Stopping clinical trial :(

kellyh33
kellyh33 Member Posts: 287
in Ovarian Cancer #1
Mom got her ct scan results today. The news was not good, stopped the clinicial trial drug, she did 13 of 15 treatments.
She started on Doxil immediately. Her spirits are so low, this is now the third chemo regimen she is on. She became resistant to carbo after 7 treatments and now the trial drug is now longer working.
I really hope she keeps her hair this time.
Kelly

Comments

  • Mwee
    Mwee Member Posts: 1,338
    #2
    Doxil
    Sorry your is having such a tough time. I can tell you some things about Doxil... it does not cause hair loss, but it can cause other side effects. Usually, they will use ice packs on your feet and hands while you are being infused to restrict blood flow to those areas. It's best to ice at home in five minute intervals for about five days afterward in five minute intervals several times a day. (the doxil website will probably give you some good tips) My ONC told me not to drink citrus and to avoid hot water... cool baths or showers. What your Mom may experience are more skin related issues. Let's hope it kicks butt!
    (((HUGS))) to you both, Maria
  • carolenk
    carolenk Member Posts: 907 Member
    #3
    Mwee said:

    Doxil
    Sorry your is having such a tough time. I can tell you some things about Doxil... it does not cause hair loss, but it can cause other side effects. Usually, they will use ice packs on your feet and hands while you are being infused to restrict blood flow to those areas. It's best to ice at home in five minute intervals for about five days afterward in five minute intervals several times a day. (the doxil website will probably give you some good tips) My ONC told me not to drink citrus and to avoid hot water... cool baths or showers. What your Mom may experience are more skin related issues. Let's hope it kicks butt!
    (((HUGS))) to you both, Maria

    Skin creams
    Sorry to hear your mom has not made progress as hoped for. Will the oncologist allow her to take a few weeks off before going on Doxil? It sounds like she needs a break.

    I have not used Doxil but I do want to say something about skin creams. There are hidden hormones like progesterone and estrogen (from plant sources) in skin care products in the US--and the ingredients are NOT listed on the label as phytohormones. Please be careful what your mom uses for skin care as I think the problem is worldwide. Be especially careful of any "anti-aging" products as the hormones do make skin look younger.

    When I was working, I ran a hormone profile for a man who was depressed and the results showed that he was sky high in progesterone--the lab asked for a sample of the sun screen product that he was using and found it to have hidden progesterone!

    Maybe someone can direct you to a place where you can get good products. I get mine from a compounding pharmacy so I know they are pure.
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #4
    Dear Kelly
    Hi Kelly,

    So been there.....still am there I guess....it is very discouraging to watch Moms do absolutely everything they are asked and then....boom....the news day.....frankly, I hate news day, and would never go again if Mom didn't insist.....Your mom should keep her hair with the doxil...and make sure you get a prescription for "magic Mouthwash"......Take care of yourself in all of this.......Your Mom sounds like she's quite resilient..and she'll adjust in her own way....Take care.....Sincerely, Fang Fish
  • kellyh33
    kellyh33 Member Posts: 287
    #5
    Mom
    Finally a picture of my Mom.
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #6
    kellyh33 said:

    Mom
    Finally a picture of my Mom.

    mom will not lose her hair
    from what i hear you keep your hair with doxil. I hope this drug will kick butt...val
  • mopar
    mopar Member Posts: 1,972 Member
    #7
    SENDING PRAYERS, KELLY
    For your Mom, you and everyone around you.
    Monika
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #8
    kellyh33 said:

    Mom
    Finally a picture of my Mom.

    Beautiful !
    I find it interesting that everyone I have encountered on this path is beautiful on the outside and usually on the the inside too.
    Colleen

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