Good day turned to %^$#*&
Comments
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Lou
Don't give up so soon. Even if you do have mets to the liver it can be treated with surgery.
I'm stage IV and have a great oncologist. This last week we talked about whether or not to do mop-up chemo if my scans were clean. He actually liked the idea of waiting for a tumor to appear, because then they could **** whether or not the chemo was working (he also said that would not be his recommendation if I were stage 3).
What part of the country are you in? It sounds like you could use a new medical team, and I am sure there is someone here who could recommend a better cancer hospital.0 -
%^$#*& so sorry about your news
dear lou,
damit you made it through folfox and this.
now i am scared.
like blake said you still have options. I am desparately sipping my chinese herbal tea as we speak.
if you are into meditation , now might be a helpful time, try and keep the peace if possible and don't let our persistent troublesome guest rattle your soul.
hugs,
pete0 -
sorry loupete43lost_at_sea said:%^$#*& so sorry about your news
dear lou,
damit you made it through folfox and this.
now i am scared.
like blake said you still have options. I am desparately sipping my chinese herbal tea as we speak.
if you are into meditation , now might be a helpful time, try and keep the peace if possible and don't let our persistent troublesome guest rattle your soul.
hugs,
pete
for this news.i too am back stage 4 found out in feb2011.i kept my surgen and went with a whole new team of oncs.it is actually a cancer center(no not of America).dont give up the hope yet...Godbless...johnnybegood0 -
Lou
First off ... congratulations for making it through the full 12 treatments. I know how tough it was for you and I am proud that you were able to stick it out.
I am so sorry to hear this lastest from you and will put out some good vibes and hope that it is not as bad as it might feel right now. I can really relate to how you feel about having this happen after going through the FOLFOX. They discontiued mine due to my reactions and now I am dealing with a recurrence that happened during and in spite of the miserable FOLFOX. I know it must feel like it was all for nothing. That's what I thought too.
Hang in there and try to take it just one step at a time. I will definitely be hoping for better news. HUGS to you Lou.0 -
Hey Lou:
That doctor actually said it may be liver and not colon? I can't believe what I am reading. He put you through Folfox and it may have been for nothing because he made a mistake? Can we say "malpractice".
Now don't give up so soon. Get yourself on the phone and go down to Karmanos, its only a couple hours from you, and if memory serves you are Grand Rapids, and get some exact and direct answers. Our onc has done well by us and works with teams from Karmanos so if we run into a wall, Karmanos will be our next stop.
Take care - Tina0 -
I would like some body gives me an 80 % of chances of nonLori-S said:Lou
First off ... congratulations for making it through the full 12 treatments. I know how tough it was for you and I am proud that you were able to stick it out.
I am so sorry to hear this lastest from you and will put out some good vibes and hope that it is not as bad as it might feel right now. I can really relate to how you feel about having this happen after going through the FOLFOX. They discontiued mine due to my reactions and now I am dealing with a recurrence that happened during and in spite of the miserable FOLFOX. I know it must feel like it was all for nothing. That's what I thought too.
Hang in there and try to take it just one step at a time. I will definitely be hoping for better news. HUGS to you Lou.
reoccurrence so odds are excellent !
Wish you the best I'm sure you I'll be ok I will pray for that!
Rest, get cool and tomorrow you will see the bright side of odds !
Hugs dear Lou !0 -
Yeah on 12!!tootsie1 said:See someone else
If I were you, I'd see another oncologist before giving up!
*hugs*
Gail
I had cancer in my liver and I didn't have pain on my right side. After my liver resection, my ONC told me the pain would be in my shoulder and back and keep an eye on it. So, it isn't cancer until it is proven! Keep smiling and send positive energy to your side. Hugs@0 -
update
After doing this post I received a phone call from my family doctor. He is the one that ordered a colonoscopy when my ONC wouldn't and they found my colon reoccurrence. Anyway, he did his lab thing and found that my chemo is messing up my thyroid so bad that I need thyroid medication every day because my thyroid isn't telling my body to do its functions. He also said that this could be causing the build up of fluid in my abdomen because the organs are leaking fluid waiting for chemical orders from my thyroid to do their jobs. Anyway I start the medication tomorrow and it will take two to six weeks for the medication to right the problem. It may still be the case that I have Liver Cancer and Thursday will tell but I am feeling a little better about my odds. ONC specialists:( give me a family doctor any time. To answer some questions I do live in Grand Rapids Michigan and besides Lacks Cancer Center we have one of the best Onc hospitals and research Centers in Devos Hospital. But as always it is a money thing. My insurance requires Lacks and will not authorize Devos (way more expensive) so I am sort of a prisoner and can't leave Lacks. I had hopes today of never seeing Lacks again thus my disapointment! I'm not out of the woods with the possibility of cancer but it seems less certain. A thing called hope has popped up and welcome to it! hugs Lou0 -
LouLOUSWIFT said:update
After doing this post I received a phone call from my family doctor. He is the one that ordered a colonoscopy when my ONC wouldn't and they found my colon reoccurrence. Anyway, he did his lab thing and found that my chemo is messing up my thyroid so bad that I need thyroid medication every day because my thyroid isn't telling my body to do its functions. He also said that this could be causing the build up of fluid in my abdomen because the organs are leaking fluid waiting for chemical orders from my thyroid to do their jobs. Anyway I start the medication tomorrow and it will take two to six weeks for the medication to right the problem. It may still be the case that I have Liver Cancer and Thursday will tell but I am feeling a little better about my odds. ONC specialists:( give me a family doctor any time. To answer some questions I do live in Grand Rapids Michigan and besides Lacks Cancer Center we have one of the best Onc hospitals and research Centers in Devos Hospital. But as always it is a money thing. My insurance requires Lacks and will not authorize Devos (way more expensive) so I am sort of a prisoner and can't leave Lacks. I had hopes today of never seeing Lacks again thus my disapointment! I'm not out of the woods with the possibility of cancer but it seems less certain. A thing called hope has popped up and welcome to it! hugs Lou
Hope is a good thing. I'm glad that there could be other reasons for what you're experiencing. Hang in there. I will be waiting to hear that the thyroid meds help the situation.0 -
LouLOUSWIFT said:update
After doing this post I received a phone call from my family doctor. He is the one that ordered a colonoscopy when my ONC wouldn't and they found my colon reoccurrence. Anyway, he did his lab thing and found that my chemo is messing up my thyroid so bad that I need thyroid medication every day because my thyroid isn't telling my body to do its functions. He also said that this could be causing the build up of fluid in my abdomen because the organs are leaking fluid waiting for chemical orders from my thyroid to do their jobs. Anyway I start the medication tomorrow and it will take two to six weeks for the medication to right the problem. It may still be the case that I have Liver Cancer and Thursday will tell but I am feeling a little better about my odds. ONC specialists:( give me a family doctor any time. To answer some questions I do live in Grand Rapids Michigan and besides Lacks Cancer Center we have one of the best Onc hospitals and research Centers in Devos Hospital. But as always it is a money thing. My insurance requires Lacks and will not authorize Devos (way more expensive) so I am sort of a prisoner and can't leave Lacks. I had hopes today of never seeing Lacks again thus my disapointment! I'm not out of the woods with the possibility of cancer but it seems less certain. A thing called hope has popped up and welcome to it! hugs Lou
Thank goodness for the family doctor!!!! I'm glad the news isn't as dire as you thought. And please remember they can do liver resections, so if it is the liver, I'm putting out every good vibe and thought that I can, that if it is your liver that it is quite able to get a resection.
Hugs at you Lou.
Winter Marie0 -
WOW!LOUSWIFT said:update
After doing this post I received a phone call from my family doctor. He is the one that ordered a colonoscopy when my ONC wouldn't and they found my colon reoccurrence. Anyway, he did his lab thing and found that my chemo is messing up my thyroid so bad that I need thyroid medication every day because my thyroid isn't telling my body to do its functions. He also said that this could be causing the build up of fluid in my abdomen because the organs are leaking fluid waiting for chemical orders from my thyroid to do their jobs. Anyway I start the medication tomorrow and it will take two to six weeks for the medication to right the problem. It may still be the case that I have Liver Cancer and Thursday will tell but I am feeling a little better about my odds. ONC specialists:( give me a family doctor any time. To answer some questions I do live in Grand Rapids Michigan and besides Lacks Cancer Center we have one of the best Onc hospitals and research Centers in Devos Hospital. But as always it is a money thing. My insurance requires Lacks and will not authorize Devos (way more expensive) so I am sort of a prisoner and can't leave Lacks. I had hopes today of never seeing Lacks again thus my disapointment! I'm not out of the woods with the possibility of cancer but it seems less certain. A thing called hope has popped up and welcome to it! hugs Lou
It sounds like you have a great family doctor!0 -
Hey LouAnneCan said:WOW!
It sounds like you have a great family doctor!
Yes...HOPE is a wonderful thing. I will be sending good vibes your way and HOPE that all this turns around in your favor. Take care my friend.
Jennie0 -
Hope is our mutual friendLOUSWIFT said:update
After doing this post I received a phone call from my family doctor. He is the one that ordered a colonoscopy when my ONC wouldn't and they found my colon reoccurrence. Anyway, he did his lab thing and found that my chemo is messing up my thyroid so bad that I need thyroid medication every day because my thyroid isn't telling my body to do its functions. He also said that this could be causing the build up of fluid in my abdomen because the organs are leaking fluid waiting for chemical orders from my thyroid to do their jobs. Anyway I start the medication tomorrow and it will take two to six weeks for the medication to right the problem. It may still be the case that I have Liver Cancer and Thursday will tell but I am feeling a little better about my odds. ONC specialists:( give me a family doctor any time. To answer some questions I do live in Grand Rapids Michigan and besides Lacks Cancer Center we have one of the best Onc hospitals and research Centers in Devos Hospital. But as always it is a money thing. My insurance requires Lacks and will not authorize Devos (way more expensive) so I am sort of a prisoner and can't leave Lacks. I had hopes today of never seeing Lacks again thus my disapointment! I'm not out of the woods with the possibility of cancer but it seems less certain. A thing called hope has popped up and welcome to it! hugs Lou
he turns up when we need him most.
I hope he stays by your side.
Pete0 -
Good to hear Lou!LOUSWIFT said:update
After doing this post I received a phone call from my family doctor. He is the one that ordered a colonoscopy when my ONC wouldn't and they found my colon reoccurrence. Anyway, he did his lab thing and found that my chemo is messing up my thyroid so bad that I need thyroid medication every day because my thyroid isn't telling my body to do its functions. He also said that this could be causing the build up of fluid in my abdomen because the organs are leaking fluid waiting for chemical orders from my thyroid to do their jobs. Anyway I start the medication tomorrow and it will take two to six weeks for the medication to right the problem. It may still be the case that I have Liver Cancer and Thursday will tell but I am feeling a little better about my odds. ONC specialists:( give me a family doctor any time. To answer some questions I do live in Grand Rapids Michigan and besides Lacks Cancer Center we have one of the best Onc hospitals and research Centers in Devos Hospital. But as always it is a money thing. My insurance requires Lacks and will not authorize Devos (way more expensive) so I am sort of a prisoner and can't leave Lacks. I had hopes today of never seeing Lacks again thus my disapointment! I'm not out of the woods with the possibility of cancer but it seems less certain. A thing called hope has popped up and welcome to it! hugs Lou
Best of luck to you and yours!
Blake0
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