Bosniak 3 cyst and a lung nodule

operarockergirl

Hello everyone!
This is a group I never ever thought I would be posting in, but here I am.

I was diagnosed with a Bosniak 3 cyst, highly suspicious of renal cell carcinoma at the end of December.

I have seen 1 specialist who really dismissed a lot of my worries but said I did need surgery. I agree. I’m waiting for a second opinion from one of the best surgeons around me so I can hopefully get surgery with him.

I am now TERRIFIED (that’s an understatement) even more now because they ordered a chest CT scan - expecting to see nothing. But there is one 3 mm right apical nodule present. It says on my results statistically speaking it’s likely benign, but with everything I’m going through I am truly spiraling.

I am only 32 years old, very overweight from PCOS, have Crohn’s disease, PVCs, high blood pressure, etc. so dealing with this as well has been very hard for me. Especially because I have 2 young kids who are my entire world.

Any positive stories, experiences, etc. would be greatly appreciated right now. I’m trying to be okay, but I truly am not.

Thank you everyone! 🙏

pro

My husband had RCC for 13 yrs died in July. Now they tell me I have a kidney mass they strongly believe is Cancer. My husband showed me the best way to get through this very frightening cancer thing. After some tears he continued each day as if nothing was different, kept living his life, was happy when not real ill. He said shot happens. The 13 yrs we had we’re not just a nightmare they were special times around alot of hardship. For me whatever is gonna happen its happening wether I’m freaked out scared or I’m accepting and living my life while handling my cancer. Because I got to see how he did it I choose that because the other choices suck. My heart is w you

BattleStar

https://csn.cancer.org/discussion/329929/bosniak-3-cyst-and-a-lung-nodule

Hello operagirl, I am sorry to hear about your situation. first of all take it one day at a time.. trying to think to far forward will not help you. considering you already have pre exiting problems its important that you get those controlled as much as possible. high BP and such can become a bigger issue regarding treatment. eat healthy as you can and flee from to much sugars if you are consuming any. tumors love sugar so you obviously want to starve the tumors. there are positive stories with people who have had cancer but keep in mind not all cases are the same and effectiveness of treatment varies from person to person. communicate closely with your doctors, ask questions as well as do research on your own. I am a current stage 4 cancer patient and understand how exhausting everything can be. I hope you have a good support group with you healthcare , family, friends, ECT.. God bless you..

Allochka

Hello,

sorry to hear about your situation!

But, first of all - it is not given that that cyst is cancer. Quite probable - but NOT proven yet.

Second - there are A LOT of people here with lung nodules, which are benign. I can imagine how scary it is - I went through it with my husband. Every finding meant mets for me - but turned out benign things.

You are facing torture of waiting - waiting for surgery, then pathology, then follow up chest scan. This is horrible :-( But that DOES NOT MEAN you have cancer, or, if it is kidney cancer - that these are mets!

Hugs,

Alla

operarockergirl

https://csn.cancer.org/discussion/comment/1725997#Comment_1725997

Thank you so much! I have been incredibly scared to the point I cannot function and I feel so bad for my husband and kids. I’m praying to god this isn’t cancer. But the surgery now is what scares me the most because of all my other health problems. I’m hoping your husband (and you!) are okay now!

Allochka

Thank you, we are ok! Husband is NED for 11 years! :-) He is not a worrier and even stopped follow-ups 2 years ago. With his Stage 1 Grade 1 it is acceptable (not reasonable, if you ask me, but acceptable from medical point of view).

Surgery is not that bad, anxiety seems much more crippling.

How big is your cyst? When is the surgery?

Please remember that even if cyst turns out to be cancer - kidney cancer is treatable with surgery in Stages 1-3 and with Stages 1-2 has a very, very good prognosis. Even Stage 4 is being managed successfully.

But please, please do not assume that this nodule is a met. Almost half of CT scans show lung nodules!

As somebody posted here years ago - their doctor said that if he had to pick the cancer for himself, he would choose kidney or thyroid.

Stick to this forum, read through all the pages - it will help you to see the light at the end of the tunnel. It helped me and countless others immensely. Kidney cancer (and you are not even told you have it) is NOT the end of the world in majority of cases.

lobbyist0724

https://csn.cancer.org/discussion/comment/1725998#Comment_1725998

I was very scared too 10 years ago, and I had a Bosniak 3 cyst as well. But please note, even if it is cancer, the majority of cystic RCC are indolent. Which means the chances of it metastasizing to other organ is very small, and just surgery would take care of it. If you are scared about the surgery, I can tell you it is a very sophisticated and safe procedure; once they put you to sleep, you will wake up without the buggie. I still remember how good it felt. I would suggest putting more thinking on the discovery. Please read my profile! All the best!