2026 Ocular melanoma (eye cancer)

amystorment

My husband was diagnosed with choroidal melanoma December 9, 2025. He completed plaque brachytherapy January 2026. His biopsy came back Class 1A, PRAME Negative. He's is in a clinical trial studying sight preservation .

amystorment

Eye cancer is rare. If you have a different rare cancer and just want someone to talk to, you are welcome to comment in this topic. We can discuss the rareness of the diagnosis and how that in itself is difficult.

amystorment

amystorment

Husband (B) is really frustrated with his vision. He says his eyes aren't working together. When he closes his left eye, the good eye, everything is covered in a dense fog. 1. He had a hemorrhage during surgery and doc says he has blood floating around in his eye. It will take time for the body to break that down and that will help. 2. He has been on drops that keep his eye dilated. This is supposed to keep his iris from having spasms. Those drops have been discontinued now. It will take time for the dilation to go away. We're hoping that will also help his vision. 3. His tumor is really close to his macula. This affects his center vision. 4. The tumor was under his retina, pushing up on it, detaching it. It was also leaking fluid there. The retina needs to heal. So we are in a waiting phase to see what his vision is going to be like. Lots of unknowns.

amystorment

He's really frustrated. He feels kind of like he's trapped and can't get out.

amystorment

Doc says scarring will slowly take over where the tumor is dying. This will also affect his vision. All of this is okay. As long as it doesn't metastasize. Our biggest fear.