A little bit of my info and lots of thank you's!!

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Comments

  • Nana b
    Nana b Member Posts: 3,030 Member
    #22
    soccermom13 said:

    you are amazing!
    I did not post until after I was finished with chemo and wish that I had done so. I only made it 2 1/2 round of the pill Oxi. The other 5 rounds were Folfiri (I think - memory is still an issue so I would have to find the paperwork first!) It hurt my eyes so bad that I could hardly open them at times, it even gave me "an out of body" experience! Sitting on the couch with eyes closed because it hurt to open them, I could "see" everyone and what they were doing but could not respond. Literally could not coordinate thoughts with speech. The hands and the bitting, sharp knife in the throat were my issue. It was so horrible! And then thru a scheduling error I thought I was done, they were saying last one and I said no, I mentally could not go thru it. Each one made me more ill than the last. I wish that I had had the support of all the old timers then! Now I feel as though I don't have too much to contribute except prayers. Just old feelings of inadequacy I guess. So keep posting because you touch me!
    Hugs
    Shanna

    You are doing great, you
    You are doing great, you look wonderful! I do the hand and feet syndrom, and the belly! Lol

    Keep doing what you doing and come here and share your experiences for the newbies. We will be here for you. It's all a revolving door, just need to keep it going, so we take care if all the stages!

    Big hug! Raquel
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #23
    Lori-S said:

    Gail, My Buddy
    You have been such a valuable asset to me and I'm sure others here on the board. Don't ever feel inadequate. We are so lucky to have you here with us. I wish I had less experience to offer ... LOL. Just being here as support is a wonderful gift you give to the "family".

    I can totally relate to all the weird "little side effects" that go on with FOLFOX. I used to just mutter "damn chemo" under my breath when a new one would appear. I used to say "My teeth hurt" and then just stop and shake my head. The teeth hurting and "First Bite Syndrome" are 2 different things. That jaw pain is almost unbearable. I had both teeth and jaw. The jaw pain is only on taking first bites of food. OUCH. Truth is it seemed that if I broke it down, everything seemed to hurt. Boy am I happy to be out of the FOLFOX loop. You are half way through already! Hang in there, you are doing great. I'm so proud of you. HUGS -

    Gail...
    I think you are wonderful!!! enough said....

    Jennie
  • HollyID
    HollyID Member Posts: 946 Member
    #24
    Gail, you're family. Enough
    Gail, you're family. Enough said.

    Love and Hugs,

    Holly
  • tesslee
    tesslee Member Posts: 97
    #25
    HollyID said:

    Gail, you're family. Enough
    Gail, you're family. Enough said.

    Love and Hugs,

    Holly

    Gail
    i remember our little exchange about how we love rocks. a friend gave me a beautiful polished pink heart stone and told me rocks have good energy and she wanted me to have it. i absolutely love it. but my brother needed it more than me so today i gave it to him, and told him to hold it and feel the energy of the love from his wife and four kids and 4 grandkids. he teared up, as did i, and his wife. rocks are beautiful. and my friend would not mind at all that i gave it away.

    i feel i have not much to contribute here and i have a hard time with reading the difficult posts sometimes. but folks here are on my mind lots.
  • christinecarl
    christinecarl Member Posts: 543 Member
    #26
    You are helping others just
    You are helping others just by sharing what you shared. I remember wondering when does one become a survivor, is it when you are 1st diagnosed or after you finish all of the treatments? I never had survivor guilt until I managed to still be alive 2 yrs later, because I did not know if I would still be here . It is strange the things that can roll around in your head. Congrats on getting through half of your treatments, you are definitely a survivor in my book!!!

    Sometimes you need some space between the fighting of the cancer and being diagnosed to sort of breath, before you can heal and find your voice again.

    Good luck with your remaining treatments!!!
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #27
    Gail!
    I've so enjoyed having another Gail here! *smiles* Makes me a little mad that you're skinnier and prettier, but I'll forgive you. *grins* Each of us has our own gifts, just like a regular family. So we all bring what be bring, and it makes us a wonderful "whole."

    *hugs*
    Gail

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