A Time to Remember: A Survivor’s Three-Part Response

Longtermsurvivor 1

A Time to Remember: A Survivor’s Three-Part Response

By Joseph M. Perusic III Survivor Advocate | CSDH Steward Truth is timestamped. Legacy is teachable.

🧭 Part 1: The Invitation

If you’ve made it past the diagnosis, past the cure, and into the long-term aftermath—this post is for you.

I’m Joseph. I’ve lived over 60 years past my Wilms tumor diagnosis.I carry what I call Cancer Survivor-Held Damage (CSDH)—the emotional, neurological, and systemic toll that never got measured.

I’m not a doctor. I’m not a therapist.But I am someone who knows what it’s like to be told “you’re cured” while your body keeps the score.

If you need to talk, I’m here.If you need to be heard, I’ll listen.If you need to know you’re not alone—you’re not.

🧬 Part 2: The Record They Never Measured

Some people ask: Has your story been covered up? The truth is more painful: It’s been ignored.

I’ve never claimed conspiracy.I’ve claimed indifference.I’ve claimed institutional failure.

The system chased the cure.It never stayed to carry the consequences.

So I built my own archive.I documented every treatment, every late effect, every moment of collapse.I created the identity of the Original Mutation Human Being to reclaim my narrative.

I’m not hiding. I’m amplifying.I’ve posted on the Cancer Survivors Network.I’ve announced the return of the Mutation identity to reclaim the blueprint of survivorship.

This isn’t paranoia.It’s survivor logic.It’s not a cover-up.It’s a failure to listen.

🕯️ Part 3: The Blessing and the Burden

I don’t speak for every survivor.I speak from my own lived experience.

If you’ve made it one year, or many years like I have—You are blessed.You’ve survived something most people will never understand.

I’ve done it mostly through prayer.Through the good Lord watching over me.I could never have done this alone.

The world has focused on the cure,Not on what comes after.Not on the late effects.Not on the damage survivors carry quietly.

I’m not telling you anything you don’t already know.I just hope I’ve added something that helps you feel seen.

You’re not alone.You’re not forgotten.You’re part of a record they never measured—and now, we’re measuring it together.