I just wanted to say "thanks a million"

2»

Comments

  • connieprice1
    connieprice1 Member Posts: 300 Member
    #22
    hawk711 said:

    Feeding Tube
    Homer
    I just wanted to say that the radiation will make it very difficult to swallow as time goes on. I'm sure they told you this, but the feeding tube can help Connie hold her weight. Even gain some weight if you do a lot of calories. Don't be afraid of the tube. I've had mine in for 12 months and will have it removed after 13 months, but I couldn't have gotten through this with as much energy and strength without the tube. Tell connie to go for it. I recommend it for helping her in the process of healing.
    I had 36 rads and 6 chemo treatments for base of tongue and lymph node tumors. Been done for 10 months and now I an NED, as of January 2011. There is hope and there is a better time for Connie. Tell her to believe me on this. Give her much love, she'll need it during the next few months.
    all the best,
    Steve

    feeding tube
    Steve - Thanks for your reply. Connie and I have already come to terms with the feeding tube. I expect her to get it soon and she wants more nourishment. I was wondering why you kept the tube for 13 months. We understood that 3-6 months was normal. Homer & Connie
  • connieprice1
    connieprice1 Member Posts: 300 Member
    #23
    Hal61 said:

    Hi Homer and Connie
    So glad to hear that Connie is moving through the ordeal, and heading toward the finish line Homer. She's well on her way to membership in the Tough Cookie Club. Male care givers who post, like you, Clear, and not many others, are a pleasure to hear from and support.

    I know there are many male spouses, friends, and boyfriends, who offer love and support to their partners through treatment, but you have been very active in seeking advice, pushing, and advocating in a way that shows how much you love and value Connie. Thanks for being there for her, and us. You've both still got some rough road to go, but most of the uphill is behind you.

    Be sure and checkout Sweetblood's new and great compilation of links to the latest discussions on nutrition, throat care after radiation, and a extremely helpful roundup of threads she strung together to help ease the seach for recovery information. Just put "Superthread" in the CSN search for head and neck area,and it will come up.

    my thoughts are with both of you, Hal

    Hal
    Hal, I hope everthing is going well for you. I do appreciate the kind words and although I know we have a ways to go although I feel we are in the stretch and headed for the finish line. I went to sweetblood's superthread and was shocked by all the info she has compiled for others. I don't feel I was ever a bad person but I know I am a better person today. Thanks for all the help, Homer & Connie
  • connieprice1
    connieprice1 Member Posts: 300 Member
    #24
    Glenna M said:

    Inspiring people
    Homer, there are so many inspiring people on this forum, they are always there to help in any way they can and I am appreciative of their help also.

    Happy to hear that Connie is doing better and hope she continues on that path.

    Stay well and stay strong,
    Glenna

    Glenna
    Glenna, Thank you for your kind comments and posts. You have helped myself and others. I am sure I will be asking for advise in the future. Thanks, Homer & Connie
  • hawk711
    hawk711 Member Posts: 566
    #25
    connieprice1 said:

    feeding tube
    Steve - Thanks for your reply. Connie and I have already come to terms with the feeding tube. I expect her to get it soon and she wants more nourishment. I was wondering why you kept the tube for 13 months. We understood that 3-6 months was normal. Homer & Connie

    Tube
    I can tell you that the feeding tube is a personal thing. Some get it out in 4-6 months, but others like me and others have it in for 6-15 months. the reason is not being able to swallow much due to low saliva. Also, not being able to get down 2400 calories a day, so I needed the extra calories. For me, I am working full time and needed the energy that the tube could provide. The only thing I could eat alot of was yogurt and ensure and I didn't want to go on for months just eating soft stuff....so....I left it in and was glad I did. After it is in, it is easy to take care of and it give one a great deal of freedom to travel, move around and not have to worry about having to eat 6 times a day to get the calories.
    Final thought, it is personal to each of us. Sweets had one for 15 months and had it out a couple months ago and I'll be pushing 13 months when mine comes out, so we all heal at different rates of speed.....I was very slow to heal, especially my low saliva levels.
    All the best in the coming months,
    Steve
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #26
    TREATMENT FOR CONNIE
    Homer, so glad you found a treatment center. I wish her and you the best of luck. My hat is off to you as you have a very tough job to do.

    BEST!!

    Mike
  • connieprice1
    connieprice1 Member Posts: 300 Member
    #27
    luv4lacrosse said:

    TREATMENT FOR CONNIE
    Homer, so glad you found a treatment center. I wish her and you the best of luck. My hat is off to you as you have a very tough job to do.

    BEST!!

    Mike

    Their is a bond between us all
    Hi Mike, Nice to hear from you again. From the sound of your posts it seems like everything is going better for you too. My wife got her peg tube 2/22/11, it's not so bad. It's our 1st week and we already are pros. As for Connie it's been a little rough but we have had many miracles come our way. I have to say when I seen your post it was like hearing from an old friend. Take care my friend and keep in touch. Your friends, Homer & Connie
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #28
    connieprice1 said:

    John & Dawn
    Hey John, Their is something in your's & Dawn's picture that shows your happiness. I can tell that you have fought long and hard to get to where you are today. I also read your post and am elated to hear all is going well for you. The light is getting bigger for us as we move ahead in Connie's treatment although I can honestly tell you I am scared of what lies ahead over the next few months. Hopefully we will get through it ok. I posted on the "Where are you now site so hopefully next time we will be included" Best of Luck to you both, Homer & Connie

    Thanks
    Homer, I'm sure you and Connie will be here posting with the rest of us for a long time.... You sound like you are doing everything right, and it's great for Connie to have you at her side...that's huge.

    Stay positive and surrond yourself with positive friends and relatives.

    Best,
    John

Discussion Boards