Neck masses

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Comments

  • tjuhlin
    tjuhlin Member Posts: 19
    #22
    Hondo said:

    Hi tjuhlin

    I had Rad twice because the first doctor screwed up on my treatment, then the second doctor only knew a little more then first one did, but not much more, I did not know any of this until years later when having a lot of side affects problems and asking my doctor why he did not get me help before I had this problem.

    He said I did not expect you to live this long I never had someone with your type of Cancer before. My Cancer was NPC.

    Question your doctor on how many times he treatment someone with your type of cancer, if he says a few times get out and go to MD Anderson of Mayo Clinic or some major cancer place.

    Not to scare you but I now live with the side affects of not being treated correctly.

    Take care
    Hondo

    Your Advice and the Advice of Others
    Hey Hondo, I just wanted you and the others to know I ended up going to the Mayo Clinic in Phoenix. After hearing what needs to be done from the doctor (Otorhinolaryngolist) there at the Mayo Clinic, I knew I did the right thing by going there. There is no way my little "small town" cancer center and local hospital would be able to provide the surgical expertise that is needed for my detailed surgery. My cancer origin is still undetermined but the staff there at Mayo will and are continuing the hunt.

    Thanks again.... Terry
  • tjuhlin
    tjuhlin Member Posts: 19
    #23
    abcwangfoo said:

    Thanks for all replies
    Hi all,thanks for responding to my question.Haven't done anything yet about,neck masses.Like I said ENT not too worried.I,see him in April.I,guess I ahve to have the faith he knows,what he's talking about. He's the expert.Iam,still worried. Have a good weekend&HUGS Pat

    Neck Masses
    Wangfoo, you really need to get going on this to determine what is causing your neck masses. I waited/wasted two weeks because I believed the local non-emergency care facility's two NP when they both told me that I had a Salivary Gland infection and prescribed two different strength antibiotics to treat my neck mass. I knew almost immediatley that the antibiotics were not working but continued to believe what both NP's told me (what was funny is that the mass in my neck was near the Salivary Gland but not at the gland itself). It wasn't till I went to see my primary care physician (the third week) that the alarm was raised and I began to get the needed testing done (CT,MRI & PET). I went to one of my town's ENT doc's and he knew he was in "over his head" and that I needed to see a specialist. I am grateful to this particular ENT that his ego didn't step in and he immediately referred me to a "out of town" specialist. Though my "battle" has just begun, I do have a direction to go and the information I need to begin the fight.

    Start Now! Terry
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #24
    Skiffin16 said:

    Agree with Donna - Do Not Wait
    Like mentioned SCC is fairly aggressive....

    Mine started in the tonsils (first I noticed anything going on). That was somewhere between October - December 2008. Within just a month or so it already popped up a secondary tumor in my neck a little lower than my ear.

    I would get a second opinion also. Like mentioned, you might be out a few bucks if it's nothing. But, your piece of mind will be huge. If it is cancer, then you'll be a few months ahead of the game, versus waiting until April.

    Best,
    John

    Terry
    Glad you are all squared away and going to Pheonix. Sounds like a good plan.
  • tjuhlin
    tjuhlin Member Posts: 19
    #25
    sweetblood22 said:

    Terry
    Glad you are all squared away and going to Pheonix. Sounds like a good plan.

    Thanks to You Sweetblood22
    Thank you again for your advice and information. My surgery is March 9th with radiation to follow.
  • abcwangfoo
    abcwangfoo Member Posts: 12
    #26
    Parotid Masses
    Thankyou for all your replies in Febuary.Iam going for a Catscan;today(May 25th) Will,know in a day or so,If masses grew.If so;I want a biposy. Take care all. Pat

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