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Cancer X2

wilzmandy
wilzmandy CSN Member Posts: 1 *
in Breast Cancer #1

I was 37 years old when I was first diagnosed with stage 2 Breast cancer. ER/PR+/ Her2-. Now, 8 years later, I've just been diagnosed with bone mets, ER/PR -, HER2+. My cancer cells completely changed characteristics this time around but is still considered to originate from my BC. We also had genetic testing done for this to see if they could find anything (we only did BRACA1 & 2 testing my first go around). Turns out I have a mutated TP53 Gene.

I am 45 years old with 2 kids at home yet, just looking for uplifting positive stories from others who have similar paths as me. I feel fine, and like eight years ago, I'm not having any issues with chemo or my treatments. I honestly would have never even known I had cancer again had I not reached out to my oncologist with horrible back pain that the chiropractor and my family doctor were dismissing

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Comments

  • bibliophile
    bibliophile CSN Member Posts: 130 Member
    #2

    I'm not on the same path as you are, but I can relate to feeling completely fine and then discovering mets and having to go back into treatment. I also have kids still at home, and I am sorry you are going through this! Wishing you the best. Wanted you to feel heard.

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  • mmbayne
    mmbayne CSN Member Posts: 9 Member
    #3

    I can relate to your situation, I was diagnosed with mets just a month after the initial diagnosis, only later because our broken health system takes time to function. The hardest part of that was getting treated by the dr like it was just every day that someone gets first diagnosed with stage 4. I found a new oncologist immediately and haven't looked back since! My current oncologist is great and I have a lot of confidence in my team. I have her2+ with a 65% proliferation rate, but they seem to think I am now stable after 6 rounds of chemo. It's just been 6 months since I was diagnosed, but everyone seems to be positive about my chances of longevity, I am very strict about keeping my appointments even when it totally sucks to go, and I take my service dog, it really helps. I'm almost ready for surgery, and past the brain fog from chemo. The strangest side effect I had was after the chemo, all my muscles became super tight and I could barely bend my legs, I have always been really flexible before this so it was just really bizarre.

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