CA125 is 2099! Time for a new CT/PET and a change in chemo drugs. :(

Ro10 said:

Linda I am so sorry that your cancer marker continues to go up
How disappointing for you. You are giving it such a good fight. Maybe the next drug will stabilize everything. You remain in my prayers. Wishing you good news on your CT/PET with no new progression of the cancer.

Glad you are feeling so good. Being able to keep active certainly helps. Hope some of your spring bulbs are popping up to bring you joy. Glad you are able to work out in the garden on good days. I am anxious to get back to my gardens. MY neighbor sent pictures of daffodils blooming around the gardens. I can't wait to see them.

Glad you continue to enjoy life. The eating, sleeping and pooping normal with no pills is wonderful for you. I find I need pills for the pooping and sleeping. My appetite has never been bad, it seems I keep gaining weight every time I go back, and I don't like that. Even when I have nausea I can eat. Sometimes I think the eating helps the nausea.

Keep that positive attitude, but yet feel you can come here and be angry, cry, or show your frustration over what's happening. You are such a fighter and warrior that we all admire. However we know you are human and have bad days, too. We want to be here for you. Take care and Celebrate each day. Enjoy those wonderful grandchildren. In peace and caring.

Ugh! So disappointed for you
Linda,

I'm sorry about the rise in your CA-125 and certainly hope that the CT/PET scans show that the cancer has NOT progressed. My hope for you is that despite your lack of response to the drugs you have tried so far, Gemzar or another choice finally does kick in. There are still drugs to try.

You still seem to get so much joy out of life: meals with friends, sleepovers with your grandchildren, a private vacation with your son, working in your garden and watching the gorgeous results...I am happy for you and for the fact that life seems to go on at a normal--and joyful--pace for you.

Nevertheless, I worry that you spend so much time taking care of US. Yes, you give us hope; and I love how positive you have always been. Yet, we are here for YOU, too. I hope that you can feel free to share your dark days and know that we will respond with affection and comfort.

Jill

Linda:
DO NOT EVER GIVE UP!!!! Continue to grab all the life you can!!!!!Thank God you and your hubby are enjoying a good measure of life. You have a great oncologist who I am positive will come up with a great new battle plan to keep this beast at bay or even get rid of it completely. We never know. Do we? I have a friend who was diagnosed with leukemia stage 4 and was given 11 months to live--she then started the battle to kill the beast. She refused conventional treatment and sought the help of a herbalist. She is now 16 years in remission and there are times when she feels that she is slipping out of remission and goes back to the herbalist and is given more herbs and within a week or two she back on track. I have been to see the herbalist and she did give me some herbs that really helped me with post op and chemo feelings. I don't think I would have opted out of chemo. but I have heard of many advanced cases that this woman helped. I was having serious stomach problems and I went to her and she told me that I had bacteria in the stomach so she gave me some herbs, but of course I did not put all my trust in her, so after a week or so I went to my gastro doc Paid him $600. for him to tell me the same thing that the herbalist told me so I didn't bother to use the medicine from the Doc, instead I used the hers. If you ever need to see this humble herbalist, I would be more than happy to meet with you and take you to her. what ever medicine she prescribes, if she dosen't have them in stock she recommends you to a pharmacy. Sorry Linda I just wanted to talk and talk, but you can still tell me what you think. Prayers and best wishes to all of you!!

HellieC said:

Linda - what a blow - but you are such a fighter
I was so sorry to hear that your CA 125 had decided to steam ahead, despite your current regimen. What a disappointment this must be to you. But despite your own challenges, you always include something in your posts to help others.
You are a beacon of positivity and I am sure that everyone who reads your posts will be pulling for you and hoping that you find another treatment to halt this beast! As has been said before - never give up!
You are in my thoughts and prayers
Helen

We Love You
We love you Linda. You are a jewel and I am sorry you have to go through this. But I am glad you feel well. We are with you through this. You are always in my prayers. Your great attitude always puts my bad days to shame. Also, I have heard that avastin does not have the same effect on the CA 125 but have not seen any articles on it. I think that is new territory. You send us all sunshine in the midst of a storm. We love you.

Diane

Hi Linda
Sorry about the number rising but I don't put too much stock in that number. A lot of things can cause it to rise, and it's just not reliable for all women. Even if it was reliable for you at some point, maybe it isn't now. My mom's number, before any treatment, was only a 58 yet her cancer was very advanced. Her nos. dropped into the 20's.. and you know how that story ends. Her PA told us she had a patient with a CA-125 of 23,000.. yes that's thousands, not hundreds.. and this person was doing well. The fact that you feel so good and have no SE leads me to believe that the CA is just a fluke... Anyhow, hang in there and we'll think good thoughts.
Hugs,
Cindy

TiggersDoBounce said:

Linda
Keeping you close in thoughts and prayers....

Laurie

This stinks
Linda,
I wanted to say something stronger but this is a respectable site. I am really sorry that you are facing this. We are here for you with love , prayers and support. You will fight this and beat it .I am glad that you are feeling good. That is definitely a positive. This war is still raging and you will win. I am sure of it!!!!
SUE

norma2 said:

{{{Linda}}}} Warrior
I am so glad you are feeling well even with the high numbers. Sending good vibes and prayers for you.

Linda,
Like others here, I am having trouble finding words. I am sending you lots of cyberhugs, {{{{{{{LINDA}}}}}}}}, thoughts and prayers.

Mary Ann

lociee said:

CA125
I'm speechless - didn't know the CA125 could go up that high! And, the fact that you're still feeling great. You're a wonder of nature! WOW!
I raise my glass to you,
Mia

Linda
Linda,
Please feel our hugs, and prayers wrapped around you in comfort and support.
I was so sorry to read about your rise in CA125, but was pleased that you are feeling good.
That is wonderful.

You have a good medical team, and I am sure they will circle back together and come up with a brilliant change of treatment plan.

I know that this is a scare, but you are strong, and you will fight this!

Please keep us posted.

In deep caring,
Cindy

Linda
Thinking of you...sending thoughts and prayers..

Laurie

SO SORRY TO HEAR, BUT ...

Linda,

What stands out as significant to me in your latest post, despite what is objectively "bad news" is how well you are FEELING.
This can only be a good sign of a hearty and resilient constitution, and perhaps numbers are not as significant as doctors assume; their entire profession hinges on "objective data," but subjective elements (your mood, energy, capacity to function, appetite, zest for life) may be more important in signalling how well you really are.

If anyone can weather a "statistics scare," YOU can.

And we're all here to support you in any way WE can!

Hugs,
Rosey