tumeric (again....sorry)
Janie
Comments
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As someone told me
Breathe.
Folfox is no fun, but it does not have to be terrible.
Pete posted his Turmeric thread in two places. The best discussion was here:
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=20569
As Gaelen points out, the study was in-vitro, meaning in a test tube/petrie dish. What happens in a more complex system like a human is still a question.
My recommendation? Discuss it with your doctor and follow his advice.
Blake0 -
Janie:
When George started Folfox our oncologist said NO supplements, nothing more than a multi vitamin. They have reasons for saying this. Many people have heard the same thing, no starting supplements.
That being said I'm sure someone will be on to contradict me. In any event, George was diagnosed advanced Stage IV in March, 09 and he is still here kicking and driving me nuts.
As far as Folfox goes, George handled it very well and worked full time throughout. Many, many if not most do continue working. Is it tough, well heck yes, its chemo!
Take care - Tina0 -
This comment has been removed by the Moderatorgeotina said:Janie:
When George started Folfox our oncologist said NO supplements, nothing more than a multi vitamin. They have reasons for saying this. Many people have heard the same thing, no starting supplements.
That being said I'm sure someone will be on to contradict me. In any event, George was diagnosed advanced Stage IV in March, 09 and he is still here kicking and driving me nuts.
As far as Folfox goes, George handled it very well and worked full time throughout. Many, many if not most do continue working. Is it tough, well heck yes, its chemo!
Take care - Tina0 -
Oh Gracie:unknown said:This comment has been removed by the Moderator
Some can and some can't work. I will say when George walked in the door his day was done, I took over doing everything household wise. We are in a condo so there was no outside work to be done. Maybe that helped, I don't know. Working or not, you just do what is right for you, there is no right or wrong. No kids in the house anymore so that definitely helps, no running around to do kid stuff so he got a solid 8 to 10 hours sleep.
If someone wants to work they should be encouraged to do so. Many jobs simply can't be done while on chemo, manual labor, utility companies, stuff like that.
Some are totally wiped out by chemo so they need to listen to their body and just do what is right for them. Fighting their cancer takes precedent over everything else. Of course, turning over the remote control was quite difficult, I endured more sports shows to last a lifetime!
Hugs - Tina0 -
It take 5,000 mg of Vitamingeotina said:Oh Gracie:
Some can and some can't work. I will say when George walked in the door his day was done, I took over doing everything household wise. We are in a condo so there was no outside work to be done. Maybe that helped, I don't know. Working or not, you just do what is right for you, there is no right or wrong. No kids in the house anymore so that definitely helps, no running around to do kid stuff so he got a solid 8 to 10 hours sleep.
If someone wants to work they should be encouraged to do so. Many jobs simply can't be done while on chemo, manual labor, utility companies, stuff like that.
Some are totally wiped out by chemo so they need to listen to their body and just do what is right for them. Fighting their cancer takes precedent over everything else. Of course, turning over the remote control was quite difficult, I endured more sports shows to last a lifetime!
Hugs - Tina
It take 5,000 mg of Vitamin D3 and make sure I take it when I take my 1000 mg of Calcium. I also take 2000 mg of Tumeric. 1000 in the morning and 1000 in the afternoon. My ONC knows that I am taking them.
What I take is on my profile.0 -
i take turmeric while folfoxNana b said:It take 5,000 mg of Vitamin
It take 5,000 mg of Vitamin D3 and make sure I take it when I take my 1000 mg of Calcium. I also take 2000 mg of Tumeric. 1000 in the morning and 1000 in the afternoon. My ONC knows that I am taking them.
What I take is on my profile.
i
take 4 x 3800g spaced evenly over the day after food.
Goodluck pete0 -
This comment has been removed by the Moderatorpete43lost_at_sea said:i take turmeric while folfox
i
take 4 x 3800g spaced evenly over the day after food.
Goodluck pete0 -
Cancer is fought on many fronts.
The battle for Cancer is fought on many fronts. Diet is one of the fronts. Vitamin supplements is another front. Mental Health is another front. Family and Friend's support is another front. Exercise is another front. All of these areas makes one healthy.
I would not change my diet dramaticaly while on chemo. I would ease in to any change. I changed my diet a little while on FolFox. I am on my final treatment of Folfox. I took vitamin supplements and if Tumeric gives you a better chance, add it a little at a time to your diet. Any drastic changes and you will not be able to tell if this is a side effect of the Chemo or the added supplement.
One of the side effects of taking Omega 3s is it throws off one's INR. (Blood Thin) Omega 3s, 6s, and 12s in balance help control pain. Cinnamon helps brain function, vitamin D helps one from getting viruses, but it also messes with the INR. Blood thinners may be needed to control clotting after surgery.
FolFox has many side effects. You may get some, and you may get all of them. Headaches, diarrhea, nausea, and cold sensitivity to name a few. These are controllable and you will have to find a drug combination that works for you. I found Ginger helps me with the nausea. I drink Gatoraid to ease the headaches. The cold burned my hands after a couple of treatments. I use kevlar oven gloves (from Target) to get things out of the chill box and the oven. lol Taste will change. I perceive taste different then I did before chemo.
We can give people ideas on what to expect and what worked for us individually to treat an issue(s). We are not doctors and one needs to consult their doctor to see if the idea(s) make sense for their situation. I would also talk to a good pharmacist before I took any drugs. My pharmacist will tell me that this drug for that symptom does not make any sense. My pharmacist will also tell me side effects of supplements and the different drugs I am taking.
Our thoughts and prayers will be with you! It is a finite time that one is on chemo. No matter how bad it gets, remember that it is a short time in one's life that they are on Chemo. Keep Social and Keep active! This is my second round and it was easier then my first time. I hid away socially my first time and emotionally that was tough.
Best Always, mike0 -
online
I get my turmeric/curcumin online from Puritan's Pride website. The type I get is a 1,000 mg. capsule & it also has a bit of black pepper right in the capsule (supposedly research shows that the pepper helps it absorb better). Personally, I would never want to just take the powder because I don't like the taste. I know of some people who do sprinkle the powder on foods, but I prefer to just take it in capsule form.
My onc ok'd me taking it (along with quite a few other supplements) as long as it stopped 24 hrs before getting chemo and I didn't start the supplements up again until 24 hrs after getting my chemo pump unhooked. All oncs are different & it seems (from what I hear on this board) that most oncs are not okay with their patients taking supplements while on chemo. This is because they don't know how they are all going to interact. I personally was impressed with some studies talking about how turmeric can actually help certain chemos to work better. There are some studies showing that it can hinder certain chemos, therefore some people and oncs have applied that as a blanket rule that turmeric can hinder the effects of the chemo, when it actually reacts differently with different chemos. Please don't just take my advice, though- do your own research and talk w/ your onc. As I like to do though, if your onc says "no" to something- press further to find out why- do they know facts about interactions, or are they just unsure. It does help to find out. I've printed out studies and brought them in to my onc on several occasions about various things. On some of them, my onc knew about the info I brought in and gave me his thoughts and on other things, he went "hmmmm" and found the information interesting and informative.
Take care,
Lisa0 -
This comment has been removed by the Moderatorlisa42 said:online
I get my turmeric/curcumin online from Puritan's Pride website. The type I get is a 1,000 mg. capsule & it also has a bit of black pepper right in the capsule (supposedly research shows that the pepper helps it absorb better). Personally, I would never want to just take the powder because I don't like the taste. I know of some people who do sprinkle the powder on foods, but I prefer to just take it in capsule form.
My onc ok'd me taking it (along with quite a few other supplements) as long as it stopped 24 hrs before getting chemo and I didn't start the supplements up again until 24 hrs after getting my chemo pump unhooked. All oncs are different & it seems (from what I hear on this board) that most oncs are not okay with their patients taking supplements while on chemo. This is because they don't know how they are all going to interact. I personally was impressed with some studies talking about how turmeric can actually help certain chemos to work better. There are some studies showing that it can hinder certain chemos, therefore some people and oncs have applied that as a blanket rule that turmeric can hinder the effects of the chemo, when it actually reacts differently with different chemos. Please don't just take my advice, though- do your own research and talk w/ your onc. As I like to do though, if your onc says "no" to something- press further to find out why- do they know facts about interactions, or are they just unsure. It does help to find out. I've printed out studies and brought them in to my onc on several occasions about various things. On some of them, my onc knew about the info I brought in and gave me his thoughts and on other things, he went "hmmmm" and found the information interesting and informative.
Take care,
Lisa0 -
Turmeric
I have been at MD Anderson for almost 5 years with stage 4 ovarian. I have been in the phase 1 group for more than 2 years, and my oncologist has recommended me taking turmeric alongside all the different chemo regimens I have been on, and I have been on many. A typical response from many oncologists who are not as up to date on alternative therapies is to avoid them, the reality is that turmeric may be a very good natural supplement to take. I have not had any side effects, and I take large doses. I take 5-6 grams throughout the day. MD Anderson and some other cancer centers have tested doses up to 8 grams a day, and side efects are usually not noted. The type of turmeric the department of head alternative medicine at MD Anderson recommended to me is turmeric with biperine (black pepper), as it greatly increases absorption.
FYI, cancer rates of people living in India are significantly lower than Americans for every type of cancer. This can probably best be explained by their native diet, which includes large doses of curcumin (or turmeric) in the form of curry dishes, and a vegetarian, plant-based diet. Hope this helps.0 -
India and USmixy said:Turmeric
I have been at MD Anderson for almost 5 years with stage 4 ovarian. I have been in the phase 1 group for more than 2 years, and my oncologist has recommended me taking turmeric alongside all the different chemo regimens I have been on, and I have been on many. A typical response from many oncologists who are not as up to date on alternative therapies is to avoid them, the reality is that turmeric may be a very good natural supplement to take. I have not had any side effects, and I take large doses. I take 5-6 grams throughout the day. MD Anderson and some other cancer centers have tested doses up to 8 grams a day, and side efects are usually not noted. The type of turmeric the department of head alternative medicine at MD Anderson recommended to me is turmeric with biperine (black pepper), as it greatly increases absorption.
FYI, cancer rates of people living in India are significantly lower than Americans for every type of cancer. This can probably best be explained by their native diet, which includes large doses of curcumin (or turmeric) in the form of curry dishes, and a vegetarian, plant-based diet. Hope this helps.
Comparing cancer rates in the two is apples to meatloaf.
Cancer is primarily a disease of age. The older a country's population, the higher its rate of cancer.
In India, half the population is under 30.
The average American is 12 years older than the average Indian.
Of course we have higher rates of cancer.
Here are the vitals:
Age structure United States:
0-14 years: 20.2%
15–64 years: 67%
65 years and over: 12.8%
Median Age: 37
Age structure India:
0–14 years: 30.8%
15–64 years: 64.3%
65+ years: 4.9%
Median Age: 250
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