Does anyone have painful, tingling bottoms of your feet?
Thanks for your thoughts.
Comments
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chemo-induced neuropathy
I too am diabetic but it is well-controlled and I never had issues with neuropathy until I started chemo (4 dose-dense A/C, the 4 dose-dense Taxol). I am now 8 months out of chemo and the neuropathy in my feet is worse now than when I was getting chemo. I've tried vitamin B-6 as recommended by my oncologist, but that hasn't helped. I do take vicodin for other non-cancer-related pain issues, and that does help the pain and burning. There are other drugs for neuropathy, but I've heard they can cause some nasty side effects.
Hugs, Linda0 -
OMG, yes!!
Everyone thinks I'm crazy. It's my biggest side effect of Arimidex. And it has definite patterns. Whenever I get up after a period of inactivity, I can barely walk. An example, I get up in the morning and hobble to the bathroom, but by the time I walk from the bathroom to the kitchen, it's gone. Sit and have coffee then get up -- there it is again. All day long. I can walk and exercise and do Zumba, but it comes back after every rest period.
I talked to my onc about it. I told her that I had few side effects till I started generic Arimidex. She gave me a month's supply of the non generic so I can see if there's a difference. I'm halfway through, and honestly, I think my feet hurt less. I don't know how much real Arimidex will cost. I can't imagine my insurance is going to be willing to pay for it.
It's really weird and it really hurts BUT I can still do stuff so I feel bad about complaining:)
xoxo
Victoria0 -
I agree with my sisters who has posted regarding thisaisling8 said:OMG, yes!!
Everyone thinks I'm crazy. It's my biggest side effect of Arimidex. And it has definite patterns. Whenever I get up after a period of inactivity, I can barely walk. An example, I get up in the morning and hobble to the bathroom, but by the time I walk from the bathroom to the kitchen, it's gone. Sit and have coffee then get up -- there it is again. All day long. I can walk and exercise and do Zumba, but it comes back after every rest period.
I talked to my onc about it. I told her that I had few side effects till I started generic Arimidex. She gave me a month's supply of the non generic so I can see if there's a difference. I'm halfway through, and honestly, I think my feet hurt less. I don't know how much real Arimidex will cost. I can't imagine my insurance is going to be willing to pay for it.
It's really weird and it really hurts BUT I can still do stuff so I feel bad about complaining:)
xoxo
Victoria
subject ... Chemo induced Neuropathy .. or as I call it, now my life. My bones ache, and when the weather turns a bit cool, my symptoms get problematic. Difficult to walk, after sitting for a while.
While on my dense chemo, the bottom of my feet peeled no stop, and I had blood blisters for months! side efforts of taxotere or taxol, according to my Oncologist.
Strength and Courage ..
Vicki Sam0 -
peelingVickiSam said:I agree with my sisters who has posted regarding this
subject ... Chemo induced Neuropathy .. or as I call it, now my life. My bones ache, and when the weather turns a bit cool, my symptoms get problematic. Difficult to walk, after sitting for a while.
While on my dense chemo, the bottom of my feet peeled no stop, and I had blood blisters for months! side efforts of taxotere or taxol, according to my Oncologist.
Strength and Courage ..
Vicki Sam
Vicki - I had the peeling and blistering on my feet too. That was awful. They are still really red, though. Linda0 -
Yes I dolinpsu said:peeling
Vicki - I had the peeling and blistering on my feet too. That was awful. They are still really red, though. Linda
OMG yes my feet are constantly tingling. Usually it's my left one which is the same side as my cancer. And I get horrible blisters and peeling too. I'm in chemo now, and hope that this will end soon.
Dawne0 -
It sounds like neuropathy.Texasgirl10 said:Yes I do
OMG yes my feet are constantly tingling. Usually it's my left one which is the same side as my cancer. And I get horrible blisters and peeling too. I'm in chemo now, and hope that this will end soon.
Dawne
It sounds like neuropathy. You should ask, because starting some things like B6 can help. neurontin helps but it does have s/e as well as lyrica. usually it goes away after chemo is done.0 -
I developed thecarkris said:It sounds like neuropathy.
It sounds like neuropathy. You should ask, because starting some things like B6 can help. neurontin helps but it does have s/e as well as lyrica. usually it goes away after chemo is done.
I developed the tingling/painful feet after my second DD A/C. It is still there and I will be done with Chemo tomorrow(yay!) It is discouraging to hear that for some it lasts longer than the chemo. I was hoping it would go away once I stopped the chemo! Oh well, just another side effect of the cure!
Be Well,
Dianne0 -
Linda .. Healing ... ugh! Our poor feet.. what I've triedHippiechick58 said:I developed the
I developed the tingling/painful feet after my second DD A/C. It is still there and I will be done with Chemo tomorrow(yay!) It is discouraging to hear that for some it lasts longer than the chemo. I was hoping it would go away once I stopped the chemo! Oh well, just another side effect of the cure!
Be Well,
Dianne
is to keep my feet dry .. cotton socks at home, before going to bed -- I rub on vaseline or aloe vera - put on a fresh pair of socks .. and go to bed. This is repairing my feet a little at a time. Now that I am walking .. my feet are a mess, oh well. I also wear flip flops during the day, when I am out and about so my feet can get air, and have time to heal.
Linda, any other suggestions?
Vicki Sam0 -
Linda .. Healing ... ugh! Our poor feet.. what I've triedHippiechick58 said:I developed the
I developed the tingling/painful feet after my second DD A/C. It is still there and I will be done with Chemo tomorrow(yay!) It is discouraging to hear that for some it lasts longer than the chemo. I was hoping it would go away once I stopped the chemo! Oh well, just another side effect of the cure!
Be Well,
Dianne
is to keep my feet dry .. cotton socks at home, before going to bed -- I rub on vaseline or aloe vera - put on a fresh pair of socks .. and go to bed. This is repairing my feet a little at a time. Now that I am walking .. my feet are a mess, oh well. I also wear flip flops during the day, when I am out and about so my feet can get air, and have time to heal.
Linda, any other suggestions?
Vicki Sam0 -
Linda .. Healing ... ugh! Our poor feet.. what I've triedHippiechick58 said:I developed the
I developed the tingling/painful feet after my second DD A/C. It is still there and I will be done with Chemo tomorrow(yay!) It is discouraging to hear that for some it lasts longer than the chemo. I was hoping it would go away once I stopped the chemo! Oh well, just another side effect of the cure!
Be Well,
Dianne
is to keep my feet dry .. cotton socks at home, before going to bed -- I rub on vaseline or aloe vera - put on a fresh pair of socks .. and go to bed. This is repairing my feet a little at a time. Now that I am walking .. my feet are a mess, oh well. I also wear flip flops during the day, when I am out and about so my feet can get air, and have time to heal.
Linda, any other suggestions?
Vicki Sam0 -
TingliingVickiSam said:Linda .. Healing ... ugh! Our poor feet.. what I've tried
is to keep my feet dry .. cotton socks at home, before going to bed -- I rub on vaseline or aloe vera - put on a fresh pair of socks .. and go to bed. This is repairing my feet a little at a time. Now that I am walking .. my feet are a mess, oh well. I also wear flip flops during the day, when I am out and about so my feet can get air, and have time to heal.
Linda, any other suggestions?
Vicki Sam
I could only do 1 taxol treatment because of the red, peeling, blistering pain in hands and feet. 3 1/2 months into herceptin, and 2 1/2 weeks into tamoxefin I got the tingling down my arms, legs and up my neck and chin. My oncol. doesn't know why this happened, but doesn't think it's nueropoghy because I only have tingling not major pain. I do have pain in joints from the tamoxefin and feel like I'm 90 years old in the morning getting out of bed. I've been done with herceptin since last Oct. and on tamoxefin for 13 months.
Anyway, my cancer center offers other theraphies like massage, reiki, reflexology so I gave reflexology a try. Last Monday was my first session, and my feet have not felt this good in 2 years! The tingling down my legs and feet is a lot less now. I'm having weekly sessions to see if I can get rid of it completly.
Vicki is right, keep your feet well moisturized and use warm water not hot and that helped.
Sher0 -
During chemo I couldn't evenSher43009 said:Tingliing
I could only do 1 taxol treatment because of the red, peeling, blistering pain in hands and feet. 3 1/2 months into herceptin, and 2 1/2 weeks into tamoxefin I got the tingling down my arms, legs and up my neck and chin. My oncol. doesn't know why this happened, but doesn't think it's nueropoghy because I only have tingling not major pain. I do have pain in joints from the tamoxefin and feel like I'm 90 years old in the morning getting out of bed. I've been done with herceptin since last Oct. and on tamoxefin for 13 months.
Anyway, my cancer center offers other theraphies like massage, reiki, reflexology so I gave reflexology a try. Last Monday was my first session, and my feet have not felt this good in 2 years! The tingling down my legs and feet is a lot less now. I'm having weekly sessions to see if I can get rid of it completly.
Vicki is right, keep your feet well moisturized and use warm water not hot and that helped.
Sher
During chemo I couldn't even stand the weight of the sheet on my bed touching my toes. Now I still can't wear any shoe that the toe touches my toes, but it's more toe cramps at night than general pain. I'm not diabetic so my nueropathy is chemo related. It started with chemo and continues with tamoxifen, but not anywhere as bad as during chemo.
Dee0 -
I had bothSher43009 said:Tingliing
I could only do 1 taxol treatment because of the red, peeling, blistering pain in hands and feet. 3 1/2 months into herceptin, and 2 1/2 weeks into tamoxefin I got the tingling down my arms, legs and up my neck and chin. My oncol. doesn't know why this happened, but doesn't think it's nueropoghy because I only have tingling not major pain. I do have pain in joints from the tamoxefin and feel like I'm 90 years old in the morning getting out of bed. I've been done with herceptin since last Oct. and on tamoxefin for 13 months.
Anyway, my cancer center offers other theraphies like massage, reiki, reflexology so I gave reflexology a try. Last Monday was my first session, and my feet have not felt this good in 2 years! The tingling down my legs and feet is a lot less now. I'm having weekly sessions to see if I can get rid of it completly.
Vicki is right, keep your feet well moisturized and use warm water not hot and that helped.
Sher
tingling from Taxotere and exactly what Victoria describes from Arimedex. Everything what have been suggested will help.
Please talk to your doctors as well.0 -
Heel pain for me started with Arimidex
I did not have chemo, but I developed horrible heel problems after starting Arimidex. Both my wrists also started hurting at the same time. I started out on Femara, but had achy joints, etc and asked to try something new. When the pain in my feet and wrists started, I asked to be switched to Aromasin. I don't beleive oncologist believed me that Arimidex could be causing it. I am a heavy set(fat)person and have gained weight with the medications. I think he is assuming my feet hurt because of my weight. That does not explain the wrist pain. I have an appt with my oncologist this month and am going to see if I can back on Femara. If I can just get back to the achy joints then at least I can go on walks and be able to do some exercising. Right now, I make it through the week at work and then have to veg all weekend. I have pain meds that sometimes helps but I pretty much have to limit my walking.0 -
sometimes...Kiantae said:Heel pain for me started with Arimidex
I did not have chemo, but I developed horrible heel problems after starting Arimidex. Both my wrists also started hurting at the same time. I started out on Femara, but had achy joints, etc and asked to try something new. When the pain in my feet and wrists started, I asked to be switched to Aromasin. I don't beleive oncologist believed me that Arimidex could be causing it. I am a heavy set(fat)person and have gained weight with the medications. I think he is assuming my feet hurt because of my weight. That does not explain the wrist pain. I have an appt with my oncologist this month and am going to see if I can back on Femara. If I can just get back to the achy joints then at least I can go on walks and be able to do some exercising. Right now, I make it through the week at work and then have to veg all weekend. I have pain meds that sometimes helps but I pretty much have to limit my walking.
I feel like I have had, and still have so many complaints and side effects that I sound like a hypochondriac. But my feet hurt, nausea still comes and goes, bone pain from time to time and completely exhausted, but pretend not to be at work. So, I am trying to just be quiet about all of it, and not tell anyone anymore.
SO....thank you!!! all my pink sisters for always listening to me.
oh, and the post about the "pretenders" how can anyone be so awful?? I think I am so naive that I have not always noticed.0 -
It does sound like the startcarkris said:It sounds like neuropathy.
It sounds like neuropathy. You should ask, because starting some things like B6 can help. neurontin helps but it does have s/e as well as lyrica. usually it goes away after chemo is done.
It does sound like the start of neuropathy. Talk to your oncologist about this.
Wishing you good luck,
Jan0 -
Talk to your oncologist
My nueropathy continued to get worse after finishing chemo, oncologist put me on gabepentin about a month after final chemo. It has made being on my feet bearable. I will finish the prescription this month and am anxious to see what will happen then.
I still just have one pair of shoes I can wear to work, but the sheets no longer hurt when they touch my toes :-)0 -
As other's have said it is
As other's have said it is chemo induced neuropathy that unfortunately can continue AFTER you finish chemo. Apparently the symptoms peak 3 - 5 months after chemo and depending on how bad it is depends on how long it will take to resolve.
The neurologist told me that my feet would take my at least a year to resolve and my hands probably longer because they were worse. I have to admit that both have started getting better. Although, like Vickisam I am still in agony each time I get up to walk, my feet hurt terribly. However I couldn't wear shoes for a while because everything under my feet felt like gravel now I don't have that.
BTW: I am not diabetic nor on tamoxifen or arimedex. My neuropathy was entirely due to Taxol.
Take care0 -
I have foot pain and even
I have foot pain and even though I had problems with Taxol, after all this time I believe it is the Arimidex that is causing my symptoms. For me, the foot pain is mostly an annoyance, as it subsides once I "walk it out." I also understand what you mean about lacking stamina. I need lots of sleep. I'm not sure if that is from the Arimidex, or the long term aftermath of chemo and radiation. Actually, I began treatment with Arimidex and am now taking the generic. The SE's seem to be the same for me. It's all a part of adjusting to our "new normal." If the Arimidex is really bothering you, maybe you could try Aromasin or Femara. My oncologist offered me this option. I declined because I am just at a point where I don't want to experiment. I hope that your symptoms even out and that they are manageable. xoxoxoxo Lynn0 -
feet tingling
The tingling sensations are chemo induced neuropathy. I was on Lyrica during and after chemotherapy treatments, and began to improve but I discontinued the medication because of the weight gain. It's been a year and 5 months after finishing treatment chemo and the tingling seems to be worsening. I spoke to my oncologist, as I have other issues, including joint pain and fatigue, which is a side effect of Aromasin....another medication which I'll be on for 4 more years. I do the best I can, there are good days and bad...keep smiling and stay strong. We're all survivors!0
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