ROLL CALL, JANUARY 2011

24

Comments

  • susan0803
    susan0803 Member Posts: 90
    #22
    debbiejeanne said:

    checking in.
    debbiejeanne,
    checking in.
    debbiejeanne, Ohio, SCC-Larnex, stage 1. Completed trmnt Oct. 22, 2009 (radiation only). Doing good even tho I have some long time side effects from radiation. Still unable to eat most foods due to horrible tastes but doc says what I have is all I will get. That's ok, I'm cancer free and don't have to worry to much about gaining back any of the 90 lbs I lost.
    God Bless You All,
    debbiejeanne

    HawkVet - enrolling my husband in roll call
    Hi,
    HawkVet,
    Sorry a little late but I would like to enroll my husband in your roll call for HNC.

    Screen Name: susan0803

    Husband's Name: Joe

    Husband's Age: 59 at time of diagnosis

    Enrollement Date: 1/20/11

    Type of Cancer and location: SCC of left tonsil - primary tumor < 1cm. mets to ~8 lymphnodes on left. HPV+16

    Date Diagnosed: August 3, 2010

    Treatments: 33 rounds of IMRT (ranging from 7000 to 5000 depending on location, 2 rounds of cisplatin)

    Treatment dates and location of treatment: Sloan Kettering in NJ: 9/28/10 - 11/11/10

    Home Location: northwest NJ

    Best tips: getting information from this board and not being afraid to ask for support, errands, chores, whatever it took - from friends and family.
  • adventurebob
    adventurebob Member Posts: 691
    #23
    Update
    Finished treatment December 28, 2010. Total: 35 rads to head and neck, 15 to sternum, 5 to lumbar, 4 to sacrum + 3 rounds of Cisplatin/Gemzar prior to radiation and 2 of Cisplatin concurrent with radiation. Side effects remaining: dry mouth, can't taste much, fatigue. Presently recuperating in a little cabin on the coast in Bolinas CA.
  • arjenkins
    arjenkins Member Posts: 36
    #24
    adventurebob said:

    Update
    Finished treatment December 28, 2010. Total: 35 rads to head and neck, 15 to sternum, 5 to lumbar, 4 to sacrum + 3 rounds of Cisplatin/Gemzar prior to radiation and 2 of Cisplatin concurrent with radiation. Side effects remaining: dry mouth, can't taste much, fatigue. Presently recuperating in a little cabin on the coast in Bolinas CA.

    would like to add to roll call
    Screen name. Arjenkins
    My dad was diagnosed in November 2010 with stage IV -A base if tongue cancer with lymph mode involvement on both sides.
    He is in his 6th week of chemotherapy with cisplatin and almost through with his 35 radiation treatments.

    This site has been a God send.
  • Hondo
    Hondo Member Posts: 6,636 Member
    #25
    Hondo
    Yes I am still here

    NPC first time 2003, Second time 2005 last time March 2006, looking to make 5 years NED come March 2011. Living in Lafayette Louisiana and enjoying life as much as possible.

    Next PET & MRI is March 2011 at MD Anderson in Houston Texas.
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    #26
    GraceLibby said:

    Checking In
    Location: Renton WA
    Diag: 7/1/10 - with partial right neck dissection.
    Stage IV SCC, primary right tonsil with mets to two lymph nodes.
    Treatment: 2 rounds cisplatin, 35 rads - ended on 11/3/10
    Current status: 1st post-treatment scan will be on 2/2/11. Eating well, saliva is returning slowly and definitely need water or milk with each meal. Very dry at night. PEG removed on 12/22/10. Still having minor issues with mucus. Back to work part-time. Otherwise feeling pretty good. It would be nice to have my hair grow back a little quicker. :)

    Still here
    Kent Cass of the Midwest- Quad Cities.
    NPC diagnosed 11/08, Cisplatin/FU5 with rads in early 09.
    Doing well, though the dental bills are piling-up.
    Next PS/CT due in April of 2011.
    Lost PEG in July/10. Port in Sept/10.
    Last rad- 20-months ago!
    OH YEAH!
  • wifeforlife
    wifeforlife Member Posts: 189
    #27
    Hondo said:

    Hondo
    Yes I am still here

    NPC first time 2003, Second time 2005 last time March 2006, looking to make 5 years NED come March 2011. Living in Lafayette Louisiana and enjoying life as much as possible.

    Next PET & MRI is March 2011 at MD Anderson in Houston Texas.

    roll call
    location: KC MO
    Husband. Diagnosed Nov 6th 2009 finished treatment March 6th 2010.
    all follow up scans have come back NED
    as with some others.. dental bills are mounting.
    He starts hyperbaric Oxygen Treatment this month to have a tooth removed soon.
    tough road ... but life is GOOD
  • meinken
    meinken Member Posts: 38
    #28
    Posted Twice
    nothing to see here
  • meinken
    meinken Member Posts: 38
    #29
    Still here and I've got as
    Still here and I've got as much hair back as I had before treatment. Still, can only taste sweet, randomly. But most other tastes seem to be working and the dry throat is getting better, as is swallowing. I feel I'm 95% back and getting better.


    Mid January, 2010 - NPC, 2 of 3 rounds of chemo, then 7 wks,35 radiation with weekly chemo. Completed treatment in May of 2010(or there abouts). Had dehydration during the initial chemo that sent me back to the Onc. for fluids. Also, did not have the last round of initial chemo, because I developed pulmanary embolisms in both lungs and spent a week under observation at the local hospital. I now take Cumadin(sp?) to prevent reoccurance of the blood clots. I still have my chemo port, but the Doc says that it will be ok to remove it and stop the cumadin at the 1 year anniv of the embolisms, that will be March of this year.

    Thank you all for the inspiration and support I have received here.
  • Christmas
    Christmas Member Posts: 100
    #30
    Check in Jan 2011
    Still clear. The latter part of last year - had several urinary and eye infections. The doctors decided to check me for vitamin D. (a bit low - 10 compared to an average of 30). So I'm now on a mega dose of vitamin D for 8 weeks, after that, I should try some supplements.

    Otherwise, life is good. I just celebrated my 58th birthday. Seven years ago, I was still undergoing chemo.

    Wishing everyone a happy new year!
  • ktjt
    ktjt Member Posts: 5
    #31
    Christmas said:

    Check in Jan 2011
    Still clear. The latter part of last year - had several urinary and eye infections. The doctors decided to check me for vitamin D. (a bit low - 10 compared to an average of 30). So I'm now on a mega dose of vitamin D for 8 weeks, after that, I should try some supplements.

    Otherwise, life is good. I just celebrated my 58th birthday. Seven years ago, I was still undergoing chemo.

    Wishing everyone a happy new year!

    checking in for husband
    Dx SCC May 1970 tumor in nasopahrynx, met to both sides of neck. radiation and bi-lateral radical neck dissection.
    Dx SCC Oct 2001 on check, Mohs Sx,
    BCC Jan 2011 Mohs Sx.
    Husband knows much greater detail than I, glad I found this site so I can see what others go through.
    <3
  • Landranger25
    Landranger25 Member Posts: 210 Member
    #32
    ktjt said:

    checking in for husband
    Dx SCC May 1970 tumor in nasopahrynx, met to both sides of neck. radiation and bi-lateral radical neck dissection.
    Dx SCC Oct 2001 on check, Mohs Sx,
    BCC Jan 2011 Mohs Sx.
    Husband knows much greater detail than I, glad I found this site so I can see what others go through.
    <3</p>

    Here!
    SCC base of tongue with mets to one node. DX May 2009. 33 rads, 3 chemos, Cisplaten and 5FU. Treatment complete October 2009. Last PET November 2010 all clear. All things considered I'm doing pretty well.

    Regards, Mike
  • adamson091654
    adamson091654 Member Posts: 16
    #33
    Landranger25 said:

    Here!
    SCC base of tongue with mets to one node. DX May 2009. 33 rads, 3 chemos, Cisplaten and 5FU. Treatment complete October 2009. Last PET November 2010 all clear. All things considered I'm doing pretty well.

    Regards, Mike

    NEW Dave Adamson
    Dave Adamson 56 male - HPV-16 Neck Cancer - Tumor on side of neck removed by Johns Hopkins on 1/3/11 - will start 33 VMAT (I hope) radiation treatments and chemo on 2/1/11 for source base of tongue/tonsils. I will try to stay active (weights/bike) as long as I can. VMAT is a new radiation that reduces treatment time to 2-4 mins...
  • HAWVET
    HAWVET Member Posts: 318
    #34
    adamson091654 said:

    NEW Dave Adamson
    Dave Adamson 56 male - HPV-16 Neck Cancer - Tumor on side of neck removed by Johns Hopkins on 1/3/11 - will start 33 VMAT (I hope) radiation treatments and chemo on 2/1/11 for source base of tongue/tonsils. I will try to stay active (weights/bike) as long as I can. VMAT is a new radiation that reduces treatment time to 2-4 mins...

    Bumping
    Bumping this up in case there are any more enrollments or folks checking back in for year 2011. Aloha
  • Glenna M
    Glenna M Member Posts: 1,576
    #35
    HAWVET said:

    Bumping
    Bumping this up in case there are any more enrollments or folks checking back in for year 2011. Aloha

    Update
    Glenna M - New Hampshire - Diagnosed in May 2009 with SCC laryngeal and NSCLC Adenocarcinoma in left lung. Last CT scan in February 2011 shows a new lesion in left lung. Go back for another scan in May to see if there are any changes in the lesion. I know there will be changes...it will have disappeared!!!
  • mswijiknyc
    mswijiknyc Member Posts: 421
    #36
    mswijiknyc said:

    Checking in
    Husband Patrick diagnosed Sept 10 laryngeal stage 4 laryngectomy and radical neck dissection Oct 10. We're from Staten Island NY. He is in hospice now, were told end of Dec no other treatment options were viable.

    update
    Patrick passed on Feb 17, 2011 - less than six months after first going to the doctor's for dx.

    Laryngeal cancer BLOWS.

    I miss you monkey man.
  • swartpb
    swartpb Member Posts: 32
    #37
    Glenna M said:

    Update
    Glenna M - New Hampshire - Diagnosed in May 2009 with SCC laryngeal and NSCLC Adenocarcinoma in left lung. Last CT scan in February 2011 shows a new lesion in left lung. Go back for another scan in May to see if there are any changes in the lesion. I know there will be changes...it will have disappeared!!!

    ENT performed an incisional biopsy on 21/07/10 and a well-differentiated infiltrating squamous cell carcinoma was found on the right side of the tongue and then was clinically staged as a T3 N2c Mx Ca Oral cavity. Started chemo treatment on the 22/02/11. God bless us all!
  • donna340
    donna340 Member Posts: 72
    #38
    Roll Call
    Getting ready for another surgery on 03/08/2011. SCC right side of tongue. Hoping to get it all this time.
  • HAWVET
    HAWVET Member Posts: 318
    #39
    donna340 said:

    Roll Call
    Getting ready for another surgery on 03/08/2011. SCC right side of tongue. Hoping to get it all this time.

    Bump
    Many have not checked back in for year 2011. The list will be updated in July 2011. This is a voluntary enrollment program. Here are the instructions:

    The enrollment date is not when you first had the cancer, but when you joined our roll call group. When you check in, provide a brief summary so others can read on your case and status. The date of enrollment and date checked in need not be provided. I can extract the information from the date of your posting.

    If enrolling for the first time, please provide information on where you are from, type of cancer and date diagnosed (if known), your treatment and status. If you prefer to only list your state or country, that will be fine. The date the information was posted for the first time will be the enrollment date.
  • janymac
    janymac Member Posts: 35
    #40
    HAWVET said:

    Bump
    Many have not checked back in for year 2011. The list will be updated in July 2011. This is a voluntary enrollment program. Here are the instructions:

    The enrollment date is not when you first had the cancer, but when you joined our roll call group. When you check in, provide a brief summary so others can read on your case and status. The date of enrollment and date checked in need not be provided. I can extract the information from the date of your posting.

    If enrolling for the first time, please provide information on where you are from, type of cancer and date diagnosed (if known), your treatment and status. If you prefer to only list your state or country, that will be fine. The date the information was posted for the first time will be the enrollment date.

    Janymac
    Janymac
    diagnosed 2002
    well out of treatment - well into long term side effects
    Nottinghamshire UK
    Bewildered but hanging in there
    Working full time- but had to change my occupation
  • janymac
    janymac Member Posts: 35
    #41
    HAWVET said:

    Bump
    Many have not checked back in for year 2011. The list will be updated in July 2011. This is a voluntary enrollment program. Here are the instructions:

    The enrollment date is not when you first had the cancer, but when you joined our roll call group. When you check in, provide a brief summary so others can read on your case and status. The date of enrollment and date checked in need not be provided. I can extract the information from the date of your posting.

    If enrolling for the first time, please provide information on where you are from, type of cancer and date diagnosed (if known), your treatment and status. If you prefer to only list your state or country, that will be fine. The date the information was posted for the first time will be the enrollment date.

    Janymac
    Janymac
    diagnosed 2002
    well out of treatment - well into long term side effects
    Nottinghamshire UK
    Bewildered but hanging in there
    Working full time- but had to change my occupation

Discussion Boards