Glioblastoma Multiforme IV

smelhart1
smelhart1 Member Posts: 2
in Brain Cancer #1
My sister in law was diagnosed with Glioblastome Multiforme IV in her temporal lobe 20 months ago. It is inoperable and not curable. How do we know when she has had her limit on chemo? She is in the hospital right now due to her platelets and white blood cell count being too low. The platelets were a 4 last week after they gave her platelets they are now a 30. We rushed her to the hospital because we found her on the floor of her bedroom yesterday. I do not understand why her oncologist did not admit her last week. We have just become her caretaker and we are playing catch up at this point. Any info would be greatly appreciated. It is like pulling teeth getting anything out of the oncologist. I am on the hipaa, her power of attorney and heatlh care adovcate. Just very frustrated at this point and I just want to do what is right for her.

Comments

  • MAJW
    MAJW Member Posts: 2,510 Member
    #2
    My best friend..
    Just passed last week from this...she survived for 2 1/2 years...the end of chemo is up to the patient..her decision...and hers alone... Ending chemo does improve, somewhat their quality of life for a while...all treatment for glioblastoma multiforme stage IV is purely palliative...I've helped care for my best friend almost full time for the past two months...God bless you for helping care for your sister in law...
    I am so very sorry all of you are going through this...
  • smelhart1
    smelhart1 Member Posts: 2
    #3
    MAJW said:

    My best friend..
    Just passed last week from this...she survived for 2 1/2 years...the end of chemo is up to the patient..her decision...and hers alone... Ending chemo does improve, somewhat their quality of life for a while...all treatment for glioblastoma multiforme stage IV is purely palliative...I've helped care for my best friend almost full time for the past two months...God bless you for helping care for your sister in law...
    I am so very sorry all of you are going through this...

    brain cancer
    We are doing all we can. We still pray for a miracle to keep her with us. She was in the hospital last week due to all her blood counts being low. We have changed to a new oncologist that is within the same group,but she seems to give us more info and is very helpful. She even called me at work to explain what her blood counts mean. Unfortunately, my sister in laws platelets keep droping and they are at a 14 now. Giving her platelets 3 times last week did not help. The temador they had her on is just too strong for her. We go on the 18th to see what our new treatment options are. I just want the best for her. I cannot help but worry. She is a sister to me and I love her very much.

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