Waiting and Seeing

2

Comments

  • kelli1843
    kelli1843 Member Posts: 72
    #22
    annie60 said:

    keeping you in my heart
    I am so sorry I know the doctor will come up with a great plan. Know that I am praying for just that. You amaze me.

    You are in my thoughts and
    You are in my thoughts and prayers for sure.
  • stayingcalm
    stayingcalm Member Posts: 650 Member
    #23
    kelli1843 said:

    You are in my thoughts and
    You are in my thoughts and prayers for sure.

    LOL
    3 time's the charm! ;) Thanks Kelli, and thanks everybody, feeling nice and toasty now!

    Deb

    (@ DavidF: Imetelstat looks like another good new drug, putting it on my list ;-))
  • gotalotonmymind
    gotalotonmymind Member Posts: 1
    #24
    staying calm
    I agree, you have an amazing attitude and I also wish you the best while your waiting and through it all! God Bless you, I am new to this board, my husband has the cancer. I am paranoid and trying to learn all I can. But I think too that you are amazing, and I will be thinking on you, and including you in my prayers too. I am not as calm as you, I can tell.
  • congoody
    congoody Member Posts: 73
    #25
    stayingcalm said:

    LOL
    3 time's the charm! ;) Thanks Kelli, and thanks everybody, feeling nice and toasty now!

    Deb

    (@ DavidF: Imetelstat looks like another good new drug, putting it on my list ;-))

    Deb, well S#%T,
    sorry I have been AWOL for weeks - went to Canada for Christmas and ended up staying due to my mother's sudden illness - she died a few days ago but on her own terms, in her own home and with her kids by her side - now that I am back online I find myself shocked and saddened by your news -
    though we have not met... it is funny how human connections are made - feel quite upset by your news when I imagine how frightened and perhaps pissed off you must be - maybe I am projecting, that is how I might feel - let's give the neurosurgeon another chance to clean up what he/she left behind last time and hope for the best outcome - am not much on praying but send all best wishes and warm thoughts - connie.
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member
    #26
    Say what?!
    (Stevie Ray Vaughan reference)

    Neither of us believes that being good, even saintly, will save us, I know, but both of us believe that science can do some amazing things, deb, and it sounds as though you are continuing to attack this stuff, and that your docs are in agreement with that decision, all of which indicates hope, my friend.

    No Will and Testament stuff from me, deb. I expect to be reading your entries here for years to come, knowing your strength, will, and intellect, and knowing they will prevail (along with the treatment options you choose).

    Frankly, if you are like me, this brain stuff is about as scary as it gets. When they took out part of my right lung, I considered, "What could be worse than this?" and the first thing I thought of was the brain, even if it is NOT the most dangerous. And the thing is, even in the taking of part of my lung, I felt like they were removing me from me, piece at time. I cannot fathom what it means to feel like they are doing something of that sort to the brain.

    I would be frightened. That you are 'staying calm' is a testament to your courage, sweet friend.

    You are in my thoughts, deb.

    Take care,

    Joe
  • Greggriggs
    Greggriggs Member Posts: 132
    #27
    luz del lago said:

    I'll be pulling for your lucky sttars!
    Deb,
    You are amazing! Your insight and knowledge was one of the first I noticed when I first came to this site. You are straightforward and honest. I try never to second guess myself or look back and think, was that the right decision? The decision I am speaking about is my love's decision to get PCI. However, it was not mine to make. I think he put all information on a scale, and believed that he should not leave any stone unturned. He also had such a difficult time acknowledging this disease! But I know one thing, when I would share your posts, he really thought about what you had shared! I feel that the PCI and the last chemo really affected him in so many ways. And to think, the Monday he passed, he was to begin Topetican!
    We are so unique, and each one of us can have such unique responses to treatment! I wish sometimes that he had not done the PCI or the carbo/taxel. I feel now that they were instrumental in lowering his quality of life.
    Having said that, I believe that your Doc will have something up his sleeve for you. But the strongest believe I have is that your way of being will be what really makes a difference for you!

    My best wishes for you,
    Lucy

    Agree
    Lucy
    I have to agree with you.
    I think his quality of life would have been better with out the carbo/taxol.
    Just talking from my experience.
    But we all grasp at straws !!!
    I sure wish i would have not grab the straw.
    Best of luck to you .
    Prayers.
    Greg
  • Greggriggs
    Greggriggs Member Posts: 132
    #28
    Dam cancer
    Deb I can't imagine how scared you are.
    But with all of us praying for you something good has to happen.

    Even with out the prayers you they have to fix you up.
    I don't know whether you noticed but you have a lot of friends out here.
    I think every once in awhile a really good person is born and you are one of them.
    So you just keep up that attitude and keep hoping an fighting.
    Because all of us need you in our thoughts and lives.
    Greg
  • stayingcalm
    stayingcalm Member Posts: 650 Member
    #29
    Greggriggs said:

    Dam cancer
    Deb I can't imagine how scared you are.
    But with all of us praying for you something good has to happen.

    Even with out the prayers you they have to fix you up.
    I don't know whether you noticed but you have a lot of friends out here.
    I think every once in awhile a really good person is born and you are one of them.
    So you just keep up that attitude and keep hoping an fighting.
    Because all of us need you in our thoughts and lives.
    Greg

    Thank you all again
    I think I may have to print this thread and make all my docs read it before they operate! :-)

    Actually, I'm just making the assumption that my doctor wants me to have surgery, seeing as he set up an appointment with the neurosurgeon, same one who did the previous tumor removal. In any case, the tumor is in a good spot (if there is such a thing!) & I'm sure it can be taken out without damaging anything vital ;-) I had absolutely no repercussions from the surgery last time, so I'm not as scared as you might expect. Nervous, but not terrified.

    All your wishes mean a great deal to me ♥

    Deb
  • NayPaul
    NayPaul Member Posts: 230 Member
    #30
    stayingcalm said:

    Thank you all again
    I think I may have to print this thread and make all my docs read it before they operate! :-)

    Actually, I'm just making the assumption that my doctor wants me to have surgery, seeing as he set up an appointment with the neurosurgeon, same one who did the previous tumor removal. In any case, the tumor is in a good spot (if there is such a thing!) & I'm sure it can be taken out without damaging anything vital ;-) I had absolutely no repercussions from the surgery last time, so I'm not as scared as you might expect. Nervous, but not terrified.

    All your wishes mean a great deal to me ♥

    Deb

    How long??
    When do you see the neurosurgeon?

    It's the unknown that gives most of us anxiety.... hopefully after you see him/her, you will have some more facts, have a better idea of what's happening, and get some comfort.

    Keep it up!
  • 3Mana
    3Mana Member Posts: 811
    #31
    stayingcalm said:

    Thank you all again
    I think I may have to print this thread and make all my docs read it before they operate! :-)

    Actually, I'm just making the assumption that my doctor wants me to have surgery, seeing as he set up an appointment with the neurosurgeon, same one who did the previous tumor removal. In any case, the tumor is in a good spot (if there is such a thing!) & I'm sure it can be taken out without damaging anything vital ;-) I had absolutely no repercussions from the surgery last time, so I'm not as scared as you might expect. Nervous, but not terrified.

    All your wishes mean a great deal to me ♥

    Deb

    You're a fighter, you'll be okay!
    Hey Deb,
    Do you know when the surgery will be, or is it whenever you make the decision? You've gone through alot and fought through it so I'm sure you'll do okay. It's got to be scary though. If I lived near you, I promise I'd be there to help you through this next surgery.
    I think about you and keep praying too. With all the support from everyone on this board, you'll be fine. Take care. Carole
  • stayingcalm
    stayingcalm Member Posts: 650 Member
    #32
    3Mana said:

    You're a fighter, you'll be okay!
    Hey Deb,
    Do you know when the surgery will be, or is it whenever you make the decision? You've gone through alot and fought through it so I'm sure you'll do okay. It's got to be scary though. If I lived near you, I promise I'd be there to help you through this next surgery.
    I think about you and keep praying too. With all the support from everyone on this board, you'll be fine. Take care. Carole

    Alls well that will end well!
    Saw my oncologist today - he confirmed that my lungs are NED, even though my brain isn't =) He spoke to the neurosurgeon and, yes, he plans to do a surgical removal again as the tumor is in an easy spot. I have an appointment with him next week for an assessment & to set a date for the surgery.

    Best part is that my onc is requesting tissue to send out and see if I have the ALK mutation, which will open up new worlds of chemo choices for me ;-) Primarily Crizotinib! He thinks I have a pretty good chance at having the mutation.

    He did say that the GammaKnife is a possibility for later on, if I need it.

    Anyway, it's all good, I don't look forward to being Ms Chipmunk face again, but I'll probably have a clean house for a couple of weeks until I can wean off the Prednisone that goes hand in hand with this surgery =)

    I thank you all for all the good thoughts!

    Deb
  • mrsbotch
    mrsbotch Member Posts: 349
    #33
    stayingcalm said:

    Alls well that will end well!
    Saw my oncologist today - he confirmed that my lungs are NED, even though my brain isn't =) He spoke to the neurosurgeon and, yes, he plans to do a surgical removal again as the tumor is in an easy spot. I have an appointment with him next week for an assessment & to set a date for the surgery.

    Best part is that my onc is requesting tissue to send out and see if I have the ALK mutation, which will open up new worlds of chemo choices for me ;-) Primarily Crizotinib! He thinks I have a pretty good chance at having the mutation.

    He did say that the GammaKnife is a possibility for later on, if I need it.

    Anyway, it's all good, I don't look forward to being Ms Chipmunk face again, but I'll probably have a clean house for a couple of weeks until I can wean off the Prednisone that goes hand in hand with this surgery =)

    I thank you all for all the good thoughts!

    Deb

    Yeh
    Sound good to me Deb. I am so happy for you that there is nothing in the lungs.


    barb
  • lekkerone
    lekkerone Member Posts: 199 Member
    #34
    stayingcalm said:

    Alls well that will end well!
    Saw my oncologist today - he confirmed that my lungs are NED, even though my brain isn't =) He spoke to the neurosurgeon and, yes, he plans to do a surgical removal again as the tumor is in an easy spot. I have an appointment with him next week for an assessment & to set a date for the surgery.

    Best part is that my onc is requesting tissue to send out and see if I have the ALK mutation, which will open up new worlds of chemo choices for me ;-) Primarily Crizotinib! He thinks I have a pretty good chance at having the mutation.

    He did say that the GammaKnife is a possibility for later on, if I need it.

    Anyway, it's all good, I don't look forward to being Ms Chipmunk face again, but I'll probably have a clean house for a couple of weeks until I can wean off the Prednisone that goes hand in hand with this surgery =)

    I thank you all for all the good thoughts!

    Deb

    Staying Calm
    I am so happy for you that things are going in the right direction. That's great news about your lungs and I don't understand about the ALK mutation but apparently that's a good thing. I wish you nothing but the best....you deserve it. Diane
  • medi_2
    medi_2 Member Posts: 505 Member
    #35
    stayingcalm said:

    Alls well that will end well!
    Saw my oncologist today - he confirmed that my lungs are NED, even though my brain isn't =) He spoke to the neurosurgeon and, yes, he plans to do a surgical removal again as the tumor is in an easy spot. I have an appointment with him next week for an assessment & to set a date for the surgery.

    Best part is that my onc is requesting tissue to send out and see if I have the ALK mutation, which will open up new worlds of chemo choices for me ;-) Primarily Crizotinib! He thinks I have a pretty good chance at having the mutation.

    He did say that the GammaKnife is a possibility for later on, if I need it.

    Anyway, it's all good, I don't look forward to being Ms Chipmunk face again, but I'll probably have a clean house for a couple of weeks until I can wean off the Prednisone that goes hand in hand with this surgery =)

    I thank you all for all the good thoughts!

    Deb

    Hey Deb!
    Let me know and you can clme clean my house too! ;). So happy to hear your lungs are clear!
    Good to hear from you, take care of yourself and be sure to post a Chipmunk Photo! hahaha
  • bradygirl
    bradygirl Member Posts: 31
    #36
    medi_2 said:

    Hey Deb!
    Let me know and you can clme clean my house too! ;). So happy to hear your lungs are clear!
    Good to hear from you, take care of yourself and be sure to post a Chipmunk Photo! hahaha

    Thanks
    So glad to hear from you.Hope all goes well grateful you have choices!Your journey inspires me to never stop looking for these choices.God bless, MaryAnn
  • Notpinkenough
    Notpinkenough Member Posts: 14
    #37
    Deb: I have not checked in
    Deb: I have not checked in for quite awhile. I am so sorry to hear of your brain met. You are such a wonderful, inspirational warrior - if anyone can beat this then certainly you will. I will be here pulling for you.

    Chris
  • z
    z Member Posts: 1,414 Member
    #38
    Notpinkenough said:

    Deb: I have not checked in
    Deb: I have not checked in for quite awhile. I am so sorry to hear of your brain met. You are such a wonderful, inspirational warrior - if anyone can beat this then certainly you will. I will be here pulling for you.

    Chris

    Deb
    Thank you for updating us, your attitude is great, and it gives me hope. I am glad that there is a solution to the met, and that if need be, if ever, the gamma knife would be a option, but hopefully for once and for all the surgery will take care of it. I need my house cleaned too, it seems to be the last thing I care to do, but always feel better when its done. I am sending positive thoughts your way. Lori
  • dmcl11
    dmcl11 Member Posts: 22
    #39
    stayingcalm said:

    Alls well that will end well!
    Saw my oncologist today - he confirmed that my lungs are NED, even though my brain isn't =) He spoke to the neurosurgeon and, yes, he plans to do a surgical removal again as the tumor is in an easy spot. I have an appointment with him next week for an assessment & to set a date for the surgery.

    Best part is that my onc is requesting tissue to send out and see if I have the ALK mutation, which will open up new worlds of chemo choices for me ;-) Primarily Crizotinib! He thinks I have a pretty good chance at having the mutation.

    He did say that the GammaKnife is a possibility for later on, if I need it.

    Anyway, it's all good, I don't look forward to being Ms Chipmunk face again, but I'll probably have a clean house for a couple of weeks until I can wean off the Prednisone that goes hand in hand with this surgery =)

    I thank you all for all the good thoughts!

    Deb

    happy endings
    Deb i only found this sight yesterday but by looking around and reading posts if there is a hall of fame for this site you would surely be in it! I hope the best for you moving forward. dave
  • JohnBinDC
    JohnBinDC Member Posts: 91 Member
    #40
    stayingcalm said:

    Alls well that will end well!
    Saw my oncologist today - he confirmed that my lungs are NED, even though my brain isn't =) He spoke to the neurosurgeon and, yes, he plans to do a surgical removal again as the tumor is in an easy spot. I have an appointment with him next week for an assessment & to set a date for the surgery.

    Best part is that my onc is requesting tissue to send out and see if I have the ALK mutation, which will open up new worlds of chemo choices for me ;-) Primarily Crizotinib! He thinks I have a pretty good chance at having the mutation.

    He did say that the GammaKnife is a possibility for later on, if I need it.

    Anyway, it's all good, I don't look forward to being Ms Chipmunk face again, but I'll probably have a clean house for a couple of weeks until I can wean off the Prednisone that goes hand in hand with this surgery =)

    I thank you all for all the good thoughts!

    Deb

    Thanks for posting the good news
    Deb, I am so happy that your lungs are confirmed NED, and that the tumnor is in a good place for surgery.. I hope the ALK mutation is present and that leads to successful treatment with Crizotinib. If not that, then another treatment that is successful for you. You are inspiring and a fighter, and I am so glad that you are a consisnent presence on this board. I wish you the very best always and look forward to reading of your progress! Best wishes always!

    John
  • Glenna M
    Glenna M Member Posts: 1,576
    #41
    stayingcalm said:

    Alls well that will end well!
    Saw my oncologist today - he confirmed that my lungs are NED, even though my brain isn't =) He spoke to the neurosurgeon and, yes, he plans to do a surgical removal again as the tumor is in an easy spot. I have an appointment with him next week for an assessment & to set a date for the surgery.

    Best part is that my onc is requesting tissue to send out and see if I have the ALK mutation, which will open up new worlds of chemo choices for me ;-) Primarily Crizotinib! He thinks I have a pretty good chance at having the mutation.

    He did say that the GammaKnife is a possibility for later on, if I need it.

    Anyway, it's all good, I don't look forward to being Ms Chipmunk face again, but I'll probably have a clean house for a couple of weeks until I can wean off the Prednisone that goes hand in hand with this surgery =)

    I thank you all for all the good thoughts!

    Deb

    And it will end well...
    Deb, so happy to hear that your doctors have a game plan and that the outcome sounds good. Sorry you have to have more surgery but I know with your strength and determination the outcome will be great.

    Sending positive thoughts your way.

    Glenna

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