New to CSN

Don't Have
the same experience as you but I do want to wlecome you to this board. There are lots of caring,supportive people here and always someone that can answer a question who has been thru what you are going thru. I had Stage one, estrogen positive. I just needed hormone pills. Started off on the AI (aromatase drugs) and had bad SE so went on tamoxifen. I still have SE but not as bad. I have two more years to go and believe me, I'm counting the days! I can't help you with any chemo or rad questions but I did have a masectomy with no reconstruction and then the hormone drugs so if I can answer any questions about either of those issues, I'll be happy to.

Sorry you are having such a hard time right now - I'm sending positive thoughts and hugs out to you. Sally

Katz77 said:

Welcome, welcome....
Let me start out by saying, hello and cancer sucks. Lol
This board is a wealth of information. Course it is our own experience and your docs always should be told about health concerns. So with that said... My treatment very much like yours. Had unimastectomy june09 with er,pr and her2 positive. Depends which doc u talk to,18/20 to 28/30 ax nodes positive. Lol Had a/c,taxol and 30hits of rads. I personally think the neulasta shots is what made my bones feel like broken glass. Ohhh my spine,geezzzz. Felt like bone spasms. I know thats not possible, but my head would pull backwards like a spasm. Advil actually helped more than hydrocodone for me. Heating pad.
I hated the shots. I dont really recall much probs with taxol. Bones hurt, but not like before. Far as that goes, they still hurt, but learn to live with it I guess. I try to walk everyday too. Do stretches, nothing strenous.
Have you had bone density test? If not, please inquire about getting one. Chemo and the meds were on like to eat our bones, breakfast, lunch and dinner. Do you take calicum? Ok enough of my babbles. Again welcome and hope you feel better. This place is open 24/7, 365 days a yr. Oh Happy Valentines to you,Katz

I also would like to welcome
I also would like to welcome you. Sorry you have to be here but under the circumstances you will be glad you are. My treatment was also different from your except the Neulasta which made me very achy for 3 or 4 days. I found radiation to be very much easier than chemo and unlike chemo, I was able to work through all of it. I have just recently passed the one year mark from dx and have so far gotten all good reports. I take Femara and have done very well on that also. This board helped me through every step of my journey and what I loved most was that there was no question too small. Warmest wishes to you.

Welcome Hippiechick
You are correct this is THE place to come for support. Not so happy about
you having to be here but very happy that you found us for advice and
support.

I didn't have the drugs you mentioned, I was on carbo, taxotere and Herceptin
for a year. I didn't need the neulasta shots, when I offered I declined, heard it
was really painful. I had to take a break due to low WBC once. But all in all I did
ok.

I hope someone can provide you with some good tips on you to eliminate the
pain.

Hugs,
Ayse

sea60 said:

Big welcome hugs to you
Yes, I have LOTS of pain with the Neulasta. I would tell my Sister that I felt my back was broken. My bones just felt weird! It's all the side effect of that drug. All I could do was just lie and rest until I felt better (until the next shot).

I did find Rads to be easier than Chemo.

Hope you feel better and this phase of your treatment goes by quickly.

Sylvia

Welcome Hippiechick
Uggg Neulasta!!!! Yes, I actually just got that dreaded shot on Friday. I totally understand how you feel about it. It does make your body hurt, makes you feel lightheaded and anything else you can think of. My Dr told me to take claritin and that actually helps. I also take 800 mg of ibuprofen every 5 hours to help with the pain. I'm so sorry that your having a hard time and I hope it gets better for you. Welcome to the boards, you will find a lot of wonderful people here with tons of support.

Hugs,

Dawne

nice to meet you
sorry it has to be on this board...

This is great place to vent and get advice

Welcome Hippiechick, I love
Welcome Hippiechick, I love that screenname!! I too had severe bone pain from neulasta, it kicked my butt worse than anything. I'm praying you get some relief soon and sending positive thoughts your way!!
Mountains of Love,
~Kari