Julie-SunnyAZ
  • BellsAngel69
    BellsAngel69 Member Posts: 104 Member
    sunnyaz said:

    They just don't get it
    They just don't get it. It seems like they become numb to it because we are so strong that they don't need to worry about us. My husband and daughter are the same way. When they get older or have a similar experience they will realize what we went through and how tough we were. Hopefully it will be a good example to them. My mom has suffered with MS since I was born. I remember feeling sad for her when she was sick but I was also selfish in the aspect that I felt deprived of a mom that could not do the things other moms could do with their daughters. She did the best she could and it's only now that I realize her pain and her strength. My friends moms did things with us that I wished my mom could do. She is still alive and really tough for her age. I think she is the oldest living MS patient to date. I love her dearly and I truly believe that if it weren't for her dedication to fighting and keeping a positive attitude I wouldn't be the person I am today.
    Blessings,
    Julie-SunnyAZ

    Gonna quote again
    Papa Roach.

    What doesn't kill me only, will make me stronger in the end, in the end!!

    You're mom sounds like an amazing woman. She took the hand she was dealt and made the best of it, and is still prevailing. MS is very debilitating, and from what you've said, no matter her disability, she raised you to be another amazing woman. Reflecting back, you became a stronger person because you had to face adversity. Even though you didn't see it back then, you were learning many lessons about life, the good and bad.

    And I'll close with another quote from The Stones:

    You can't always get what you want, but if you try sometimes, you get what you need.

    Need and want are so totally contradictory, aren't they?
  • sunnyaz
    sunnyaz Member Posts: 582

    Gonna quote again
    Papa Roach.

    What doesn't kill me only, will make me stronger in the end, in the end!!

    You're mom sounds like an amazing woman. She took the hand she was dealt and made the best of it, and is still prevailing. MS is very debilitating, and from what you've said, no matter her disability, she raised you to be another amazing woman. Reflecting back, you became a stronger person because you had to face adversity. Even though you didn't see it back then, you were learning many lessons about life, the good and bad.

    And I'll close with another quote from The Stones:

    You can't always get what you want, but if you try sometimes, you get what you need.

    Need and want are so totally contradictory, aren't they?

    Love your quotes
    Music is so inspirational. Your quotes are wonderful. Sometimes we just have to face the fact that it's not our decision as to what happens to us. There are some things in life that just happen for God's reasons. We may not understand at the moment, but in time things start to make sense. It's a "Jagged Little Pill" but it's still good medicine.
    Julie-SunnyAZ
  • BellsAngel69
    BellsAngel69 Member Posts: 104 Member
    sunnyaz said:

    Love your quotes
    Music is so inspirational. Your quotes are wonderful. Sometimes we just have to face the fact that it's not our decision as to what happens to us. There are some things in life that just happen for God's reasons. We may not understand at the moment, but in time things start to make sense. It's a "Jagged Little Pill" but it's still good medicine.
    Julie-SunnyAZ

    Music is my solace
    Through all of this, has been my only reliable, steady source of comfort. I'm not saying my family and friends haven't been there for me, it's just sometimes no matter how much they try they don't totally understand and never will. Being physically there for someone isn't the same as being there mentally. With music, I can put the headphones on, crank up the volume, and lose myself. Music will comfort my mind and soul and make me heal the sores. It's just the way it is.