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theLorax

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theLorax

a few typos above after all I have fat fingers and am human 😅

burakbolluk

https://csn.cancer.org/discussion/329789/newly-diagnosed-and-terrified

Hello, first of all i assure you that the name of the diagnosis is bigger than the illness itself, the treatment/medication has improved over the years compare to other types; if it will be a help let me pass you my experience; I had radiotherapy all the way and rejected any intervention but as a result after 3 years i have developed Radiation Induced Bracial Plexus in other words I have lost the ability to use my arms, hands are working.

During and after radiotherapy for some time I couldn't swallow, taste and lost 1/3 of my body weight so i recommend that if you don't have any excess weight gain as much as you can until the 2/3 week of radiotherapy than you will have an other 3/4 weeks of heavier therapy once it is finished , you most probably will have temporary discomforts such as dry mouth, loss of taste, not able to swallow but within the following 6 months you will recover over 80%. After recovery, one day(3 years later) I started feeling tingling on my neck and within next 18 months I have lost the ability to use my arms. Surely this doesn't mean that you will have the same but what I mean is; there is no guarantee also for Radiotherapy, nevertheless I have been told that a cut can heal but for a burnt nerve there is no coming back; (I really want to verify this with the doctor that has given you the heads up on the arm mobility , if you could pass me his/her details I would like to get in touch with him/her because whenever I talk to a doctor about RIBP they seem to be surprised, I have never met a doctor that is aware of this side effect.)

In short, if I would go back in time; initially I wouldn't like to go trough this but since it happened I would go for an intervention since the side effects are more or less proceeds the same way.