Great website... Signet Ring, Mucinous Adenocarcinoma, appendiceal cancers ,pseudomyxoma peritonei.

dmdwins
dmdwins Member Posts: 454 Member
edited February 2011 in Colorectal Cancer #1
Just happened upon this website while at work(UPMC) and thought it was great. I know for those that have appendiceal cancer it seems as resources of info are limited...there is even a blog to connect with others and for those who might need HIPEC there is a listing of facilities and physicians that provide this treatment. Also information on Signet Ring cell adenocarcinoma and Mucinous Adenocarcinoma. Hope it is helpful to someone !!!

www.pmppals.org

Smiles,
Dawn

Comments

  • DoriW
    DoriW Member Posts: 12 Member
    #2
    The blog
    I'm familiar with the blog. I thought I'd mention, as a word of encouragement, that the woman who writes the blog is an 8 year survivor of stage IV signet ring appendiceal carcinoma.

    D
  • dmdwins
    dmdwins Member Posts: 454 Member
    #3
    DoriW said:

    The blog
    I'm familiar with the blog. I thought I'd mention, as a word of encouragement, that the woman who writes the blog is an 8 year survivor of stage IV signet ring appendiceal carcinoma.

    D

    Bump
    Just bumping this up as I see a few new members asking questions about Signet Ring and Mucinous Adenocarcinoma....Thought this might be helpful to you.


    Smiles,
    Dawn
  • abrub
    abrub Member Posts: 2,174 Member
    #4
    Another great Appendix Cancer resource
    http://www.appendix-cancer.com/

    Lots of good info, good links. The author is a 9 3/4 year survivor, nurse, and now very involved with more research. Very reliable info.
  • ForBenandSophia
    ForBenandSophia Member Posts: 11
    #5
    Help for Stage IV Appendiceall
    Does that women have distant metastis? My husband a young 47 healthy Stage IV with recent HIPEC is having a hard time with the irintcantan (Campistar) any suggested alternatives? Already did Folfox prior to Hipec which was very easy for him (prior to surgery) but not sure as effective for the aggressive signet cell. Any suggestions? Right now in hospital for fluids and controlling diahrrea. Just needs to gain weight and possible go back to Folfox.
    Thank you, Erin
  • abrub
    abrub Member Posts: 2,174 Member
    #6
    ForBenandSophia said:

    Help for Stage IV Appendiceall
    Does that women have distant metastis? My husband a young 47 healthy Stage IV with recent HIPEC is having a hard time with the irintcantan (Campistar) any suggested alternatives? Already did Folfox prior to Hipec which was very easy for him (prior to surgery) but not sure as effective for the aggressive signet cell. Any suggestions? Right now in hospital for fluids and controlling diahrrea. Just needs to gain weight and possible go back to Folfox.
    Thank you, Erin

    Is he working with an Appendix Cancer specialist?
    If not, he really needs to see on. I love my surgeon at MSK (Dr. Paty)- I was also stage 4, and did IP chemo with FUDR, followed by Folfox plus Avastin.

    Recommended drs: http://www.appendix-cancer.com/article.php?article=28
  • healthalways63
    healthalways63 Member Posts: 3
    edited November 2016 #7
    Cyto Reduction/HIPEC

    Hi, my name is Mike Breglia, I was diagnosed with Appendiceal Adenocarcinoma in May of 2010, in a "Routine" Emergency Appendectomy. I put Routine in quotation marks because we were soon to find there was nothing Routine about it. In October of 2011 I travelled to to San Diego to the Moore Center for Cancer Research part of the USC. next to Thornton Hospital where I underwent the Surgery mentioned in the Subject Cyto Reduction/HIPEC. It was a 8.5 Hour Surgery where the majority of my Omentum was removed where most of the Tumors were located, the rest were shaved down to millimeters an then my body Core temp was lowered and Heated Cheme was introduced into the Abdominal Cavity for 90 minutes of the Surgery time. I then spent five weeks reuperating. I have been doing well. In Feb of 2013 a CT Scan detected a 2.9 CM Tumor growing and that made me eligible to be on a Trial. I am still on it and it is keeping the Cancer stable. I will continue to post as I go along.

     

    Mike Breglia

    “[Content removed by CSN Support Team.]"

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