The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

AML and IDH1 and Tibsovo

Anton01
Anton01 CSN Member Posts: 2 *
in Leukemia #1

Hello,

My wife was diagnosed with AML possibly caused by a mutation in the IDH1 gene (it may not be the only one, EZH2 as well?). Prescribed Tibsovo which works great for now. I have questions to members that may be using this drug:

How long have you been using it with or w\o side effects?

Any advise on reducing the dose if side effects occur and the efficacy of the reduced dose?

Thank you

Like Care

Discussion Boards