Maybe time for just a religious forum?!

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Comments

  • 3Mana
    3Mana Member Posts: 811
    #22
    bluerose said:

    Were you talking to me?
    I don't know what you meant by 'put down' but I was putting no one down and I was not speaking to you only about disliking chatrooms. I think I made it clear several times that this topic brought up GENERAL thoughts about the pros and cons of the chatroom on this site. I also thought I made it clear I was not in the room and I was not commenting solely on this one issue with this person who offended the room and was booted.

    I don't 'put down' people if you have read my posts before or at least I hope I don't because those who know me know I wouldnt do that.

    As far as what I would do with that specific scenario in chat, like I said several times in the post I did I was not there so I could not comment on how I would have handled it and it was probably handled correctly, again, it was just bringing to mind for me a comment I had IN GENERAL about doing all we can to help all kinds of people who come in with all kinds of attitudes and issues.

    Bluerose

    Is "Buckwirth" the guy??
    Hey Bluerose,
    Is Buckwirth the guy who was upset??? I agree with you about the "chatrooms". I, myself, don't go on cause I felt like it was more for people who have cancer. Am I wrong? I had gone on it a few times but kind of felt out of place. But getting back to that guys comments, since I wasn't on there I don't know what went on. Funny how you can even get into disagreements on the computer hey? I started coming onto this site last August and now I check it at least 4 times a day. I feel like even though none of us have ever met, we've become friends and I love the comforting feeling I get from everyone. We all try to help the people who join this site and I'm sure sometime someone will get offended, but everyone has their own opinion. Take care Bluerose!!! Carole
  • Buckwirth
    Buckwirth Member Posts: 1,258 Member
    #23
    bluerose said:

    Were you talking to me?
    I don't know what you meant by 'put down' but I was putting no one down and I was not speaking to you only about disliking chatrooms. I think I made it clear several times that this topic brought up GENERAL thoughts about the pros and cons of the chatroom on this site. I also thought I made it clear I was not in the room and I was not commenting solely on this one issue with this person who offended the room and was booted.

    I don't 'put down' people if you have read my posts before or at least I hope I don't because those who know me know I wouldnt do that.

    As far as what I would do with that specific scenario in chat, like I said several times in the post I did I was not there so I could not comment on how I would have handled it and it was probably handled correctly, again, it was just bringing to mind for me a comment I had IN GENERAL about doing all we can to help all kinds of people who come in with all kinds of attitudes and issues.

    Bluerose

    I was
    But I phrased it inartfully, so please accept my apology. My intent was to question how any of the comments was a put down of the chat room.

    I enjoy your posts, very thoughtful and always calling for tolerance. Also, I was looking for honest criticism of my response to cape. Could I have phrased it better? Was I intolerant? I don't believe so, but I would like to know your thoughts.

    Again, my apologies for the misunderstanding, re-reading it I can see how you interpreted it the way you did.

    Yours,

    Blake
  • bluerose
    bluerose Member Posts: 1,104
    #24
    3Mana said:

    Is "Buckwirth" the guy??
    Hey Bluerose,
    Is Buckwirth the guy who was upset??? I agree with you about the "chatrooms". I, myself, don't go on cause I felt like it was more for people who have cancer. Am I wrong? I had gone on it a few times but kind of felt out of place. But getting back to that guys comments, since I wasn't on there I don't know what went on. Funny how you can even get into disagreements on the computer hey? I started coming onto this site last August and now I check it at least 4 times a day. I feel like even though none of us have ever met, we've become friends and I love the comforting feeling I get from everyone. We all try to help the people who join this site and I'm sure sometime someone will get offended, but everyone has their own opinion. Take care Bluerose!!! Carole

    Hi Carole
    Thanks for your response. No the chatrooms aren't just for those who have cancer it is for all who have cancer in their lives in anyway, as caregivers, family members, friends of patients etc. Join us sometime.

    You shouldn't feel out of place in the room as the rule is supposed to be that everyone is greeted when they come into the room by those already in there. However sometimes conversations are in progress when a person comes in and they might be missed if there are alot in the room.

    The idea is to just say hello yourself when you come in if no one says anything. They aren't ignoring you they might just be deep in conversation as I said. You have to just state your situation or question or just say hello and sit and watch for a bit then join in, it's up to you. It takes time to get used to chat but I think it can be very helpful.

    I can understand the comforting feeling you get from the site because here people understand your cancer journey as they have been there so they can totally relate and validate how you feel many times. That's a comforting situation because often those around us just having 'been there' and while they care they can't possibly truly understand what we are or have gone through - walk a mile in my shoes kind of thing.

    You asked about someone on this site being the fellow who was in the chatroom the other day and I don't know who is who on here and again I wasn't in the chatroom when that issue came up so no idea. I would doubt this is the same person.

    Anywho Carole thanks for the post and try the chatroom again if you like, you will get used to it.

    Blessings,

    Bluerose
  • bluerose
    bluerose Member Posts: 1,104
    #25
    Buckwirth said:

    I was
    But I phrased it inartfully, so please accept my apology. My intent was to question how any of the comments was a put down of the chat room.

    I enjoy your posts, very thoughtful and always calling for tolerance. Also, I was looking for honest criticism of my response to cape. Could I have phrased it better? Was I intolerant? I don't believe so, but I would like to know your thoughts.

    Again, my apologies for the misunderstanding, re-reading it I can see how you interpreted it the way you did.

    Yours,

    Blake

    No problem
    Communciation through typing only whether in chatrooms or on discussion boards is often an imperfect art so we all sometimes misinterpret things we read different ways and express ourselves uncleaerly sometimes unintentionally. I do it all the time, chemobrain doesn't help either. That's my story and I'm sticking to it. lol.

    Anywho we all do our best.

    Take care.

    Bluerose
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member
    #26
    bluerose said:

    No problem
    Communciation through typing only whether in chatrooms or on discussion boards is often an imperfect art so we all sometimes misinterpret things we read different ways and express ourselves uncleaerly sometimes unintentionally. I do it all the time, chemobrain doesn't help either. That's my story and I'm sticking to it. lol.

    Anywho we all do our best.

    Take care.

    Bluerose

    ?
    So, you are saying that chemobrain may last for 23 years. Wow.
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #27
    soccerfreaks said:

    ?
    So, you are saying that chemobrain may last for 23 years. Wow.

    Well
    I know many people who something just like chemo brain and they've never done chemo!
    ;-)
  • bluerose
    bluerose Member Posts: 1,104
    #28
    soccerfreaks said:

    ?
    So, you are saying that chemobrain may last for 23 years. Wow.

    ?
    So I have been told by a reputable memory expert/neurologist/surgeon, Joe. They are seeing more and more long term survivors with chemobrain and they are even using the term. I have explained this before. In early treatment depending on the drug and treatment types forgetfullness and some cognitive issues can often occur and some regain regular function not too long after. Others aren't so lucky. Also if damage is done, weakening of the brain tissue, is the way they put it, from certain drugs that cross the blood brain barrier as they know now that it does - more long term effects they call chemobrain can indeed last long term. I am one of those people but certainly not the only one.

    Normal processes like aging show more signs of this issue in people who have had the treatments with those certain chemo drugs (radiation not sure) so they may well have more issues with chemobrain as they age then people who haven't been treated.


    Bluerose
  • dasspears
    dasspears Member Posts: 227
    #29
    bluerose said:

    ?
    So I have been told by a reputable memory expert/neurologist/surgeon, Joe. They are seeing more and more long term survivors with chemobrain and they are even using the term. I have explained this before. In early treatment depending on the drug and treatment types forgetfullness and some cognitive issues can often occur and some regain regular function not too long after. Others aren't so lucky. Also if damage is done, weakening of the brain tissue, is the way they put it, from certain drugs that cross the blood brain barrier as they know now that it does - more long term effects they call chemobrain can indeed last long term. I am one of those people but certainly not the only one.

    Normal processes like aging show more signs of this issue in people who have had the treatments with those certain chemo drugs (radiation not sure) so they may well have more issues with chemobrain as they age then people who haven't been treated.


    Bluerose

    Thanks for the info...
    And yet there are still oncologists who disagree that chemobrain is after effect. I know in my case, it definitly was and to this day, if I'm tired, I still have some issues. It's irritating that chemobrain is not more widely recognized or accepted.

    It has come in handy for me at times ;).
  • bluerose
    bluerose Member Posts: 1,104
    #30
    dasspears said:

    Thanks for the info...
    And yet there are still oncologists who disagree that chemobrain is after effect. I know in my case, it definitly was and to this day, if I'm tired, I still have some issues. It's irritating that chemobrain is not more widely recognized or accepted.

    It has come in handy for me at times ;).

    Oh that's common for alot of after effects of treatments
    My diagnosis was first in 1989 and then again in 1991 and you can't imagin how many validations have come to pass in the medical community for things I experienced for the first few years. They didn't recognize my heart damage as chemo induced and now totally do, for some chemo drug therapy that is. They thought the idea of Post Traumatic Stress
    Disorder in cancer patients was a crazy idea and now there are serious studies being done
    on that subject, many cancer survivors have known all of this personally well before, they experienced some of it. Some nerve damange is now recognized, cataracts, fatigue issues - I had to battle alot of those issues that were not validated years back.

    I think part of the reason we see validation now, other than new and improved research, is that many more survivors are living longer and in greater numbers are reporting similar side effects or should I say symptoms that lead the medical community to realize that it's too suspicious that so many are having the same issues after certain treatments.

    It's not the unusual that certain physicians still are sticking with older information and like alot of things that come out as 'findings' in the medical community some just don't buy it and some do. There is alot of data now saying yes this is what is happening and they have even pinned chemobrain down to a few types of chemo drugs. Who knows what future research will uncover so new treatments might not have to be so invasive.

    Best to you.

    Blessings,
    Bluerose
  • dasspears
    dasspears Member Posts: 227
    #31
    bluerose said:

    Oh that's common for alot of after effects of treatments
    My diagnosis was first in 1989 and then again in 1991 and you can't imagin how many validations have come to pass in the medical community for things I experienced for the first few years. They didn't recognize my heart damage as chemo induced and now totally do, for some chemo drug therapy that is. They thought the idea of Post Traumatic Stress
    Disorder in cancer patients was a crazy idea and now there are serious studies being done
    on that subject, many cancer survivors have known all of this personally well before, they experienced some of it. Some nerve damange is now recognized, cataracts, fatigue issues - I had to battle alot of those issues that were not validated years back.

    I think part of the reason we see validation now, other than new and improved research, is that many more survivors are living longer and in greater numbers are reporting similar side effects or should I say symptoms that lead the medical community to realize that it's too suspicious that so many are having the same issues after certain treatments.

    It's not the unusual that certain physicians still are sticking with older information and like alot of things that come out as 'findings' in the medical community some just don't buy it and some do. There is alot of data now saying yes this is what is happening and they have even pinned chemobrain down to a few types of chemo drugs. Who knows what future research will uncover so new treatments might not have to be so invasive.

    Best to you.

    Blessings,
    Bluerose

    Exactly!
    Your quote: "I think part of the reason we see validation now, other than new and improved research, is that many more survivors are living longer and in greater numbers are reporting similar side effects or should I say symptoms that lead the medical community to realize that it's too suspicious that so many are having the same issues after certain treatments."

    I didn't think about this but it makes a lot of sense. Good example.
  • 3Mana
    3Mana Member Posts: 811
    #32
    Buckwirth said:

    I was
    But I phrased it inartfully, so please accept my apology. My intent was to question how any of the comments was a put down of the chat room.

    I enjoy your posts, very thoughtful and always calling for tolerance. Also, I was looking for honest criticism of my response to cape. Could I have phrased it better? Was I intolerant? I don't believe so, but I would like to know your thoughts.

    Again, my apologies for the misunderstanding, re-reading it I can see how you interpreted it the way you did.

    Yours,

    Blake

    Apology accepted
    Sorry Blake if we misunderstood you. Sometimes things can get confusing on here, so don't feel bad. This is a great web site and I don't know what I'd do without it. My husband died last March and I miss him so much. I have lots of friends but no one know how it is to go through this unless they've been through it themselves. My sister expected me to be back to normal after 2 weeks. Can you believe that? I said "what would you do if your lost your husband tomorrow?" She said "I'd just move on!" Sorry but it's not that easy when he was the love of your life.
    Sorry for rambling but anyhow, keep coming on this site!!! Carole

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