IT'S Back and I'm back

menright
menright Member Posts: 256 Member
Just got word that a spot on my lung is suspicious and likely cancer....so Radio Frequency Ablation and 4-months of Xeloda. I foolishly thought I was done.

Any comments about RFA for a 0.5cm spot on the right lung???? Is Xeloda afterward standard?

I hate Cancer!

Mike

Comments

  • maglets
    maglets Member Posts: 2,576 Member
    sorry
    oh Mike I am so sorry....that NED character is just a tricky little dude....too hard to find

    hugs....have you done xeloda? it's ok

    mags
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    RFA
    I've had them done 3 times (so far) and the first time I stayed overnight, the other 2 times I went home that day. As far as procedures go, it's a walk in the park (Central Park, back in the 1970's, at night) No really, it's very easy. Mild pain afterwards. I have never been on Xeloda, I have been taking Erbitux for 4 years or so. I resume that after my ablations.

    I probably have RFA #4 on the horizon, I already know that I've had a spot in my left lung for a while now. CEA is starting to rise which for ME is a good indication that an ablation is next.

    To be perfectly honest, I don't give a hoot about NED. I was told in the beginning that I was done with chemo after my 12th round. That was a very long time ago. Cancer can be like this monstrous thunderstorm. There may be a break in the clouds and rain for a while but sooner or later one is likely to get wet again. Not always, sometimes we just get hit by lightning!
    ;-)

    The RFA is really easy. If I had to keep having this done every year like I have been with the Erbitux in between, I'd be fine with that.
    -phil
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    PhillieG said:

    RFA
    I've had them done 3 times (so far) and the first time I stayed overnight, the other 2 times I went home that day. As far as procedures go, it's a walk in the park (Central Park, back in the 1970's, at night) No really, it's very easy. Mild pain afterwards. I have never been on Xeloda, I have been taking Erbitux for 4 years or so. I resume that after my ablations.

    I probably have RFA #4 on the horizon, I already know that I've had a spot in my left lung for a while now. CEA is starting to rise which for ME is a good indication that an ablation is next.

    To be perfectly honest, I don't give a hoot about NED. I was told in the beginning that I was done with chemo after my 12th round. That was a very long time ago. Cancer can be like this monstrous thunderstorm. There may be a break in the clouds and rain for a while but sooner or later one is likely to get wet again. Not always, sometimes we just get hit by lightning!
    ;-)

    The RFA is really easy. If I had to keep having this done every year like I have been with the Erbitux in between, I'd be fine with that.
    -phil

    no no no
    i am so sorry for you.this seems to be happening to so many of us that was first dx around the same time.i have been dx with recurrance to liver and lung.i have a new team of docs and feel very confident in them.i actually have 3 spots on liver and 2 on lung so i am doing folfox again and possibly chemo beads to liver.keep us posted on how you are doing....Godbless...johnnybegood
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    PhillieG said:

    RFA
    I've had them done 3 times (so far) and the first time I stayed overnight, the other 2 times I went home that day. As far as procedures go, it's a walk in the park (Central Park, back in the 1970's, at night) No really, it's very easy. Mild pain afterwards. I have never been on Xeloda, I have been taking Erbitux for 4 years or so. I resume that after my ablations.

    I probably have RFA #4 on the horizon, I already know that I've had a spot in my left lung for a while now. CEA is starting to rise which for ME is a good indication that an ablation is next.

    To be perfectly honest, I don't give a hoot about NED. I was told in the beginning that I was done with chemo after my 12th round. That was a very long time ago. Cancer can be like this monstrous thunderstorm. There may be a break in the clouds and rain for a while but sooner or later one is likely to get wet again. Not always, sometimes we just get hit by lightning!
    ;-)

    The RFA is really easy. If I had to keep having this done every year like I have been with the Erbitux in between, I'd be fine with that.
    -phil

    Well Dang.........sorry Mike
    I went in for a spot on my left lung and they took it out through laproscopic thorectomy...All margins were clear and no nodes involved.....Is there a reason that they are doing Xeloda ? I had my surgery and then since there wasn't any nodes involved they opted not to do any chemo...No need is what we decided....Is there a specific reason for them to put you on Xeloda ? Just wondering....again, sorry its back but maybe this will knock it down for good..............buzz
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    Mike
    Mike,
    Darn it!!! Sorry you are back in this. We are here for you every step of the way.

    Aloha,
    Kathleen
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    Sorry Mike
    Mike,

    I am sorry to hear of your recurrance. I hate cancer too!
  • menright
    menright Member Posts: 256 Member
    Buzzard said:

    Well Dang.........sorry Mike
    I went in for a spot on my left lung and they took it out through laproscopic thorectomy...All margins were clear and no nodes involved.....Is there a reason that they are doing Xeloda ? I had my surgery and then since there wasn't any nodes involved they opted not to do any chemo...No need is what we decided....Is there a specific reason for them to put you on Xeloda ? Just wondering....again, sorry its back but maybe this will knock it down for good..............buzz

    Xeloda
    I am told that Xeloda is best for lung cancer. I am familiar with Xeloda and not too worried. I would prefer to avoid it though, so thanks for the comments. I will ask a few more questions. It seems we are many times our own doctor.
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    AnneCan said:

    Sorry Mike
    Mike,

    I am sorry to hear of your recurrance. I hate cancer too!

    Hey Mike...
    I too am sorry you are back with us but I am glad to see you all the same. I had Cyberknife done to my lung met and it successfully killed it BUT .... I would try something else IF... did I say IF.... there is a need again.... We are always here for you. Take care.

    Jennie
  • Nana b
    Nana b Member Posts: 3,030 Member
    AnneCan said:

    Sorry Mike
    Mike,

    I am sorry to hear of your recurrance. I hate cancer too!

    Oh, no!
    So sorry to hear this Mike! Keep fighting!
  • taraHK
    taraHK Member Posts: 1,952 Member
    so sorry
    So sorry to hear this, Mike.

    Can't comment on RFA myself -- I have had a couple of lungs mets but removed surgically.

    Whether or not to have "mop up" cheme after surgery/RFA is controversial. My oncologist (and I) lean towards yes -- but some other docs/leading cancer centres say no. I respect both views (and understand the position of those who say no). For me, I reckon there could be (probably are, I;m sorry to say) some nasties still floating out there, as yet undetectable by scan or anything else. But that's my view. Whether Xeloda or something else I guess depends in part on what you have had before. If you have relapsed while on a certain drug (or shortly thereafter), they'll often try a different drug or combo.

    Good luck to you.

    Tara
  • Love2Cats
    Love2Cats Member Posts: 127
    Mike
    Sorry to hear that. I got 2 in my lungs too, but I am new, so I don't know enough to offer any advice. Cancer sucks...enough said.
  • CherylHutch
    CherylHutch Member Posts: 1,375 Member
    Hey Mike!
    Sorry to hear of your new spot on the lung... but thought I'd chime in about the RFA along with Phil. I have had one spot removed by RFA and I second what Phil said. It really is one of the most fantastic procedures! I'm not sure if our oncologist explained it to you or not, but basically, with the help of a CAT scan to guide the radiologist right to the tumour that is going to be zapped, you will either be given a local and some sedation where you are awake but totally relaxed... or, depending on where the tumour is, they might give you a General Anesthesia. If you get the GA, chances are they will want to keep you overnight (standard practice when a GA is used). In my case, I was given a GA, but came out of it and was wide awake and twiddling my thumbs... that they ended up sending me home that same day. Because it was a GA, I wasn't allowed to drive for 24 hours... when, seriously, I was fine and could have driven myself home.

    But I digress... the procedure... the radiologist will insert a needle into the tumour (remember you are either out with a GA, or the local is so good you don't feel a thing) and then they zap the tumour with radio frequency waves. It is similar to microwaving the tumour except only the tumour is affected, not the tissue surround it. They zap the tumour until all that is remaining is scar tissue... which, over 6 months - a year, the lung absorbs the scar tissues and there will eventually be nothing indicating there ever was a tumour there.

    You are going to feel just fine once the GA or local anesthesia wears off. I noticed no pain, no discomfort, nada... and was back to my normal daily routine the next day.

    Sounds like they want to put you on the Xeloda as a preventative. The tumour they do the RFA on will be history... there will be nothing remaining of it. But the Xeloda will be to catch any potential cells floating about that the scans may not have picked up because they are too small. And the Xeloda is definitely the most convenient of all the chemos in that you just have to remember to take the pills daily (usually twice/day).

    Good luck with this and keep us posted on how it goes :)

    Cheryl
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    menright said:

    Xeloda
    I am told that Xeloda is best for lung cancer. I am familiar with Xeloda and not too worried. I would prefer to avoid it though, so thanks for the comments. I will ask a few more questions. It seems we are many times our own doctor.

    Xeloda
    Hi Mike, do you have lung cancer or colon cancer that metastasized to your lungs? They are different beasts. Many on here have done Xeloda so I guess that's the thing to look at. Also, some people do not find Erbitux effective.
    I am sorry to hear it's back.
  • angelsbaby
    angelsbaby Member Posts: 1,165 Member

    Hey Mike!
    Sorry to hear of your new spot on the lung... but thought I'd chime in about the RFA along with Phil. I have had one spot removed by RFA and I second what Phil said. It really is one of the most fantastic procedures! I'm not sure if our oncologist explained it to you or not, but basically, with the help of a CAT scan to guide the radiologist right to the tumour that is going to be zapped, you will either be given a local and some sedation where you are awake but totally relaxed... or, depending on where the tumour is, they might give you a General Anesthesia. If you get the GA, chances are they will want to keep you overnight (standard practice when a GA is used). In my case, I was given a GA, but came out of it and was wide awake and twiddling my thumbs... that they ended up sending me home that same day. Because it was a GA, I wasn't allowed to drive for 24 hours... when, seriously, I was fine and could have driven myself home.

    But I digress... the procedure... the radiologist will insert a needle into the tumour (remember you are either out with a GA, or the local is so good you don't feel a thing) and then they zap the tumour with radio frequency waves. It is similar to microwaving the tumour except only the tumour is affected, not the tissue surround it. They zap the tumour until all that is remaining is scar tissue... which, over 6 months - a year, the lung absorbs the scar tissues and there will eventually be nothing indicating there ever was a tumour there.

    You are going to feel just fine once the GA or local anesthesia wears off. I noticed no pain, no discomfort, nada... and was back to my normal daily routine the next day.

    Sounds like they want to put you on the Xeloda as a preventative. The tumour they do the RFA on will be history... there will be nothing remaining of it. But the Xeloda will be to catch any potential cells floating about that the scans may not have picked up because they are too small. And the Xeloda is definitely the most convenient of all the chemos in that you just have to remember to take the pills daily (usually twice/day).

    Good luck with this and keep us posted on how it goes :)

    Cheryl

    Mike
    I hope all goes well and you feel better soon

    michelle
  • Sigma34
    Sigma34 Member Posts: 203

    Mike
    I hope all goes well and you feel better soon

    michelle

    Mike,
    I'm really sorry about

    Mike,

    I'm really sorry about your recent news. :-(
    Ugh! We are thinking about you.

    Peace and Calm,

    Christine
  • menright
    menright Member Posts: 256 Member
    Nana b said:

    Oh, no!
    So sorry to hear this Mike! Keep fighting!

    picture
    Thanks for the note. I just had to reply to say I love your picture. My son is in college in Abilene, TX and your photo would fit right in.

    Thanks,

    Mike
  • JoyceSteele
    JoyceSteele Member Posts: 145
    sending some Florida sunshine
    Mike, am sorry to read this latest news. Want you to know you will be in my prayers. I may start taking a sheet of paper to bed and with me all the time and keep all the names on it I'm praying for. I have no experience with RFA or the chemo you are contemplating.. am a Folfox w/Avastin lady. It worked and will be having liver resection next Monday... at Mayo Clinic. Tomorrow is my visit with surgeon and will know if he is going to do it laparoscopily... anyway, this is not about me..take care and believe. Warm regards, Joyce
  • menright
    menright Member Posts: 256 Member

    sending some Florida sunshine
    Mike, am sorry to read this latest news. Want you to know you will be in my prayers. I may start taking a sheet of paper to bed and with me all the time and keep all the names on it I'm praying for. I have no experience with RFA or the chemo you are contemplating.. am a Folfox w/Avastin lady. It worked and will be having liver resection next Monday... at Mayo Clinic. Tomorrow is my visit with surgeon and will know if he is going to do it laparoscopily... anyway, this is not about me..take care and believe. Warm regards, Joyce

    Liver surgery
    Joyce:

    It is about you as much as it might be about me. This fight involves so many, it staggers me each time I sit in a waiting room.

    Best of luck with your liver surgery. I will tell you that my resection seems to have been a success. (2/3rd's removed) It has been 8-months with no recurrence in the liver anyway. I have a HAI pump that was used to keep the liver clean. I am done with that for now.

    You too are in my prayers and I trust your surgery will go well.

    Mike
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    So sorry
    Oh, Mike.

    I hate to hear this from you. You've been away for awhile, so I was really hoping you were doing GREAT.

    Don't have answers for you, but just wanted to let you know that I will continue to pray for you.

    *hugs*
    Gail