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Advice about treatment options for a Mixed Adenoneuroendocrine Carcinoma (MiNEN)

barbaravela87
barbaravela87 CSN Member Posts: 1 *
in Rare and Other Cancers #1

Hello everyone,

My cousin (37 years old) has been diagnosed with a Mixed Adenoneuroendocrine Carcinoma (MiNEN) located in the tail of the pancreas, measuring about 13x15 cm. The tumor is attached to the spleen, the ribs, and possibly some nearby areas.

The pathology report mentions a neuroendocrine component, and there might be a few small local metastases near the tumor, but no distant spread so far.

We are trying to understand what treatment could offer the best outcome — surgery first or chemotherapy first?

If anyone has experience with pancreatic MiNEN or similar cases, we would truly appreciate your insights on:

  • When surgery is recommended vs. when to start chemotherapy
  • Which chemo regimens have worked best in your experience

Thank you so much for any help or shared experience. 🙏

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