Here we go again!

sunnyaz said:

Thanks for your responses. Yes, this is a likely possibility. I have made an executive decision for myself. I will not be doing any type of Radiation in the future. I just don't want to risk other types of cancer. I prefer to go under the knife each time it comes back. I am aware that this will mean someday I may not have a neck and it could go into my head, lungs and anywhere else. I think I am at the point that I am ready to face my mortality. I will check out the 411 group on Facebook and thanks for the information.
Julie-SunnyAZ

sunnyaz said:

Hi miladyx
I am 43 years old. I was 41 when I was diagnosed and I have a B-RAF mutation gene (found after the second surgery). I was only stage 1 when I had my Thyroidectomy so they said that my prognosis was good. Endocrinologist didn't do RAI due to that fact. Then had met's to the Lymphs only five months later, then my first RAI. ENT missed the target nodes and had to have another right neck dissection this past December with second RAI on the 4th of February last month. New enlarged nodes are in section 2 where I had my second surgery.
Julie-SunnyAZ

sunnyaz said:

Thanks Shawna
I am so glad to hear that they will be able to do the surgery! I hope and pray this will be the last for you.

I haven't lost hope so much as I am accepting my mortality. Cancer has taken 100% of my family so far. I mean the ones that have passed so far. No other disease has had such an impact on our family. Seems that RAI just isn't working for me because of the B-RAF. I will have to take this one surgery and one day at a time from here on out.

Let me know when your surgery will be.

Blessings,
SunnyAZ

sunnyaz said:

Thanks Diane
I really appreciate hearing from you. Yes, I am a survivor and I will do what I can to stay with my family as long as I can within reasonable means. I am not willing to do the "Mask" i.e. the external beam radiation. I am horribly claustrophobic and the procedure alone will kill me.
Blessings,
Julie-SunnyAZ

sunnyaz said:

Hi Chase
Sorry you are so glum today. Your cancer is not incurable. My nodes came back negative MUCH to my surprise. Nodes do not take up iodine as well as other tissue. The good news is that anything that might have gone to the lung area did take up RAI and prevented a much more difficult situation. I would get in with a Cancer specialist. ENT doctors don't know cancer. My second surgery was botched by an ENT. My Endocrinologist basically gave him the finger and sent me to a specialist in Endocrinology/Oncology who also does surgery. Great specialists are out there and they can help you. Travel if you must to find the best. I would be willing to bet you won't have to go too far.

Yep, the general consensus is out on the "it's only thyroid cancer" ****. Most of us on this site agree that others would not want to be in our shoes. I don't know many lung, kidney, brain, breast, prostate or other cancer survivors that have to take a pill to survive on a daily basis. The thyroid is such an important gland and controls so much of our body. The absence of it can cause such physical and mental distress.

I go through rough times too, when I just feel defeated by my cancer. I also have a B-RAF mutation gene so that is very discouraging at times. I simply decided that I will never stop fighting. The cancer "may" take me some day, but I see it as a stale mate if it does. It can't survive inside of me if decide not to host it anymore.

Recently I did some research on line to find out how I can be proactive in stopping and/or preventing my own cancer. I found a few things that were very interesting.
1. Cancer hates oxygen. Can't survive in an aerobic environment. Increase your oxygen intake every minute of every day. Breath deeply and often. I saw one site that recommended drinking Hydrogen Peroxide (1 tsp) to eight ounces of water (very diluted) three times per day on an empty stomach. The Hydrogen Peroxide (food grade) increases the amount of oxygen in your cells which helps fight cancer. I use Hydrogen Peroxide mixed in water to rinse and whiten my teeth at night after brushing. I don't rinse the remaining out of my mouth, just swish several times and spit it out. I have white on my tongue where the Peroxide remains in small amounts.
2. Eat a more Alkaline diet rather than an Acidic diet. Look on line for foods that are both. If you are eating Alkaline foods your body doesn't have to work as hard to maintain it's pH balance. Higher pH is another technique used in fighting cancer. Cancer hates a high pH environment as much as it hates oxygen.
3. Reservatrol is an ingredient in Red wine, red grapes and some other foods that is cancer fighting. You can even buy it in pill form. One of my patients told me that her mom started reservatrol tablets after her second breast cancer surgery and the cancer never returned. Her doctors weren't very optimistic after her second recurrence, but she swears by reservatrol.
4. Lastly, cleaning the lymphatic system on a regular basis. Sweat, sweat and sweat some more. Many Homeopathic cancer doctors recommend regular use of the Infrared Heat Sauna. You can buy one for anywhere from $700-$5,000 and lower depending on sales. I plan to save up to buy the single person sauna as soon as possible.

I have learned that I must be prepared to try new things, keep an open mind and be positive. Being negative hasn't helped me yet, so I have discarded negatively entirely. Nothing positive ever came out of negativity. So..... chin up, get MAD at the cancer and put on your cancer armor! There is a lot of support here, rely on us, but first and foremost, get in to see an Oncologist/Endocrinologist as soon as possible to get another opinion.

Chase, you are not alone.

Blessings and well wishes for healing and happiness,
Julie-SunnyAZ

sunnyaz said:

Hi Chase
Sorry you are so glum today. Your cancer is not incurable. My nodes came back negative MUCH to my surprise. Nodes do not take up iodine as well as other tissue. The good news is that anything that might have gone to the lung area did take up RAI and prevented a much more difficult situation. I would get in with a Cancer specialist. ENT doctors don't know cancer. My second surgery was botched by an ENT. My Endocrinologist basically gave him the finger and sent me to a specialist in Endocrinology/Oncology who also does surgery. Great specialists are out there and they can help you. Travel if you must to find the best. I would be willing to bet you won't have to go too far.

Yep, the general consensus is out on the "it's only thyroid cancer" ****. Most of us on this site agree that others would not want to be in our shoes. I don't know many lung, kidney, brain, breast, prostate or other cancer survivors that have to take a pill to survive on a daily basis. The thyroid is such an important gland and controls so much of our body. The absence of it can cause such physical and mental distress.

I go through rough times too, when I just feel defeated by my cancer. I also have a B-RAF mutation gene so that is very discouraging at times. I simply decided that I will never stop fighting. The cancer "may" take me some day, but I see it as a stale mate if it does. It can't survive inside of me if decide not to host it anymore.

Recently I did some research on line to find out how I can be proactive in stopping and/or preventing my own cancer. I found a few things that were very interesting.
1. Cancer hates oxygen. Can't survive in an aerobic environment. Increase your oxygen intake every minute of every day. Breath deeply and often. I saw one site that recommended drinking Hydrogen Peroxide (1 tsp) to eight ounces of water (very diluted) three times per day on an empty stomach. The Hydrogen Peroxide (food grade) increases the amount of oxygen in your cells which helps fight cancer. I use Hydrogen Peroxide mixed in water to rinse and whiten my teeth at night after brushing. I don't rinse the remaining out of my mouth, just swish several times and spit it out. I have white on my tongue where the Peroxide remains in small amounts.
2. Eat a more Alkaline diet rather than an Acidic diet. Look on line for foods that are both. If you are eating Alkaline foods your body doesn't have to work as hard to maintain it's pH balance. Higher pH is another technique used in fighting cancer. Cancer hates a high pH environment as much as it hates oxygen.
3. Reservatrol is an ingredient in Red wine, red grapes and some other foods that is cancer fighting. You can even buy it in pill form. One of my patients told me that her mom started reservatrol tablets after her second breast cancer surgery and the cancer never returned. Her doctors weren't very optimistic after her second recurrence, but she swears by reservatrol.
4. Lastly, cleaning the lymphatic system on a regular basis. Sweat, sweat and sweat some more. Many Homeopathic cancer doctors recommend regular use of the Infrared Heat Sauna. You can buy one for anywhere from $700-$5,000 and lower depending on sales. I plan to save up to buy the single person sauna as soon as possible.

I have learned that I must be prepared to try new things, keep an open mind and be positive. Being negative hasn't helped me yet, so I have discarded negatively entirely. Nothing positive ever came out of negativity. So..... chin up, get MAD at the cancer and put on your cancer armor! There is a lot of support here, rely on us, but first and foremost, get in to see an Oncologist/Endocrinologist as soon as possible to get another opinion.

Chase, you are not alone.

Blessings and well wishes for healing and happiness,
Julie-SunnyAZ